Christina Koch
@juchti.bsky.social
Bis 08/23: Schule, Schach, Prog, Wandern, Politik, Fußball, Kultur, Wein, Schallplatten, Kunst. Seit 08/23: schwer an #MECFS #POTS #MCAS #CCI erkrankt und 23h/Tag bettlägerig. Komplett hausgebunden.
Antifaschistin. #eisern
Antifaschistin. #eisern
Frau Asar ist auch Sprecherin für Forschung, Technologie und Raumfahrt.
Danke auch hier für die Möglichkeit des Austausches.
Wir bleiben in Kontakt.
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Danke auch hier für die Möglichkeit des Austausches.
Wir bleiben in Kontakt.
2/2
October 22, 2025 at 7:20 AM
Frau Asar ist auch Sprecherin für Forschung, Technologie und Raumfahrt.
Danke auch hier für die Möglichkeit des Austausches.
Wir bleiben in Kontakt.
2/2
Danke auch hier für die Möglichkeit des Austausches.
Wir bleiben in Kontakt.
2/2
Hier der Insta-Link zu einer längeren Version des Videos. Auch dort gerne teilen. www.instagram.com/reel/DPxD7wf...
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October 14, 2025 at 8:22 AM
Hier der Insta-Link zu einer längeren Version des Videos. Auch dort gerne teilen. www.instagram.com/reel/DPxD7wf...
May Samuel's memory be forever a blessing.
4/4
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September 22, 2025 at 9:16 PM
May Samuel's memory be forever a blessing.
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In lieu of flowers, donations in Samuel's memory may be made to:
meaction.net
batemanhornecenter.org
ehlers-danlos.com
la-dn.org
dysautonomiainternational.org
3/
meaction.net
batemanhornecenter.org
ehlers-danlos.com
la-dn.org
dysautonomiainternational.org
3/
#MEAction Network
Our movement fights for all people with ME/CFS and Long COVID to have access to compassionate and effective care. Join us!
meaction.net
September 22, 2025 at 9:15 PM
In lieu of flowers, donations in Samuel's memory may be made to:
meaction.net
batemanhornecenter.org
ehlers-danlos.com
la-dn.org
dysautonomiainternational.org
3/
meaction.net
batemanhornecenter.org
ehlers-danlos.com
la-dn.org
dysautonomiainternational.org
3/
It was very important to Samuel that all of us learn about the complex of chronic conditions he suffered from.
The following organizations were helpful to him as he fought to preserve his quality of life during the last two years.
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The following organizations were helpful to him as he fought to preserve his quality of life during the last two years.
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September 22, 2025 at 9:14 PM
It was very important to Samuel that all of us learn about the complex of chronic conditions he suffered from.
The following organizations were helpful to him as he fought to preserve his quality of life during the last two years.
2/
The following organizations were helpful to him as he fought to preserve his quality of life during the last two years.
2/
Danke dir! Ich höre es mir gerne an, sobald es geht.
September 19, 2025 at 11:09 AM
Danke dir! Ich höre es mir gerne an, sobald es geht.
More research is urgently needed to investigate the role of connective tissue disorders (CTDs), such as #Marfan syndrome and Ehlers-Danlos syndromes #EDS #hEDS, in the development and severity of #MEcfs to better understand disease mechanisms and improve patient outcomes.
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September 18, 2025 at 1:01 PM
Dysregulated TGF-β signaling in Marfan syndrome can contribute to chronic inflammation or altered immune responses, potentially manifesting as increased susceptibility to infections or autoimmune-like symptoms.
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September 18, 2025 at 1:01 PM
Dysregulated TGF-β signaling in Marfan syndrome can contribute to chronic inflammation or altered immune responses, potentially manifesting as increased susceptibility to infections or autoimmune-like symptoms.
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However, emerging research suggests a potential link to immune dysregulation as well, inflammation and TGF-β dysregulation: Fibrillin-1 interacts with the TGF-β signaling pathway, which is crucial for immune regulation.
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September 18, 2025 at 1:00 PM
However, emerging research suggests a potential link to immune dysregulation as well, inflammation and TGF-β dysregulation: Fibrillin-1 interacts with the TGF-β signaling pathway, which is crucial for immune regulation.
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