We've just added a new table to CrunchME, showing government funding and policy announcements 🏛️

(Follow @crunchme.bsky.social if you wanna)

Hopefully useful knowledge for helping to pressure governments slipping behind into action!

You can check it out here 👇

crunchme.notion.site/1462a60c4996...

Today I was reminded that social movements do much better if you involve other minorities, especially if you tie your goals together. Just remember how much the gay community got done for AIDS.

Sooo TIL you add feeds based on what you want to see on the platform. I wasn't seeing a lot of ME/LC content with the default "Discover" feed. And "Following" felt a bit too narrow. So I added "Popular With Friends" as the default and I'm perfectly satisfied now

New Video: @georgemonbiot.bsky.social describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment.

youtu.be/RiwX9Y0NbiQ?...

We are now on Bluesky! 🦋

CrunchME is a patient-led project mapping the scientific, tech, advocacy and medical ecosystem around solving #MECFS, #LongCovid and other IACCs 💙

Does anyone know how to convert an MRI scan into a 3D model? I’d love to print my brain and have it on my desk

A reminder that if you're feeling saddened by the failure of the Berlin Cures trial for Long Covid, you can check out the pipeline of #LongCovid, #MECFS & other IACC clinical trials here on CrunchME 💊👇

Just added a bunch more, and more to add still!

crunchme.notion.site/4d00e39f9f87...

Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and chronic #Lyme /tick- and vector-borne illness. Let’s start with a trip down memory lane.
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Join us for a webinar focused on Long COVID & IACC Care. As the landscape of clinical trials and treatments evolves, it’s crucial to understand what steps can be taken to enhance patient care.

📅 November 20
🕚 11:30 AM - 12:45 PM PST
⏳ 60 minutes + 15 mins for Q&A

Register Now: ow.ly/rogL50U6AAA

🌟We've made one more Starter Pack focusing on #LongCovid & #MECFS researchers
go.bsky.app/Pb49nmb

🌟We will add as more people come over. If we've missed anyone let us know!

It‘s a pleasure to work with colleagues such as @sunsopeningband.bsky.social @fvrhijn.bsky.social @profmarkfaghy.bsky.social and many others on the Long Covid Toolkit. Plse Support our project and donate: longcovidtoolkit.org/give #LongCovid #LongCovidToolkit

For anyone new to decentralized social media, you can actually use your own domain as a username! No need to transfer servers, it's just a simple setting. For example @thesicktimes.bsky.social could become @thesicktimes.org.

ME, whether acquired after COVID or not, is about watching - with perfect discipline and minimal emotion - your life drift away in slow motion.