Via FNDNope
#ME #pwME #LC #MEAwareness
#MedSky

Wishing every #pwME & #LongCovid, our allies & advocates the very best possible 2026
Thank you all so much for being here
Sending 💙 to you all

Utterly heartbreaking to hear that 20yr old #pwME Ella Copley has died
Deepest condolences to her incredible Mother Jo who couldnt have fought harder for her
@tessamunt.bsky.social @joplatt.bsky.social @ashleydaltonmp.bsky.social unless measures are taken urgently this will continue to happen 2 pwME

COFFI & Garner on @decodemestudy.bsky.social
More nonsense which is deliberately misleading.
Undermining landmark biomedical research harms #pwME and misleads policy makers.

The #ME orgs must include this information in all their communications, it needs to be on their websites,
it must be included in all their advocacy
Ignoring this puts every #pwME at increased risk
@meassociation.bsky.social @actionforme.bsky.social @meactionuk.bsky.social @physiosforme.bsky.social

Can't begin to imagine what inspired this.. 🤦‍♀️
Cartoon, by Suerynn Lee

"Non pharmaceutical treatment of CFS"
"Sharpe admits there was no scientific foundation for his promotion of CBT as a treatment for #ME #MEcfs
Ignoring all evidence of pathology, he aimed to merely change the beliefs of #pwME.
It was hidden away as part of the 'Secret Files'."
👇

⚠️Seriously harmful advice #pwME⚠️
"This is an article on #ME in the Royal Colleges Report from 1996 which was devised by Wessely in opposition to Westcare's Task Force Report from 2 years earlier
1/2
👇

These Shipping Forecast themed T-Shirts may possibly be quite relevant for patients with M.E & Long Covid..
'Veering slowly, losing identity'

#ME #LongCovid #MEcfs #pwME 👕

@cgatist.bsky.social of @decodemestudy.bsky.social

#pwME are the experts in our own experience & frequently scientifically.

#ME #MEcfs #MedSky

🔗 below to sign the letter asking for an apology & retraction of this comment
I do feel that given his incredibly ill informed harmful comment he's not suitable for the role of Chairman of the @MEAssociation & he should step down
There's too much at stake for #pwME
docs.google.com/document/d/1...

Some of us, every single winter.. 🥶
✏️Ellis Rosen