KS ALS & FTD Fighter
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ksalsfighter.bsky.social
KS ALS & FTD Fighter
@ksalsfighter.bsky.social
KS farm gal, KSU alum, wife and mother. Passionate about supporting those living with #ALS and #FTD
Reposted by KS ALS & FTD Fighter
DOGE wasn’t a cost-cutting venture. It was a data mining operation for private interests. Trump opened the gates to the castle from inside for invaders with bad and greedy intent to plunder and exploit.
August 30, 2025 at 10:24 AM
Reposted by KS ALS & FTD Fighter
“…I am infuriated that the Air Force plans to grant military funeral honors to Ashli Babbitt. She did not die defending the Constitution. She died trying to overturn it.”

My latest in @thebulwark.com

www.thebulwark.com/p/honoring-a...
Honoring Ashli Babbitt Dishonors the Military
If there’s no difference between upholding the Constitution and attacking it, then there’s no honor in service.
www.thebulwark.com
August 30, 2025 at 11:44 AM
Reposted by KS ALS & FTD Fighter
Important thread for everyone who cares about NIH, from an NIH expert!

Summary:
- Vought is executing stealth budget cuts now.
- Congress isn't stopping them.
- Dems must shut it down in Sept, to get real statutory language barring all the Project 2025/DOGE cuts now and next year.
1/
This @jonathanbernstein.bsky.social piece is smart as usual. My bottom line is similar to Jonathan's -- being willing to absorb a shutdown, or the Rs blowing up the filibuster to avoid it, is probably the least bad option for Ds. A couple more points (thread): open.substack.com/pub/goodpoli...
Shutdown Showdown Preview
Yup, another of these is coming.
open.substack.com
August 1, 2025 at 9:26 PM
www.newsweek.com/doctors-plea... We MUST get the Neuroscience Center of Excellence Act passed now! More and more people will be diagnosed with brain diseases and we have to start a very focused effort to find effective treatments. #als #huntingtons #parkinsons #ftd #leweybodydisease #alz
A Doctor's Plea From a Nation Asleep on Brain Disease | Opinion
Awaken now, before this silent storm engulfs us all.
www.newsweek.com
August 1, 2025 at 11:29 PM
There are actually quite a few undocumented Russians in the US.

Anyone have any videos of ICE forcefully deporting them?

Or just the brown people?
July 6, 2025 at 12:58 AM
Reposted by KS ALS & FTD Fighter
Are you READY?! 🤚

Let’s. Do. This. 😎✨
March 30, 2025 at 8:42 AM
Reposted by KS ALS & FTD Fighter
March 22, 2025 at 5:42 PM
Stand up for every person who has lost their freedom just because the President "thinks" they are in a gang. Give us names and proof!
March 23, 2025 at 12:40 AM
Reposted by KS ALS & FTD Fighter
Truer words were never spoken.
March 21, 2025 at 2:05 PM
Reposted by KS ALS & FTD Fighter
Reminder to please support me with a repost or if you want to a purchase of my latest book. It's doing really well and as always I appreciate your support. Much love to all, Linda💞🧑‍🦼💞
Just a reminder that if you want an inspiring read then I have the book for you. Feel free to purchase directly from my publisher or any of your favorite online bookstores. As always I appreciate your support and would be grateful for all reposts. Linda💞🧑‍🦼💞 olympiapublishers.com/book/screami...
Olympia Publishers | Screaming Into The Darkness by L. J. WORRALL
Author: L. J. WORRALL, Book: Screaming Into The Darkness, Category: Coming Soon, Price: £7.99, Length: 128 pages. Browse & Buy Now
olympiapublishers.com
March 20, 2025 at 8:36 PM
Reposted by KS ALS & FTD Fighter
When there is uncertainty, lenders get persnickety about lending money.

And yes that’s an #econsky official term
Via Barnhart @barchart.com 42% of mortgage refinance applications are being rejected, the highest rate in AT LEAST the last 12 years #EconSky
March 19, 2025 at 9:48 AM
Reposted by KS ALS & FTD Fighter
The administration is removing phone support for Soc Security recipients. Making it more difficult for seniors to get their checks. It’s a back door way to cut SS benefits. Horrific.

If you know anyone who is impacted, please help them get online to get their benefits approved
benefit.me
March 19, 2025 at 5:40 PM
March 16, 2025 at 2:21 PM
Reposted by KS ALS & FTD Fighter
The University of North Carolina at Wilmington is looking for participants who are spousal caregivers of partners with dementia or frontotemporal degeneration.

Learn more: ftdregistry.org/find-a-study...

#FTD #EndFTD
March 5, 2025 at 9:36 PM
@kansasreflector.com Everyone is invited to help support our civil servants on Saturday! Wear red, white or blue!
March 13, 2025 at 6:17 PM
Reposted by KS ALS & FTD Fighter
This is absolutely insane. Musk’s DOGE crew just straight up *took* $80 million from an NYC bank account!
Okay what is going on here. Are the accounts at a private banking entity? Does the federal government have direct debit permission set up? So many questions as to how Treasury instructed this payment. (Via NY Post’s Craig McCarthy)
February 12, 2025 at 7:39 PM
Reposted by KS ALS & FTD Fighter
For a quick sugar high to “own the libs,” the attempts to shutter USAID would do long term damage that couldn’t be reversed for a generation. My latest:

adamkinzinger.substack.com/p/the-case-f...
The Case For USAID
It does us, and others, a world of good
adamkinzinger.substack.com
February 10, 2025 at 5:43 PM
Reposted by KS ALS & FTD Fighter
Here’s how big a hit some universities may take if NIH slashes support for indirect research costs www.statnews.com/2025/02/09/n... via @statnews.com
Here’s how big a hit some universities may take if NIH slashes support for indirect research costs
Documents analyzed by STAT show that big losers under the NIH's cuts to biomedical research include Stanford, Vanderbilt, Cornell, UT systems.
www.statnews.com
February 10, 2025 at 11:50 AM
Reposted by KS ALS & FTD Fighter
Dear US ALS patient advocacy organizations, Cat seems to have your tongues. If you don’t speak up, then you’re part of the problem. Our support of NIH is critical, and the current threat is real. Your silence makes no sense.
Indirect costs fund the staff and facilities to do research at all universities. To find effective treatments for #ALS #MND scientists across the world work together. We need our NIH colleagues in the team.
The NIH’s drastic cut to indirect cost rates is a critical threat to U.S. research infrastructure www.statnews.com/2025/02/08/n... via @statnews.com
February 9, 2025 at 11:27 AM
Reposted by KS ALS & FTD Fighter
New gear just dropped! 🔥 Check out the latest ALS TDI merchandise and support groundbreaking ALS research. Every purchase helps us get closer to effective treatments and cures.

Shop now before it’s gone! 👉 bit.ly/3CEcU31 #EndALS
February 11, 2025 at 3:12 PM
Reposted by KS ALS & FTD Fighter
USAID isn’t just foreign aid—it’s a powerful tool for America’s security, influence, and values. Cutting it weakens us while empowering our adversaries. I’ve seen its impact firsthand. Watch my video and share with those who care about America’s future. 🇺🇸👇

adamkinzinger.substack.com/p/weekend-mo...
Weekend (Monday) Video
USAID, an important soft power benefit.
adamkinzinger.substack.com
February 11, 2025 at 12:02 AM