Emma Edwards
@kernowpdnurse.bsky.social
Parkinsons nurse / mental health nurse and advocate.
Deputy CEO at SpotlightYOPD.
Volunteer with Parkinson’s UK.
RCN Neuroscience Nurse Forum- Vice Chair
Myparkinsonsnurse.com
Likes the beach, gardening ,dogs and pasty eating!
Deputy CEO at SpotlightYOPD.
Volunteer with Parkinson’s UK.
RCN Neuroscience Nurse Forum- Vice Chair
Myparkinsonsnurse.com
Likes the beach, gardening ,dogs and pasty eating!
November 7, 2025 at 9:42 AM
At Par Con today in Birmingham, hosted by @parkinsons.org.uk and representing the young onset Parkinson’s charity - SpotlightYOPD! Had lots of interactions with YoPDers already !
#parkinsons
#parkinsons
October 24, 2025 at 10:05 AM
At Par Con today in Birmingham, hosted by @parkinsons.org.uk and representing the young onset Parkinson’s charity - SpotlightYOPD! Had lots of interactions with YoPDers already !
#parkinsons
#parkinsons
Reposted by Emma Edwards
Today is #WorldMentalHealthDay and we want to talk about the importance of having open conversations about mental health in #neurology, for both the people we care for & the teams who care for them. Watch the full video on our website: neurologyacademy.org/articles/wor...
@kernowpdnurse.bsky.social
@kernowpdnurse.bsky.social
October 10, 2025 at 3:56 PM
Today is #WorldMentalHealthDay and we want to talk about the importance of having open conversations about mental health in #neurology, for both the people we care for & the teams who care for them. Watch the full video on our website: neurologyacademy.org/articles/wor...
@kernowpdnurse.bsky.social
@kernowpdnurse.bsky.social
Ever fancied becoming a Parkinson’s nurse?? It’s an incredibly rewarding job. @parkinsons.org.uk are not only fundraising for more nurses but will support interested nurses in gaining the skills to undertake the role. Look here for more details - prksn.uk/3HUgwke
How to become a Parkinson's nurse
Learn more about the role of a Parkinson’s nurse and how you can grow your career and specialise.
prksn.uk
September 6, 2025 at 8:26 AM
Ever fancied becoming a Parkinson’s nurse?? It’s an incredibly rewarding job. @parkinsons.org.uk are not only fundraising for more nurses but will support interested nurses in gaining the skills to undertake the role. Look here for more details - prksn.uk/3HUgwke
Congratulations to the @moversand.bsky.social for getting their Gov petition to over 100,000 signatures.
Now let’s see the issues about why Parkinson’s care is so patchy across UK discussed at the highest level.
#parkinsons
Now let’s see the issues about why Parkinson’s care is so patchy across UK discussed at the highest level.
#parkinsons
July 16, 2025 at 10:14 PM
Congratulations to the @moversand.bsky.social for getting their Gov petition to over 100,000 signatures.
Now let’s see the issues about why Parkinson’s care is so patchy across UK discussed at the highest level.
#parkinsons
Now let’s see the issues about why Parkinson’s care is so patchy across UK discussed at the highest level.
#parkinsons
Please do consider signing this Government petition that calls for better care for people with Parkinson’s. We need 100,000 signatures for it to be debated in Parliament.
#parkinsons
#neurology
www.facebook.com/share/p/15fx...
#parkinsons
#neurology
www.facebook.com/share/p/15fx...
May 27, 2025 at 10:26 PM
Please do consider signing this Government petition that calls for better care for people with Parkinson’s. We need 100,000 signatures for it to be debated in Parliament.
#parkinsons
#neurology
www.facebook.com/share/p/15fx...
#parkinsons
#neurology
www.facebook.com/share/p/15fx...
Day 4 (last day of @rcn.org.uk Congress): lively debates on financial hardships for nursing and care planning.
It’s been a great #nursing Congress and had great company from Shona, Mark and Jonathan from the Forum.
Think we convinced some nurses that #Neurology was the specialty to be in!!!
It’s been a great #nursing Congress and had great company from Shona, Mark and Jonathan from the Forum.
Think we convinced some nurses that #Neurology was the specialty to be in!!!
May 15, 2025 at 9:09 PM
Day 4 (last day of @rcn.org.uk Congress): lively debates on financial hardships for nursing and care planning.
It’s been a great #nursing Congress and had great company from Shona, Mark and Jonathan from the Forum.
Think we convinced some nurses that #Neurology was the specialty to be in!!!
It’s been a great #nursing Congress and had great company from Shona, Mark and Jonathan from the Forum.
Think we convinced some nurses that #Neurology was the specialty to be in!!!
Day 3 of the @rcn.org.uk Congress in Liverpool. It’s been an interesting and humbling day listening to nurses who work in Conflict areas, quality improvements, lack of learning disability nurses to name but a few!
Mark from the @rcnneuro.bsky.social had a 2nd opportunity to talk on stage too!
Mark from the @rcnneuro.bsky.social had a 2nd opportunity to talk on stage too!
May 14, 2025 at 3:35 PM
Day 3 of the @rcn.org.uk Congress in Liverpool. It’s been an interesting and humbling day listening to nurses who work in Conflict areas, quality improvements, lack of learning disability nurses to name but a few!
Mark from the @rcnneuro.bsky.social had a 2nd opportunity to talk on stage too!
Mark from the @rcnneuro.bsky.social had a 2nd opportunity to talk on stage too!
Day 2 of the @rcn.org.uk Congress. Met up with fantastic, hard working staff from @parkinsons.org.uk who were giving out vital information on Parkinson’s to other nursing delegates.
#parkinsons
#rcn2025
@rcnneuro.bsky.social
#parkinsons
#rcn2025
@rcnneuro.bsky.social
May 13, 2025 at 10:54 AM
Day 2 of the @rcn.org.uk Congress. Met up with fantastic, hard working staff from @parkinsons.org.uk who were giving out vital information on Parkinson’s to other nursing delegates.
#parkinsons
#rcn2025
@rcnneuro.bsky.social
#parkinsons
#rcn2025
@rcnneuro.bsky.social
Proud to be representing the @rcnneuro.bsky.social at the Liverpool RCN Congress, alongside fellow committee members Shona and Mark. Looking forward to be inspired by our fellow nursing professions and meeting up with @parkinsons.org.uk staff at their stand in the Expo area.
#RCN2025
#neurology
#RCN2025
#neurology
May 12, 2025 at 10:32 AM
Proud to be representing the @rcnneuro.bsky.social at the Liverpool RCN Congress, alongside fellow committee members Shona and Mark. Looking forward to be inspired by our fellow nursing professions and meeting up with @parkinsons.org.uk staff at their stand in the Expo area.
#RCN2025
#neurology
#RCN2025
#neurology
Reposted by Emma Edwards
A breakthrough in #MultipleSystemAtrophy (MSA) research: Dr. Victor Dieriks and his team in NZ have identified that the cause of this neurodegenerative disorder is toxic α-synuclein protein aggregates that invade neuron nuclei.
buff.ly/YKLxq6O
buff.ly/YKLxq6O
April 21, 2025 at 7:30 PM
A breakthrough in #MultipleSystemAtrophy (MSA) research: Dr. Victor Dieriks and his team in NZ have identified that the cause of this neurodegenerative disorder is toxic α-synuclein protein aggregates that invade neuron nuclei.
buff.ly/YKLxq6O
buff.ly/YKLxq6O
Reposted by Emma Edwards
open.substack.com/pub/rorycell... We thought our @moversand.bsky.social colleague Gillian was bonkers when she suggested we organise a mass singalong of We Will Survive in Westminster – how wrong we were!
#parkinsons
#parkinsons
Movers and Shakers - the Big Sing
A great day out in Westminster and Huddersfield
open.substack.com
April 12, 2025 at 3:54 PM
open.substack.com/pub/rorycell... We thought our @moversand.bsky.social colleague Gillian was bonkers when she suggested we organise a mass singalong of We Will Survive in Westminster – how wrong we were!
#parkinsons
#parkinsons
Last week I was very pleased to attend 2 Parkinson’s events that had the theme of bringing people together. One was the launch of a new @parkinsons.org.uk support group at Tavistock. The other was The Movers and Shakers podcasters awareness event in London, with over 500 attending.
#parkinsons
#parkinsons
April 17, 2025 at 10:04 AM
Last week I was very pleased to attend 2 Parkinson’s events that had the theme of bringing people together. One was the launch of a new @parkinsons.org.uk support group at Tavistock. The other was The Movers and Shakers podcasters awareness event in London, with over 500 attending.
#parkinsons
#parkinsons
Reposted by Emma Edwards
@kernowpdnurse.bsky.social from our Neuroscience Nursing Forum, and in her capacity as PDNS, was very pleased to be part of this @parkinsons.org.uk project about engaging people with Parkinson’s in research.
www.parkinsons.org.uk/professional...
www.parkinsons.org.uk/professional...
Navigating Parkinson’s research with your patients
A free, online course to support healthcare professionals to engage their patients with Parkinson’s research.
www.parkinsons.org.uk
April 17, 2025 at 9:58 AM
@kernowpdnurse.bsky.social from our Neuroscience Nursing Forum, and in her capacity as PDNS, was very pleased to be part of this @parkinsons.org.uk project about engaging people with Parkinson’s in research.
www.parkinsons.org.uk/professional...
www.parkinsons.org.uk/professional...
Reposted by Emma Edwards
Postgraduate Research Scholarship in Dementia and Aged Care at the University of Sydney with Professor Yun-Hee Jeon.
For international students, both tuition and stipend will be covered. #FindAPhD @dementiaresearcher.bsky.social
www.sydney.edu.au/scholarships...
For international students, both tuition and stipend will be covered. #FindAPhD @dementiaresearcher.bsky.social
www.sydney.edu.au/scholarships...
Postgraduate Research Scholarship in Dementia and Aged Care
This scholarship supports students undertaking research in the implementation of a dementia model of care.
www.sydney.edu.au
March 6, 2025 at 2:49 PM
Postgraduate Research Scholarship in Dementia and Aged Care at the University of Sydney with Professor Yun-Hee Jeon.
For international students, both tuition and stipend will be covered. #FindAPhD @dementiaresearcher.bsky.social
www.sydney.edu.au/scholarships...
For international students, both tuition and stipend will be covered. #FindAPhD @dementiaresearcher.bsky.social
www.sydney.edu.au/scholarships...
Reposted by Emma Edwards
Important new report from @denpruexeter.bsky.social highlights hidden inequalities facing those living alone with dementia. Time to rethink dementia care. #Dementia #HealthEquity
www.dementiaresearcher.nihr.ac.uk/living-alone...
www.dementiaresearcher.nihr.ac.uk/living-alone...
April 7, 2025 at 7:49 PM
Important new report from @denpruexeter.bsky.social highlights hidden inequalities facing those living alone with dementia. Time to rethink dementia care. #Dementia #HealthEquity
www.dementiaresearcher.nihr.ac.uk/living-alone...
www.dementiaresearcher.nihr.ac.uk/living-alone...
GPs are an integral and essential part of any person’s journey with Parkinson’s. SpotlightYOPD have created a poster to help GP’s support their younger patients pre and post diagnosis.
Please do share with GP colleagues/ surgeries.
#parkinsons
#parkinsonsawarenessmonth
Please do share with GP colleagues/ surgeries.
#parkinsons
#parkinsonsawarenessmonth
April 4, 2025 at 3:45 PM
GPs are an integral and essential part of any person’s journey with Parkinson’s. SpotlightYOPD have created a poster to help GP’s support their younger patients pre and post diagnosis.
Please do share with GP colleagues/ surgeries.
#parkinsons
#parkinsonsawarenessmonth
Please do share with GP colleagues/ surgeries.
#parkinsons
#parkinsonsawarenessmonth
Reposted by Emma Edwards
Young adults with stroke or acquired brain injury. The @rcnneuro.bsky.social are hosting member engagement Teams meeting on this on 17th Apr 12:30-1:30 sharing work of @edinburghuni.bsky.social and @rcnfoundation.bsky.social
find out more here health.ed.ac.uk/research/cur... email me for invite
find out more here health.ed.ac.uk/research/cur... email me for invite
YARNS Transitions (Young Adults Rehabilitation experiences and Needs following Stroke)
YARNS Transitions (Young Adults Rehabilitation experiences and Needs following Stroke) is a project working to develop a nurse-led, holistic, neurological rehabilitation intervention which supports th...
health.ed.ac.uk
March 27, 2025 at 10:58 AM
Young adults with stroke or acquired brain injury. The @rcnneuro.bsky.social are hosting member engagement Teams meeting on this on 17th Apr 12:30-1:30 sharing work of @edinburghuni.bsky.social and @rcnfoundation.bsky.social
find out more here health.ed.ac.uk/research/cur... email me for invite
find out more here health.ed.ac.uk/research/cur... email me for invite
Reposted by Emma Edwards
What a wonderful day meeting @SpotlightYOPD new friends and old ones. Lovely to see Carl, Nikki and Dawn. The wonderful Ellie and Gaynor and of course Gary and Simon from @ParkinsonsUK - looking forward to the future
January 29, 2025 at 10:15 PM
What a wonderful day meeting @SpotlightYOPD new friends and old ones. Lovely to see Carl, Nikki and Dawn. The wonderful Ellie and Gaynor and of course Gary and Simon from @ParkinsonsUK - looking forward to the future
Had fab visit from @carolinerassell.bsky.social from
@parkinsons.org.uk in Plymouth this week. Sometimes it’s helpful to precise a situation out loud to a visitor to see where the strengths and challenges are. We rarely get the time to reflect. Lots of planning conversations afterwards!
#parkinsons
@parkinsons.org.uk in Plymouth this week. Sometimes it’s helpful to precise a situation out loud to a visitor to see where the strengths and challenges are. We rarely get the time to reflect. Lots of planning conversations afterwards!
#parkinsons
March 2, 2025 at 9:45 AM
Had fab visit from @carolinerassell.bsky.social from
@parkinsons.org.uk in Plymouth this week. Sometimes it’s helpful to precise a situation out loud to a visitor to see where the strengths and challenges are. We rarely get the time to reflect. Lots of planning conversations afterwards!
#parkinsons
@parkinsons.org.uk in Plymouth this week. Sometimes it’s helpful to precise a situation out loud to a visitor to see where the strengths and challenges are. We rarely get the time to reflect. Lots of planning conversations afterwards!
#parkinsons
I’m always a bit nervous just before a podcast…. Always worried that the dog will bark (she did), or I’ll say something ridiculous (probably did). Anyway, it was fabulous to talk about our charity SpotlightYOPD, and how collaborative working is key.
#collobarativeequation.
#parkinsons
#collobarativeequation.
#parkinsons
February 27, 2025 at 11:32 AM
I’m always a bit nervous just before a podcast…. Always worried that the dog will bark (she did), or I’ll say something ridiculous (probably did). Anyway, it was fabulous to talk about our charity SpotlightYOPD, and how collaborative working is key.
#collobarativeequation.
#parkinsons
#collobarativeequation.
#parkinsons