Lupus and Allied Diseases Association, Inc.
@ladaorg.bsky.social
Improving access to care and quality of life by wielding the patient and care partner voice as a catalyst to advance advocacy, education, awareness and research efforts.
Pinned
#LADAorg is appreciative of our strong partnerships with our patient advocacy colleagues at the #Lupus Community Booth #2121 at #ACR2025. Kudos for collaborating to improve lives! @lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @infusioncenter.bsky.social
#LADAorg is honored to sponsor a table at the LRA Gala to recognize people with #lupus for their grace, dignity and courage while supporting #lupusresearch.
@lupuschat.bsky.social @annezab.bsky.social @caringforlupus.bsky.social @masonicresearch.bsky.social @lupusresearch.bsky.social
@lupuschat.bsky.social @annezab.bsky.social @caringforlupus.bsky.social @masonicresearch.bsky.social @lupusresearch.bsky.social
November 25, 2025 at 8:16 AM
#LADAorg is honored to sponsor a table at the LRA Gala to recognize people with #lupus for their grace, dignity and courage while supporting #lupusresearch.
@lupuschat.bsky.social @annezab.bsky.social @caringforlupus.bsky.social @masonicresearch.bsky.social @lupusresearch.bsky.social
@lupuschat.bsky.social @annezab.bsky.social @caringforlupus.bsky.social @masonicresearch.bsky.social @lupusresearch.bsky.social
Want to see Medicaid’s impact on your community? @ModernMedicaid’s updated #MedicaidDashboard is a one-stop-shop for national, state and district-level enrollment data. Check out the site for more: data.modernmedicaid.org @lupuschat.bsky.social @michiganlupus.bsky.social @caringforlupus.bsky.social
November 12, 2025 at 10:10 PM
Want to see Medicaid’s impact on your community? @ModernMedicaid’s updated #MedicaidDashboard is a one-stop-shop for national, state and district-level enrollment data. Check out the site for more: data.modernmedicaid.org @lupuschat.bsky.social @michiganlupus.bsky.social @caringforlupus.bsky.social
The #LADAorg Team is thrilled to attend and exhibit at #RNS2025 in beautiful San Antonio to network, learn, share resources and elevate the #PatientVoice in Rheumatology! Kudos to RNS President Teri Puhalsky and Executive Director Sadie Larson for hosting the Annual Conference. #Lupus
November 7, 2025 at 1:30 AM
The #LADAorg Team is thrilled to attend and exhibit at #RNS2025 in beautiful San Antonio to network, learn, share resources and elevate the #PatientVoice in Rheumatology! Kudos to RNS President Teri Puhalsky and Executive Director Sadie Larson for hosting the Annual Conference. #Lupus
No es necesario navegar por páginas de farmacias este otoño: el nuevo Localizador de Vacunas de @CVEEPSocial lo ha simplificado. Encuentra
sitios de vacunación cercanos en un solo lugar y este otoño, programa tu cita fácilmente. Más: cveep.org/es/vaccine-locator/ @lupuschat.bsky.social
sitios de vacunación cercanos en un solo lugar y este otoño, programa tu cita fácilmente. Más: cveep.org/es/vaccine-locator/ @lupuschat.bsky.social
Localizador de Vacunas - CVEEP
Fuentes de datos y descargo de responsabilidadEsta herramienta proporciona información sobre una variedad de lugares de vacunación, incluidos centros de salud con certificación federal (FQHC) y farmac...
cveep.org
November 5, 2025 at 9:37 PM
No es necesario navegar por páginas de farmacias este otoño: el nuevo Localizador de Vacunas de @CVEEPSocial lo ha simplificado. Encuentra
sitios de vacunación cercanos en un solo lugar y este otoño, programa tu cita fácilmente. Más: cveep.org/es/vaccine-locator/ @lupuschat.bsky.social
sitios de vacunación cercanos en un solo lugar y este otoño, programa tu cita fácilmente. Más: cveep.org/es/vaccine-locator/ @lupuschat.bsky.social
Fall is a critical time to stay protected against respiratory diseases.
@CVEEPSocial’s new Vaccine Locator is a helpful tool that makes finding a nearby vaccination site easy. Find pharmacies and health centers and schedule an appointment today: cveep.org/vaccine-locator @lupuschat.bsky.social
@CVEEPSocial’s new Vaccine Locator is a helpful tool that makes finding a nearby vaccination site easy. Find pharmacies and health centers and schedule an appointment today: cveep.org/vaccine-locator @lupuschat.bsky.social
Vaccine Locator - CVEEP
Data Sources and DisclaimerThis tool provides information on a variety of vaccination locations, including federally qualified health centers (FQHCs) and independent and commercial pharmacies, by comb...
cveep.org
November 5, 2025 at 9:11 PM
Fall is a critical time to stay protected against respiratory diseases.
@CVEEPSocial’s new Vaccine Locator is a helpful tool that makes finding a nearby vaccination site easy. Find pharmacies and health centers and schedule an appointment today: cveep.org/vaccine-locator @lupuschat.bsky.social
@CVEEPSocial’s new Vaccine Locator is a helpful tool that makes finding a nearby vaccination site easy. Find pharmacies and health centers and schedule an appointment today: cveep.org/vaccine-locator @lupuschat.bsky.social
Reposted by Lupus and Allied Diseases Association, Inc.
CC for interest
@kristenyoung.bsky.social
@rheumcat.bsky.social
@lupusdnadoc.bsky.social
@lupuschat.bsky.social
@ladaorg.bsky.social
@lupusresearch.bsky.social
@kristenyoung.bsky.social
@rheumcat.bsky.social
@lupusdnadoc.bsky.social
@lupuschat.bsky.social
@ladaorg.bsky.social
@lupusresearch.bsky.social
November 5, 2025 at 6:29 PM
Kudos to @whitneywarriors for doing an amazing job presenting at the #ACR25 #PatientPerspective session. By sharing her own challenges and solutions is key to advancing better care. #LADAorg #PatientVoice
@lupuschat.bsky.social @michiganlupus.bsky.social @masonicresearch.bsky.social
@lupuschat.bsky.social @michiganlupus.bsky.social @masonicresearch.bsky.social
October 30, 2025 at 7:56 PM
Kudos to @whitneywarriors for doing an amazing job presenting at the #ACR25 #PatientPerspective session. By sharing her own challenges and solutions is key to advancing better care. #LADAorg #PatientVoice
@lupuschat.bsky.social @michiganlupus.bsky.social @masonicresearch.bsky.social
@lupuschat.bsky.social @michiganlupus.bsky.social @masonicresearch.bsky.social
Reposted by Lupus and Allied Diseases Association, Inc.
Absolutely adore @ireneblanco.bsky.social, such an amazing person and one of my favorite rheumatologists. Thank you for stopping by & bringing your mentee who also happens to be my old rheumy by the lupus community booth at #ACR25!
#LADAorg #LupudChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social
#LADAorg #LupudChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social
October 28, 2025 at 5:52 PM
Absolutely adore @ireneblanco.bsky.social, such an amazing person and one of my favorite rheumatologists. Thank you for stopping by & bringing your mentee who also happens to be my old rheumy by the lupus community booth at #ACR25!
#LADAorg #LupudChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social
#LADAorg #LupudChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social
Reposted by Lupus and Allied Diseases Association, Inc.
So excited about Dr. Daniel Whibley’s presentation at #ACR25 on Cognitive Dysfunction and how it Manifests in those living w/Fibromyalgia. He shared several ways to conduct baseline cognitive tests.
cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat
October 28, 2025 at 3:40 PM
So excited about Dr. Daniel Whibley’s presentation at #ACR25 on Cognitive Dysfunction and how it Manifests in those living w/Fibromyalgia. He shared several ways to conduct baseline cognitive tests.
cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat
Reposted by Lupus and Allied Diseases Association, Inc.
Absolutely thrilled to catch this #ACR25 session on the Cognitive Function in Rheumatic Diseases. The first presentation was given by, patient advocate, Mary Alore sharing her experience with brain fog.
Cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat
Cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat
October 28, 2025 at 3:18 PM
Absolutely thrilled to catch this #ACR25 session on the Cognitive Function in Rheumatic Diseases. The first presentation was given by, patient advocate, Mary Alore sharing her experience with brain fog.
Cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat
Cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat
Reposted by Lupus and Allied Diseases Association, Inc.
Dr. Jillian Rose also shared some great analogies for what NOT talking about sex health is like!
🔸…it’s like treating half the disease.
🔸…is like measuring function without asking about QoL (quality of life)
See images for reference ↴ #ACR25
cc: @ladaorg.bsky.social @lupuschat.bsky.social
🔸…it’s like treating half the disease.
🔸…is like measuring function without asking about QoL (quality of life)
See images for reference ↴ #ACR25
cc: @ladaorg.bsky.social @lupuschat.bsky.social
October 28, 2025 at 3:01 PM
Dr. Jillian Rose also shared some great analogies for what NOT talking about sex health is like!
🔸…it’s like treating half the disease.
🔸…is like measuring function without asking about QoL (quality of life)
See images for reference ↴ #ACR25
cc: @ladaorg.bsky.social @lupuschat.bsky.social
🔸…it’s like treating half the disease.
🔸…is like measuring function without asking about QoL (quality of life)
See images for reference ↴ #ACR25
cc: @ladaorg.bsky.social @lupuschat.bsky.social
Reposted by Lupus and Allied Diseases Association, Inc.
Learning a lot in an #ACR25 session led by @ireneblanco.bsky.social & hearing Patient Advocate, Grayson Schultz speak on the many barriers LGBTQIA+ individuals face while trying to access healthcare & how to navigate rheumatology care as an LGBTQIA+ patient. #LADAorg #LupusChat @ladaorg.bsky.social
October 27, 2025 at 8:12 PM
Learning a lot in an #ACR25 session led by @ireneblanco.bsky.social & hearing Patient Advocate, Grayson Schultz speak on the many barriers LGBTQIA+ individuals face while trying to access healthcare & how to navigate rheumatology care as an LGBTQIA+ patient. #LADAorg #LupusChat @ladaorg.bsky.social
Reposted by Lupus and Allied Diseases Association, Inc.
Dr. Martha Delgado gave a great #ACR25 presentation focused on improving patient participation in clinical trials in Latino communities. She shared barriers for both patients & providers as well current efforts to remove barriers.
cc: @ladaorg.bsky.social #LADAorg @lupuschat.bsky.social #LupusChat
cc: @ladaorg.bsky.social #LADAorg @lupuschat.bsky.social #LupusChat
October 27, 2025 at 6:42 PM
Dr. Martha Delgado gave a great #ACR25 presentation focused on improving patient participation in clinical trials in Latino communities. She shared barriers for both patients & providers as well current efforts to remove barriers.
cc: @ladaorg.bsky.social #LADAorg @lupuschat.bsky.social #LupusChat
cc: @ladaorg.bsky.social #LADAorg @lupuschat.bsky.social #LupusChat
Reposted by Lupus and Allied Diseases Association, Inc.
October 27, 2025 at 3:13 PM
Reposted by Lupus and Allied Diseases Association, Inc.
Patient experience researcher & advocate extraordinaire, Monique Gore-Massy gave a great presentation at #ACR25 on the importance of sexual health being an essential part of patient care! #LADAorg #LupusChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social
cc: @ladaorg.bsky.social @lupuschat.bsky.social
October 27, 2025 at 3:10 PM
Patient experience researcher & advocate extraordinaire, Monique Gore-Massy gave a great presentation at #ACR25 on the importance of sexual health being an essential part of patient care! #LADAorg #LupusChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social
cc: @ladaorg.bsky.social @lupuschat.bsky.social
#LADAorg is appreciative of our strong partnerships with our patient advocacy colleagues at the #Lupus Community Booth #2121 at #ACR2025. Kudos for collaborating to improve lives! @lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @infusioncenter.bsky.social
October 27, 2025 at 5:05 AM
#LADAorg is appreciative of our strong partnerships with our patient advocacy colleagues at the #Lupus Community Booth #2121 at #ACR2025. Kudos for collaborating to improve lives! @lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @infusioncenter.bsky.social
Reposted by Lupus and Allied Diseases Association, Inc.
Representing @lupuschat.bsky.social at the lupus community booth at #ACR25 with @ladaorg.bsky.social! Stay tuned as I share updates on new and intriguing studies on lupus and rheumatic conditions!
Please visit our community booth in the Exhibit Hall at booth 2121! #LADAorg #LupusChat #ACR25
Please visit our community booth in the Exhibit Hall at booth 2121! #LADAorg #LupusChat #ACR25
October 26, 2025 at 5:19 PM
Representing @lupuschat.bsky.social at the lupus community booth at #ACR25 with @ladaorg.bsky.social! Stay tuned as I share updates on new and intriguing studies on lupus and rheumatic conditions!
Please visit our community booth in the Exhibit Hall at booth 2121! #LADAorg #LupusChat #ACR25
Please visit our community booth in the Exhibit Hall at booth 2121! #LADAorg #LupusChat #ACR25
Reposted by Lupus and Allied Diseases Association, Inc.
Spending some time in the Poster Hall at #ACR25! I’m excited to see the results of several studies as well as the Patient Prospectives posters.
#LADAorg #LupusChat
@ladaorg.bsky.social
@lupuschat.bsky.social
#LADAorg #LupusChat
@ladaorg.bsky.social
@lupuschat.bsky.social
October 26, 2025 at 6:36 PM
Spending some time in the Poster Hall at #ACR25! I’m excited to see the results of several studies as well as the Patient Prospectives posters.
#LADAorg #LupusChat
@ladaorg.bsky.social
@lupuschat.bsky.social
#LADAorg #LupusChat
@ladaorg.bsky.social
@lupuschat.bsky.social
We are excited to attend #ACR25 to network, learn and share our resources. Visit us at the #Lupus Community Booth # 2121. #PatientVoice
@lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @acr25.bsky.social @rheumepi.bsky.social @rheumcat.bsky.social
#LADAorg
@lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @acr25.bsky.social @rheumepi.bsky.social @rheumcat.bsky.social
#LADAorg
October 21, 2025 at 2:15 AM
We are excited to attend #ACR25 to network, learn and share our resources. Visit us at the #Lupus Community Booth # 2121. #PatientVoice
@lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @acr25.bsky.social @rheumepi.bsky.social @rheumcat.bsky.social
#LADAorg
@lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @acr25.bsky.social @rheumepi.bsky.social @rheumcat.bsky.social
#LADAorg
We are thrilled to share that our 25th Annual #Lupus Charity Golf Classic raised over $205,000 last week at Shenendoah Golf Course and we donated another $539,724 for #LupusResearch. Thank you to our volunteers, sponsors, golfers and #TurningStone sales, catering and golf staff.
August 23, 2025 at 3:41 PM
We are thrilled to share that our 25th Annual #Lupus Charity Golf Classic raised over $205,000 last week at Shenendoah Golf Course and we donated another $539,724 for #LupusResearch. Thank you to our volunteers, sponsors, golfers and #TurningStone sales, catering and golf staff.
We are one of 77 groups urging Sens. Rick Scott and Ashley Moody to reject proposed federal cuts to health care and SNAP.
Floridians will experience a devastating loss of essential health coverage & food assistance if these cuts are enacted. www.floridapolicy.org/posts/77-gro...
Floridians will experience a devastating loss of essential health coverage & food assistance if these cuts are enacted. www.floridapolicy.org/posts/77-gro...
77 Groups Sign Letter Urging Florida's US Senate Delegation to Reject Cuts to SNAP and Health Care
Proposed cuts would have devastating impacts on Florida families.
www.floridapolicy.org
June 24, 2025 at 12:56 AM
We are one of 77 groups urging Sens. Rick Scott and Ashley Moody to reject proposed federal cuts to health care and SNAP.
Floridians will experience a devastating loss of essential health coverage & food assistance if these cuts are enacted. www.floridapolicy.org/posts/77-gro...
Floridians will experience a devastating loss of essential health coverage & food assistance if these cuts are enacted. www.floridapolicy.org/posts/77-gro...
Thank you to #BIO
and Michele for giving our President & CEO Kathleen Arntsen the opportunity to share her #Autoimmune journey at #BIO2025 and why #Advocacy and Research are important. @annezab.bsky.social
and Michele for giving our President & CEO Kathleen Arntsen the opportunity to share her #Autoimmune journey at #BIO2025 and why #Advocacy and Research are important. @annezab.bsky.social
June 18, 2025 at 4:25 AM
Thank you to #BIO
and Michele for giving our President & CEO Kathleen Arntsen the opportunity to share her #Autoimmune journey at #BIO2025 and why #Advocacy and Research are important. @annezab.bsky.social
and Michele for giving our President & CEO Kathleen Arntsen the opportunity to share her #Autoimmune journey at #BIO2025 and why #Advocacy and Research are important. @annezab.bsky.social
The #LADAOrg Team is excited to be here at #BIO2025 in Boston to bring the #PatientPerspective and partner with other stakeholders to advance global innovation that improves lives. Kudos to BIO
for developing a great program and our dear friend Paul for always being a good sport! 💜
for developing a great program and our dear friend Paul for always being a good sport! 💜
June 16, 2025 at 7:05 AM
The #LADAOrg Team is excited to be here at #BIO2025 in Boston to bring the #PatientPerspective and partner with other stakeholders to advance global innovation that improves lives. Kudos to BIO
for developing a great program and our dear friend Paul for always being a good sport! 💜
for developing a great program and our dear friend Paul for always being a good sport! 💜
We need crosssector collaborations, public-private partnerships and robust basic, clinical and translational projects to identify biomarkers, better clinical trial methodologies, prevent complications, develop better dx measures and safer, >effective #lupus drugs and cures. @lupuschat.bsky.social
May 31, 2025 at 5:35 AM
We need crosssector collaborations, public-private partnerships and robust basic, clinical and translational projects to identify biomarkers, better clinical trial methodologies, prevent complications, develop better dx measures and safer, >effective #lupus drugs and cures. @lupuschat.bsky.social
#Lupus is considered a disease of unmet medical need because of the lack of efficient diagnostic tools, effective therapies, and well-designed clinical trials.
#LupusAwarenessMonth #LupusAwareness
@lupuschat.bsky.social @caringforlupus.bsky.social @michiganlupus.bsky.social @ghlforg.bsky.social
#LupusAwarenessMonth #LupusAwareness
@lupuschat.bsky.social @caringforlupus.bsky.social @michiganlupus.bsky.social @ghlforg.bsky.social
May 30, 2025 at 5:31 AM
#Lupus is considered a disease of unmet medical need because of the lack of efficient diagnostic tools, effective therapies, and well-designed clinical trials.
#LupusAwarenessMonth #LupusAwareness
@lupuschat.bsky.social @caringforlupus.bsky.social @michiganlupus.bsky.social @ghlforg.bsky.social
#LupusAwarenessMonth #LupusAwareness
@lupuschat.bsky.social @caringforlupus.bsky.social @michiganlupus.bsky.social @ghlforg.bsky.social