kags7.bsky.social
@kags7.bsky.social
Just an old hippy at heart. Trying to still be a person despite long term #ME
Here mainly for research and advocacy
Hi Karen 👋
November 19, 2024 at 12:03 PM
This is great news!
November 18, 2024 at 10:33 AM
It's really quite astonishing to see how #pwME are viewed by one of the main charities & explains a lot about their lack of interaction & representation. "My dear friends on social media on their keyboards"-seriously?? We are fighting for safe care whilst being v unwell ffs.
November 17, 2024 at 3:47 PM
Hi Beth 👋 nice to see you here 😊 x
November 17, 2024 at 12:26 PM
Exactly what I thought!
November 15, 2024 at 1:59 PM
Just wow. I've long had suspicions about them & their motives which this has only confirmed. Deeply harmful to those who still have faith in them & SO disrespectful to everyone who has supported them #pwME
November 15, 2024 at 12:43 PM
Thanks Julie 😊
November 13, 2024 at 5:49 PM
Hi Geoff 👋 I made the move a couple of days ago,did you know there are starter packs where similar interests are grouped together & you can follow all? I've found loads of people that way but not too sure on how to post a link to you-sorry about that
November 13, 2024 at 5:17 PM
Reposted
Thank you. I make cartoons about the issues facing people with #ME and #LC. Here’s one from last week (this week’s cartoon is pinned to my feed)
November 12, 2024 at 10:24 AM
Could you add me please? Huge thanks for doing this 🙂
November 12, 2024 at 10:19 AM
📌
November 11, 2024 at 7:28 PM
Sometimes it just doesn't seem possible that, 25 years after I was told exactly the same, people are still being harmed 😡
November 11, 2024 at 5:41 PM
It's like a breath of fresh air after twitter!
November 11, 2024 at 5:13 PM
Thank you 🙂
November 11, 2024 at 5:09 PM