Jenelle Dorner
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jenelledorner.bsky.social
Jenelle Dorner
@jenelledorner.bsky.social
46 followers 67 following 17 posts
Health Coach, Patient Advocate, and Science Writer. Living with Joy, Passion & Confidence! I am a voice for those living with chronic health conditions. Advocating for mito, EDS, gastroparesis, dystonia, dysautonomia and more.
Posts Replies Media Videos
Reposted by Jenelle Dorner
physiciandemocracy.medsky.social
Before they paved paradise and put up a parking lot.
October 24, 2025 at 10:55 PM
Reposted by Jenelle Dorner
indivisible.org
This is what democracy looks like. #NoKings
October 18, 2025 at 11:22 PM
Reposted by Jenelle Dorner
victinibcn.bsky.social
Philadelphia Pennsylvania: #NoKings is a huge success! Let’s go!
October 18, 2025 at 6:14 PM
Reposted by Jenelle Dorner
cajunblue.bsky.social
🚨What’s up Washington D.C.?!? Message clear: No Kings. 1/2
October 18, 2025 at 6:12 PM
Reposted by Jenelle Dorner
victinibcn.bsky.social
Chicago Illinois: #NoKings. You guys never stop to amaze me! Never stop you are wonderful!
October 18, 2025 at 6:31 PM
Reposted by Jenelle Dorner
marcelias.bsky.social
The most common question I receive is how everyday citizens can help in the fight for democracy. My advice, take the first step, start with something small and see what works for you. Here are ten things all of us can do. www.democracydocket.com/opinion/10-t...
Ten Things We Can All Do to Protect Democracy
From Marc | The most common question I receive is how everyday citizens can help in the fight for democracy.
www.democracydocket.com
January 25, 2025 at 2:59 PM
jenelledorner.bsky.social
Something to celebrate! 🎉 First approved drug for mitochondrial disease could pave way for more treatments. buff.ly/f6qmmWP
buff.ly
October 13, 2025 at 2:47 AM
jenelledorner.bsky.social
Fear only has the power we give it. Hope works the same way. -Bob Goff
Cursive text reads “Fear only has the power we give it. Hope works the same way. -Bob Goff” It is written on a watercolor rainbow pattern background.
October 13, 2025 at 2:35 AM
Reposted by Jenelle Dorner
notablyuncool.bsky.social
Pride is in full bloom.
Pride flag made up of flowers, from the Toronto Botanical Garden website.
June 2, 2025 at 9:57 PM
Reposted by Jenelle Dorner
septimusbrown.com
Happy pride month ❤️🏳️‍⚧️🏳️‍🌈
A sign in the background says New Hope church, God says homosexuality is in. In the foreground there are two men smiling holding the letter s that they've taken from the sign
June 2, 2025 at 5:47 AM
Reposted by Jenelle Dorner
ndrnadvocates.bsky.social
Think Medicaid is just for doctor visits? Think again.

- The wheelchair that helps someone get to work
- The personal aide that allows someone to live within their own home
- The therapy that helps a child speak their first words

Tell Congress NO CUTS today: ow.ly/rMYr50VV2v9
A collage of four black-and-white photos showing people with disabilities and their supports in everyday settings. Top left: An older adult using a cane receives support from a caregiver. Top right: A young woman smiles and uses sign language. Bottom left: A therapist and child build a block tower together. Bottom right: A man in a wheelchair uses a tablet while talking with a coworker in a warehouse.
May 19, 2025 at 3:19 PM
jenelledorner.bsky.social
May 15, 2025 at 2:11 AM
Reposted by Jenelle Dorner
npr.org
Speaking to NPR in his first media interview since his detention, lawful permanent U.S. resident Mohsen Mahdawi finds peace in meditation and hopes "America will fulfill its promise."
Detained on verge of U.S. citizenship, Mohsen Mahdawi speaks from Vermont prison
Speaking to NPR in his first media interview since his detention, lawful permanent U.S. resident Mohsen Mahdawi finds peace in meditation and hopes "America will fulfill its promise."
www.npr.org
April 29, 2025 at 12:35 PM
Reposted by Jenelle Dorner
sagan.bsky.social
We are the cosmos made conscious and life is the means by which the universe understands itself.

- Prof. Brian Cox
April 28, 2025 at 3:08 PM
Reposted by Jenelle Dorner
ehlersdanlos.bsky.social
Learn more about symptoms, diagnosis, and management of #HypermobilitySpectrumDisorder ( #HSD) in this video with Dr. Clair Francomano. youtu.be/93u8edKfbMQ?...
Signs You May Have HSD (Hypermobility Spectrum Disorder) | Symptoms, Diagnosis & Management
YouTube video by Doctor Clair
youtu.be
March 20, 2025 at 4:25 PM
Reposted by Jenelle Dorner
sedsconnective.org
It’s Autism acceptance & as the foremost charity with Patron @bendybrain.bsky.social & Chair @jgjanegreenmbe.bsky.social we’re proud to share our pioneering advocacy. Watch the @ehlersdanlos.bsky.social GLC keynote closing conference here: www.youtube.com/watch?v=McKt...
#AutismAcceptance #Autistic
2023 Connecting The Dots between Autism, ADHD, Dyspraxia and EDS and HSD - Jane Gre...
YouTube video by The Ehlers-Danlos Society
www.youtube.com
April 2, 2025 at 7:36 PM
Reposted by Jenelle Dorner
jamellebouie.net
they want you sick and preferably dead www.reuters.com/business/hea...
US FDA suspends milk quality tests amid workforce cuts
The Food and Drug Administration is suspending a quality control program for testing of fluid milk and other dairy products due to reduced capacity in its food safety and nutrition division, according to an internal email seen by Reuters.
www.reuters.com
April 22, 2025 at 12:41 PM
Reposted by Jenelle Dorner
npr.org
Workers who track data on car crashes, drownings, traumatic brain injury, falls in the elderly, and other perils lost their jobs. Advocates worry life-saving work will stop.
With CDC injury prevention team gutted, 'we will not know what is killing us'
Workers who track data on car crashes, drownings, traumatic brain injury, falls in the elderly, and other perils lost their jobs. Advocates worry life-saving work will stop.
www.npr.org
April 21, 2025 at 6:47 PM
Reposted by Jenelle Dorner
in-otter-news.bsky.social
Hammock hugs are the best hugs.
April 22, 2025 at 10:24 AM
Reposted by Jenelle Dorner
heniek-htw.bsky.social
Understanding #mitochondrial dysfunction in #Huntington's disease may guide potential treatment strategies. Targeting this dysfunction may help to slow disease progression and enhance the quality of life for individuals affected by Huntington's disease.
www.sciencedirect.com/science/arti...
January 24, 2025 at 9:53 AM
Reposted by Jenelle Dorner
thesicktimes.org
😷 Here’s what’s happening this week in #LongCOVID research: bit.ly/4btSNl3

💌 Sign up for our newsletter and get updates delivered directly to your inbox every week! thesicktimes.org/newsletter/
Children with Long COVID have lung abnormalities, according to new research in Radiology. The small, prospective study included 54 participants, 27 with Long COVID and 27 matched controls. Researchers assessed them with an advanced MRI technique that measures both ventilation (flow of air into the lungs) and perfusion (blood flow). Children with Long COVID had worse ventilation and perfusion, and these readings were correlated with worse symptoms. A new review in Biomolecules highlighted the overlap of immune dysfunction and metabolic dysfunction in myalgic encephalomyelitis (ME). “Mitochondrial dysfunction is a critical factor in the pathophysiology of ME/CFS,” the authors wrote, explaining that this dysfunction can cause a variety of problems in people with ME including fatigue and exercise intolerance. They wrote: “The further exploration of…immune–metabolic disruptions could unveil novel insights into ME/CFS pathophysiology, offering potential biomarkers for diagnosis and targets for therapeutic intervention.” Another Long COVID clinical trial testing the drug Amantadine is currently recruiting. Amantadine is used to treat symptoms of Parkinson’s disease — researchers think it could help cognitive function in Long COVID. A second, separate trial, is still recruiting in Columbus, Ohio. The new single-blinded trial will enroll 30 participants in Dallas, Texas. Contact: brittany.wright@utsouthwestern.edu.
March 6, 2025 at 4:23 PM
Reposted by Jenelle Dorner
cvasilescu.bsky.social
Mitochondrial complex I deficiency stratifies idiopathic Parkinson’s disease | Nature Communications

1) CI deficient subtype - 1/4 of cases present widespread neuronal CI deficiency with non-tremor dominant motor phenotypes. And 👇
www.nature.com/articles/s41...
Mitochondrial complex I deficiency stratifies idiopathic Parkinson’s disease - Nature Communications
Idiopathic Parkinson’s disease can be stratified according to the severity of neuronal respiratory complex I deficiency. The emerging disease subtypes show distinct molecular and clinical profiles.
www.nature.com
March 7, 2025 at 10:51 AM
Reposted by Jenelle Dorner
nbcnews.com
The prince had PolG disease, a genetic mitochondrial disorder that prevents the body's cells from producing adequate energy.
Prince Frederik of Luxembourg dies at 22 from rare mitochondrial disease
The prince had PolG disease, a genetic mitochondrial disorder that prevents the body's cells from producing adequate energy.
nbcnews.to
March 10, 2025 at 4:30 PM