Lupus and Allied Diseases Association, Inc.
LightNews LightNews
banner
ladaorg.bsky.social
Lupus and Allied Diseases Association, Inc.
@ladaorg.bsky.social
97 followers 150 following 91 posts
Improving access to care and quality of life by wielding the patient and care partner voice as a catalyst to advance advocacy, education, awareness and research efforts.
Posts Replies Media Videos
ladaorg.bsky.social
#LADAorg is honored to sponsor a table at the LRA Gala to recognize people with #lupus for their grace, dignity and courage while supporting #lupusresearch.
@lupuschat.bsky.social @annezab.bsky.social @caringforlupus.bsky.social @masonicresearch.bsky.social @lupusresearch.bsky.social
November 25, 2025 at 8:16 AM
ladaorg.bsky.social
Want to see Medicaid’s impact on your community? @ModernMedicaid’s updated #MedicaidDashboard is a one-stop-shop for national, state and district-level enrollment data. Check out the site for more: data.modernmedicaid.org @lupuschat.bsky.social @michiganlupus.bsky.social @caringforlupus.bsky.social
November 12, 2025 at 10:10 PM
ladaorg.bsky.social
The #LADAorg Team is thrilled to attend and exhibit at #RNS2025 in beautiful San Antonio to network, learn, share resources and elevate the #PatientVoice in Rheumatology! Kudos to RNS President Teri Puhalsky and Executive Director Sadie Larson for hosting the Annual Conference. #Lupus
November 7, 2025 at 1:30 AM
ladaorg.bsky.social
Kudos to @whitneywarriors for doing an amazing job presenting at the #ACR25 #PatientPerspective session. By sharing her own challenges and solutions is key to advancing better care. #LADAorg #PatientVoice
@lupuschat.bsky.social @michiganlupus.bsky.social @masonicresearch.bsky.social
October 30, 2025 at 7:56 PM
ladaorg.bsky.social
#LADAorg is appreciative of our strong partnerships with our patient advocacy colleagues at the #Lupus Community Booth #2121 at #ACR2025. Kudos for collaborating to improve lives! @lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @infusioncenter.bsky.social
October 27, 2025 at 5:05 AM
ladaorg.bsky.social
We are excited to attend #ACR25 to network, learn and share our resources. Visit us at the #Lupus Community Booth # 2121. #PatientVoice
@lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @acr25.bsky.social @rheumepi.bsky.social @rheumcat.bsky.social

#LADAorg
October 21, 2025 at 2:15 AM
ladaorg.bsky.social
We are thrilled to share that our 25th Annual #Lupus Charity Golf Classic raised over $205,000 last week at Shenendoah Golf Course and we donated another $539,724 for #LupusResearch. Thank you to our volunteers, sponsors, golfers and #TurningStone sales, catering and golf staff.
August 23, 2025 at 3:41 PM
ladaorg.bsky.social
Thank you to #BIO
and Michele for giving our President & CEO Kathleen Arntsen the opportunity to share her #Autoimmune journey at #BIO2025 and why #Advocacy and Research are important. @annezab.bsky.social
June 18, 2025 at 4:25 AM
ladaorg.bsky.social
The #LADAOrg Team is excited to be here at #BIO2025 in Boston to bring the #PatientPerspective and partner with other stakeholders to advance global innovation that improves lives. Kudos to BIO
for developing a great program and our dear friend Paul for always being a good sport! 💜
The #LADAOrg Team is excited to be here at #BIO2025 to bring the #PatientPerspective and partner with other stakeholders to advance global #Innovation that improves lives. Kudos to BIO for developing a great program and our dear friend Paul for being a good sport! 💜
June 16, 2025 at 7:05 AM
ladaorg.bsky.social
We need crosssector collaborations, public-private partnerships and robust basic, clinical and translational projects to identify biomarkers, better clinical trial methodologies, prevent complications, develop better dx measures and safer, >effective #lupus drugs and cures. @lupuschat.bsky.social
We need cross-sector collaborations, public-private partnerships and robust basic, clinical and translational projects to identify biomarkers, better clinical trial methodologies, prevent complications, develop better dx measures and safer, more effective treatments, and cures.
May 31, 2025 at 5:35 AM
ladaorg.bsky.social
#Lupus is considered a disease of unmet medical need because of the lack of efficient diagnostic tools, effective therapies, and well-designed clinical trials.

#LupusAwarenessMonth #LupusAwareness

@lupuschat.bsky.social @caringforlupus.bsky.social @michiganlupus.bsky.social @ghlforg.bsky.social
#Lupus is considered a disease of unmet medical need because of the lack of efficient diagnostic tools, effective therapies, and well-designed clinical trials. #LupusAwarenessMonth #LupusAwareness
May 30, 2025 at 5:31 AM
ladaorg.bsky.social
The annual per patient cost to employers, including medical care, work absence, and shortterm disability, is higher than for other chronic diseases such as diabetes, chronic obstructive pulmonary disease, and heart disease. #LupusAwareness

@lupuschat.bsky.social
@masonicresearch.bsky.social
The annual per patient cost to employers, including medical care, work absence, and shortterm disability, is higher than for other chronic diseases such as diabetes, chronic obstructive pulmonary disease, and heart disease. #LupusAwarenessMonth
May 29, 2025 at 9:21 AM
ladaorg.bsky.social
Many #lupus patients are concerned with potential side effects of both drug interventions as well as disease worsening such as hair loss, rashes, weight gain, gastrointestinal problems; outcomes that may be socially challenging to young people in the prime of their lives. @lupuschat.bsky.social
May 28, 2025 at 9:07 AM
ladaorg.bsky.social
Disease onset coincides with critical years for education and career advancement, #lupus profoundly disrupts working lives. We need treatments that will improve qol so people with lupus can achieve their hopes and dreams and be parents.

#LupusAwarenessMonth #LupusAwareness

@lupuschat.bsky.social
May 27, 2025 at 11:09 AM
ladaorg.bsky.social
While some drugs provide benefits to people with #lupus, significant side effects exist and can cause an increase in infections, cancer, significant bone loss and osteoporosis, sterility, and stroke among many other adverse health consequences. We need an arsenal of new drugs! @lupuschat.bsky.social
May 26, 2025 at 12:55 PM
ladaorg.bsky.social
It is estimated that as many as one in every 250 African American women in America has #lupus and huge health disparities exist. There is a critical need for #socialdeterminants of health (SDOH) to be addressed as well. #LupusAwareness @lupuschat.bsky.social @caringforlupus.bsky.social
May 25, 2025 at 6:59 AM
ladaorg.bsky.social
Kudos to @zahitouma.bsky.social and the #LUPUS2025 organizers for hosting a wonderful Gala event last evening while the #LADAOrg team enjoyed the food, music and networking. #Lupus

@lupuschat.bsky.social @caringforlupus.bsky.social @annezab.bsky.social @alhkim.bsky.social
May 24, 2025 at 6:36 AM
ladaorg.bsky.social
Classification criteria are used to define #lupus study populations due to lack of specific biomarkers to define disease aspects, resulting in combining heterogeneous patients with various manifestations and different pathophysiologies/pathogenesis together into 1 group. @lupuschat.bsky.social
May 24, 2025 at 5:00 AM
ladaorg.bsky.social
#LADAOrg is honored to sponsor #LUPUS2025 & bring our mighty team to learn, engage, & share insights.
@lupuschat.bsky.social @caringforlupus.bsky.social @annezab.bsky.social @tiffanyandlupus.bsky.social
Kathleen Arntsen,
Dina Thachet, Kaamilah Gilyard, Whiney Carter, David Arntsen,
Autumn Austin
May 23, 2025 at 7:42 PM
ladaorg.bsky.social
Although #lupus is more severe and more prevalent in non-white populations, recruitment of minority patients for #clinicalresearch has proven to be particularly challenging, demonstrating the urgency of industry investment to address the issue.

#LupusAwarenessMonth #LADAOrg @lupuschat.bsky.social
Although #lupus is more severe and more prevalent in non-white populations, recruitment of minority patients for #clinicalresearch has proven to be particularly challenging, demonstrating the urgency of industry investment to address the issue. #LupusAwarenessMonth #LADAOrg
May 23, 2025 at 4:37 AM
ladaorg.bsky.social
#Fatigue is the most prevalent and incapacitating symptom experienced by about 85 to 92% of people with #lupus, resulting in decreased physical and mental function, and 50% of patients rated it as the most disabling symptom.

#LupusAwarenessMonth
@lupuschat.bsky.social @caringforlupus.bsky.social
May 22, 2025 at 4:10 AM
ladaorg.bsky.social
The #LADAOrg team has all arrived in Toronto for #LUPUS2025 where we will be attending sessions and learning about the latest in lupus from international experts while networking with the global lupus community. #Lupus #LupusAwarenessMonth

@lupuschat.bsky.social @caringforlupus.bsky.social
May 22, 2025 at 3:53 AM
ladaorg.bsky.social
Thank you Peter Lipsky for an informative presentation on #ArtificialIntelligence at #LUPUS2025 during the “Future of Lupus” session.

#LADAOrg @lupuschat.bsky.social @caringforlupus.bsky.social
May 22, 2025 at 3:50 AM
ladaorg.bsky.social
Minority women tend to develop #Lupus at a younger age, experience more serious complications and have higher mortality rates—up to 3 times the incidence and mortality of Caucasians. #LupusAwarenessMonth #LupusAwareness

@lupuschat.bsky.social @caringforlupus.bsky.social @michiganlupus.bsky.social
Minority women tend to develop #Lupus at a younger age, experience more serious complications and have higher mortality rates—up to 3 times the incidence and mortality of Caucasians. #LupusAwarenessMonth #LupusAwareness @lupuschat.bsky.social @caringforlupus.bsky.social @michiganlupus.bsky.social
May 21, 2025 at 5:12 AM
ladaorg.bsky.social
#Clinicaltrials aren’t designed to measure outcomes described as most important to those with #lupus such as mitigating fatigue, daily healthrelated quality of life aspects, reduction in current drug regimen, steroid-sparing, side effect tolerability, and comorbid conditions. @lupuschat.bsky.social
#Clinicaltrials aren’t designed to measure outcomes described as most important to those with #lupus such as mitigating fatigue, daily healthrelated quality of life aspects, reduction in current drug regimen, steroid-sparing, side effect tolerability, and comorbid conditions. @lupuschat.bsky.social
May 20, 2025 at 4:52 AM