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kathleila.bsky.social
@kathleila.bsky.social
27 followers 99 following 2 posts
Writing and art / YP counselling / book illustration / gardens and trees / neurodiversity / long Covid /
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Reposted
daniellebeckman.bsky.social
I'm so ready for real scientific evidence and to stop psychologizing sick kids. #LongCovidKids

And everyone should read @buonsenso.bsky.social book!
danilobuonsenso.substack.com/p/my-long-co...
Chapter 4 of Danilo's book about children with Long Covid. Fragment: Let's tell the whole truth here. Until 2020, the notion that some children/youths could suffer from a bit of fatigue after viral infections, such as after mononucleosis, was common knowledge. ......But since 2020, damn - something huge was happening.
December 19, 2024 at 7:27 PM
Reposted
sammiemc.bsky.social
The day we shared our lived experience at the ministerial round table with Matt Hancock I remember thinking -
If we can explain the impact on children, action will be taken to mitigate risk & sound the alarm. 🚨

We thought people would care.

#LongCovidKids #LongCovid #CovidInquiry
November 21, 2024 at 7:57 AM
Reposted
cgatist.bsky.social
A personal viewpoint on #MECFS. This is focused not on #pwME rather on why we - society - forsake them. Please read ⬇️
theconversation.com/ignored-blam...
Ignored, blamed, and sometimes left to die – a leading expert in ME explains the origins of a modern medical ‘scandal’
The co-lead of the world’s largest ever genetic study into ME calls for a radical change in how society deals with the disease.
theconversation.com
October 21, 2024 at 9:45 AM