Jason Maddix
@jasonmaddix.bsky.social
Comms @DNDi – formerly MSF, Unitaid, BU SPH. Interested in health equity, access to medicines, NTDs, container gardening, Barbizon School art
Reposted by Jason Maddix
“I felt trapped between two painful options: live with medical debt or hope it would heal on its own” Jessica Robbins’ battle with cutaneous leishmaniasis meant months of misdiagnosis, isolation & stigma. Now she’s advocating for awareness, diagnosis & access to treatment. Full story: bit.ly/3X5BLTS
Jessica Robbins: A long and difficult journey with cutaneous leishmaniasis
Founder of the Leishmaniasis Advocacy Network, Jessica shares her journey with cutaneous leishmaniasis, from diagnosis to recovery, and how it shaped her commitment to advocacy.
bit.ly
October 29, 2025 at 11:00 AM
“I felt trapped between two painful options: live with medical debt or hope it would heal on its own” Jessica Robbins’ battle with cutaneous leishmaniasis meant months of misdiagnosis, isolation & stigma. Now she’s advocating for awareness, diagnosis & access to treatment. Full story: bit.ly/3X5BLTS
Friends in Switzerland: please read, please sign, please share.
Amis en Suisse : veuillez lire, veuillez signer, veuillez partager.
Freunde in der Schweiz: bitte lesen, bitte unterschreiben, bitte teilen.
Amici in Svizzera: per favore leggete, per favore firmate, per favore condividete.
Amis en Suisse : veuillez lire, veuillez signer, veuillez partager.
Freunde in der Schweiz: bitte lesen, bitte unterschreiben, bitte teilen.
Amici in Svizzera: per favore leggete, per favore firmate, per favore condividete.
Face au génocide à Gaza, la Suisse ne peut pas se cacher derrière sa neutralité!
Le silence et l’inaction tuent : rester passif n’est pas une option !
www.msf.ch
August 19, 2025 at 5:05 PM
Friends in Switzerland: please read, please sign, please share.
Amis en Suisse : veuillez lire, veuillez signer, veuillez partager.
Freunde in der Schweiz: bitte lesen, bitte unterschreiben, bitte teilen.
Amici in Svizzera: per favore leggete, per favore firmate, per favore condividete.
Amis en Suisse : veuillez lire, veuillez signer, veuillez partager.
Freunde in der Schweiz: bitte lesen, bitte unterschreiben, bitte teilen.
Amici in Svizzera: per favore leggete, per favore firmate, per favore condividete.
Reposted by Jason Maddix
‘This is about the most vulnerable people in the poorest parts of the world that just want access to basic medication.’
A powerful @npr.org article on how sweeping cuts to foreign aid threaten two decades of progress against neglected tropical diseases. #beatNTDs @jpatadams.bsky.social n.pr/3HHYvVz
A powerful @npr.org article on how sweeping cuts to foreign aid threaten two decades of progress against neglected tropical diseases. #beatNTDs @jpatadams.bsky.social n.pr/3HHYvVz
'Neglected tropical diseases' now face even more neglect
U.S. aid cuts could jeopardize the supply of donated drugs that are hailed for their effectiveness in combating neglected diseases like river blindness, schistosomiasis and trachoma.
n.pr
June 6, 2025 at 8:50 AM
‘This is about the most vulnerable people in the poorest parts of the world that just want access to basic medication.’
A powerful @npr.org article on how sweeping cuts to foreign aid threaten two decades of progress against neglected tropical diseases. #beatNTDs @jpatadams.bsky.social n.pr/3HHYvVz
A powerful @npr.org article on how sweeping cuts to foreign aid threaten two decades of progress against neglected tropical diseases. #beatNTDs @jpatadams.bsky.social n.pr/3HHYvVz
Why did Boston Consulting Group (BCG) engage in this “pro bono” work to begin with — against the *overwhelming* opinion of neutral and impartial experts in the delivery of life-saving humanitarian assistance in conflict zones? www.cnn.com/2025/06/03/p...
Boston Consulting Group terminates contract with controversial US-backed Gaza aid organization | CNN Politics
A US consulting firm has canceled its contract with the controversial US and Israel-backed aid organization set up to distribute aid as famine conditions worsen in war-ravaged Gaza, a spokesperson for...
www.cnn.com
June 3, 2025 at 7:10 PM
Why did Boston Consulting Group (BCG) engage in this “pro bono” work to begin with — against the *overwhelming* opinion of neutral and impartial experts in the delivery of life-saving humanitarian assistance in conflict zones? www.cnn.com/2025/06/03/p...
“…we can’t just focus on stewardship, surveillance and containment in low- and middle-income communities, while we’re focused on just innovation in high-income countries. We actually have to focus on both all at once, in all places.”
Lack of access to antibiotics is driving spread of superbugs, finds research.
Learn more about GARDP’s new research reveals a major access gap for patients with multidrug-resistant infections in this article by @theguardian.com 👇
www.theguardian.com/global-devel...
Learn more about GARDP’s new research reveals a major access gap for patients with multidrug-resistant infections in this article by @theguardian.com 👇
www.theguardian.com/global-devel...
Lack of access to antibiotics is driving spread of superbugs, finds research
Focus on overuse contributes to antibiotics reaching less than 7% of people with drug-resistant infections in poorer countries, say researchers
www.theguardian.com
May 1, 2025 at 9:55 AM
“…we can’t just focus on stewardship, surveillance and containment in low- and middle-income communities, while we’re focused on just innovation in high-income countries. We actually have to focus on both all at once, in all places.”
‘“No government — regardless of which party is in power — should dictate what private universities can teach, whom they can admit and hire, and which areas of study and inquiry they can pursue,” said Alan Garber, Harvard’s president.’ www.nytimes.com/2025/04/14/u...
Harvard Will Not Comply With a List of Trump Administration Demands (Gift Article)
Federal officials said Harvard must enact “merit-based reform” in hiring and admissions and report international students who broke rules, among other steps. Harvard called the demands unlawful.
www.nytimes.com
April 14, 2025 at 9:18 PM
‘“No government — regardless of which party is in power — should dictate what private universities can teach, whom they can admit and hire, and which areas of study and inquiry they can pursue,” said Alan Garber, Harvard’s president.’ www.nytimes.com/2025/04/14/u...
Reposted by Jason Maddix
At the @who.int one would think the EU would be fine with this language in the pandemic agreement preamble, but apparently it wants to argue about it. Not sure if the EU actually wants an agreement.
April 11, 2025 at 8:56 PM
At the @who.int one would think the EU would be fine with this language in the pandemic agreement preamble, but apparently it wants to argue about it. Not sure if the EU actually wants an agreement.
Reposted by Jason Maddix
The Africa & Equity Groups insist that the term “voluntary” must not be in the Pandemic Agreement (Art 11). They are fighting to defend domestic laws permitting non-voluntary tech transfer. They are right. The whole point of the treaty is to advance equity & not to erode it.
April 11, 2025 at 8:52 PM
The Africa & Equity Groups insist that the term “voluntary” must not be in the Pandemic Agreement (Art 11). They are fighting to defend domestic laws permitting non-voluntary tech transfer. They are right. The whole point of the treaty is to advance equity & not to erode it.
Reposted by Jason Maddix
Did you know that we can manage patents in a way that serves the public good?
Our Intellectual Property & Access Leader shares why, together with our partners from the @asapdiscovery.bsky.social, we are filing a #patent for a promising new #molecule that we developed together.
shorturl.at/IgL80
Our Intellectual Property & Access Leader shares why, together with our partners from the @asapdiscovery.bsky.social, we are filing a #patent for a promising new #molecule that we developed together.
shorturl.at/IgL80
How patents can serve the common good
YouTube video by Drugs for Neglected Diseases initiative (DNDi)
youtube.com
April 10, 2025 at 9:53 AM
Did you know that we can manage patents in a way that serves the public good?
Our Intellectual Property & Access Leader shares why, together with our partners from the @asapdiscovery.bsky.social, we are filing a #patent for a promising new #molecule that we developed together.
shorturl.at/IgL80
Our Intellectual Property & Access Leader shares why, together with our partners from the @asapdiscovery.bsky.social, we are filing a #patent for a promising new #molecule that we developed together.
shorturl.at/IgL80
Reposted by Jason Maddix
Do not normalize children dying from measles. Measles was previously eliminated in the US, thanks to vaccines.
When children die from measles, it means that adults have catastrophically failed to protect them because they have rejected basic science.
When children die from measles, it means that adults have catastrophically failed to protect them because they have rejected basic science.
April 7, 2025 at 5:47 PM
Do not normalize children dying from measles. Measles was previously eliminated in the US, thanks to vaccines.
When children die from measles, it means that adults have catastrophically failed to protect them because they have rejected basic science.
When children die from measles, it means that adults have catastrophically failed to protect them because they have rejected basic science.
“While a few strokes of a president’s pen may have changed how the US will engage in multilateral efforts and global health, they cannot change the evidence: pandemic threats can only be addressed through multilateral collaboration.”
⏰Next week is the final negotiating session for the #PandemicAccord at the World Health Organization in Geneva.
💣Negotiators cannot afford to fail.
🤝 To strike a deal, countries no longer have the luxury of holding tight to narrow national self-interest.
🧵
💣Negotiators cannot afford to fail.
🤝 To strike a deal, countries no longer have the luxury of holding tight to narrow national self-interest.
🧵
March 31, 2025 at 7:04 PM
“While a few strokes of a president’s pen may have changed how the US will engage in multilateral efforts and global health, they cannot change the evidence: pandemic threats can only be addressed through multilateral collaboration.”
Reposted by Jason Maddix
In Kenya parents who took their sick children to get tested for TB the day before Trump was inaugurated are still waiting to hear if their children are infected. People with drug-resistant TB are not being treated. A global health risk, delivered by the aid freeze www.nytimes.com/2025/03/11/h...
Tuberculosis Resurgent as Trump Funding Cut Disrupts Treatment Globally (Gift Article)
The United States was the major funder of tuberculosis programs. Now hundreds of thousands of sick patients can’t find tests or drugs, and risk spreading the disease.
www.nytimes.com
March 12, 2025 at 12:40 AM
In Kenya parents who took their sick children to get tested for TB the day before Trump was inaugurated are still waiting to hear if their children are infected. People with drug-resistant TB are not being treated. A global health risk, delivered by the aid freeze www.nytimes.com/2025/03/11/h...
Reposted by Jason Maddix
Critical reporting from Stephanie Nolen on what the interruption of TB funding actually means for those living with the disease--and those caring for them.
www.nytimes.com/2025/03/11/h...
www.nytimes.com/2025/03/11/h...
Tuberculosis Resurgent as Trump Funding Cut Disrupts Treatment Globally
The United States was the major funder of tuberculosis programs. Now hundreds of thousands of sick patients can’t find tests or drugs, and risk spreading the disease.
www.nytimes.com
March 11, 2025 at 5:55 PM
Critical reporting from Stephanie Nolen on what the interruption of TB funding actually means for those living with the disease--and those caring for them.
www.nytimes.com/2025/03/11/h...
www.nytimes.com/2025/03/11/h...
Reposted by Jason Maddix
Early reports to WHO from the 30 highest #tuberculosis (TB)-burden countries confirm that funding cuts from foreign aid, particularly from USAID, are already dismantling essential TB services.
Without urgent action, these setbacks will reverse decades of progress to #EndTB 🔗 bit.ly/4kvsu2i
Without urgent action, these setbacks will reverse decades of progress to #EndTB 🔗 bit.ly/4kvsu2i
March 6, 2025 at 8:58 AM
Early reports to WHO from the 30 highest #tuberculosis (TB)-burden countries confirm that funding cuts from foreign aid, particularly from USAID, are already dismantling essential TB services.
Without urgent action, these setbacks will reverse decades of progress to #EndTB 🔗 bit.ly/4kvsu2i
Without urgent action, these setbacks will reverse decades of progress to #EndTB 🔗 bit.ly/4kvsu2i
Reposted by Jason Maddix
EGPAF's Trish Karlin recently spoke to @nytimes.com about our efforts to restore lifesaving services for children, youth, and families.
www.nytimes.com/2025/02/20/h...
www.nytimes.com/2025/02/20/h...
Emergency Food, TB Tests and H.I.V. Drugs: Vital Health Aid Remains Frozen Despite Court Ruling (Gift Article)
The Trump administration appears to be flouting a judge’s order pausing the dismantling of U.S.A.I.D.
www.nytimes.com
February 20, 2025 at 9:43 PM
EGPAF's Trish Karlin recently spoke to @nytimes.com about our efforts to restore lifesaving services for children, youth, and families.
www.nytimes.com/2025/02/20/h...
www.nytimes.com/2025/02/20/h...
Cruel and depraved. www.nytimes.com/2025/02/20/h...
Emergency Food, TB Tests and H.I.V. Drugs: Vital Health Aid Remains Frozen Despite Court Ruling (Gift Article)
The Trump administration appears to be flouting a judge’s order pausing the dismantling of U.S.A.I.D.
www.nytimes.com
February 20, 2025 at 9:59 PM
Cruel and depraved. www.nytimes.com/2025/02/20/h...
Reposted by Jason Maddix
What's happening at #USAID is causing so much damage. The great reporters at @science.org explore some of that damage. www.science.org/content/arti...
‘It’s tectonic:’ U.S. foreign aid freeze deals a blow to research around the globe
Dismantling of USAID could disrupt clinical trials and wipe away U.S. “soft power” in developing countries, scientists warn
www.science.org
February 6, 2025 at 4:12 AM
What's happening at #USAID is causing so much damage. The great reporters at @science.org explore some of that damage. www.science.org/content/arti...
Reposted by Jason Maddix
🎉 This #WorldNTDDay we celebrate Guinea for successfully eliminating sleeping sickness! 👏
📽️ Watch our movie, created in collaboration with the Ministry of Health, @ird-fr.bsky.social and Institut Pasteur de Guinée produced by Moronga Films. bit.ly/guineafilm-en
#EndTheNeglect #BeatNTDs
📽️ Watch our movie, created in collaboration with the Ministry of Health, @ird-fr.bsky.social and Institut Pasteur de Guinée produced by Moronga Films. bit.ly/guineafilm-en
#EndTheNeglect #BeatNTDs
Bölët Mouna | Ending Sleeping Sickness in Guinea
Bölët Mouna means ‘sleeping sickness no more’ in Guinea’s national language Susu and tells the story of how research, innovation, and science are ending the the nightmare of sleeping sickness in Guinea. In January 2025 Guinea announced that it had eliminated sleeping sickness as a public health problem. This is the first disease that the country can claim to have eliminated and a major milestone in the Africa-wide campaign to eliminate sleeping sickness. The National Sleeping Sickness Programme in Guinea and its international partners – among them the French National Research Institute for Sustainable Development (IRD), the Drugs for Neglected Diseases initiative (DNDi), and the Institute Pasteur – have used all the tools at their disposal to achieve this milestone: small ‘tiny traps’ that dot the mangrove coasts of Guinea, rapid diagnostic tests, and revolutionary new medicines that are changing how doctors treat their patients. Read more about this achievement: https://stories.dndi.org/boletmouna/ Regarder en français: https://youtu.be/0S-ZSNcQEvY The Drugs for Neglected Diseases initiative (DNDi) is an international non-profit developing safe, effective, and affordable treatments for the most neglected patients. https://dndi.org
bit.ly
January 30, 2025 at 8:33 AM
🎉 This #WorldNTDDay we celebrate Guinea for successfully eliminating sleeping sickness! 👏
📽️ Watch our movie, created in collaboration with the Ministry of Health, @ird-fr.bsky.social and Institut Pasteur de Guinée produced by Moronga Films. bit.ly/guineafilm-en
#EndTheNeglect #BeatNTDs
📽️ Watch our movie, created in collaboration with the Ministry of Health, @ird-fr.bsky.social and Institut Pasteur de Guinée produced by Moronga Films. bit.ly/guineafilm-en
#EndTheNeglect #BeatNTDs
A heartening testament to what solidarity and smart commitments to science can achieve. Congratulations, Guinea!
🧵 🙌🏾 Congratulations #Guinea for eliminating sleeping sickness (gambiense form) as a public health problem in the country!
bit.ly/3Cgp0zq
1/3
bit.ly/3Cgp0zq
1/3
January 29, 2025 at 9:25 PM
A heartening testament to what solidarity and smart commitments to science can achieve. Congratulations, Guinea!
Support this call. “We call on the Government of the United States of America to enable additional exemptions to ensure the delivery of lifesaving #HIV treatment and care.”
🧵 STATEMENT: WHO expresses deep concern on the implications of the immediate funding pause for #HIV programmes in low- and middle-income countries.
These programmes provide access to life-saving HIV therapy to more than 30 million people worldwide.
Read more bit.ly/42yxxIz
1/5
These programmes provide access to life-saving HIV therapy to more than 30 million people worldwide.
Read more bit.ly/42yxxIz
1/5
January 28, 2025 at 9:52 PM
Support this call. “We call on the Government of the United States of America to enable additional exemptions to ensure the delivery of lifesaving #HIV treatment and care.”
Reposted by Jason Maddix
There's been some uncertainty on the effects/implementation of the #PEPFAR work stoppage order.
We know for sure that many clinics have been told to stop distributing drugs already in stock.
Re mid term effects-I am deeply concerned that existing US contracts will tie up global HIV drug supply.🧵1/
We know for sure that many clinics have been told to stop distributing drugs already in stock.
Re mid term effects-I am deeply concerned that existing US contracts will tie up global HIV drug supply.🧵1/
"The Trump administration has instructed organizations in other countries to stop disbursing H.I.V. medications purchased with U.S. aid, even if the drugs have already been obtained and are sitting in local clinics."
www.nytimes.com/2025/01/27/h...
www.nytimes.com/2025/01/27/h...
Trump Administration Halts H.I.V. Drug Distribution in Poor Countries
PEPFAR’s computer systems also are being taken offline, a sign that the program may not return, as Republican critics had hoped.
www.nytimes.com
January 28, 2025 at 3:24 PM
There's been some uncertainty on the effects/implementation of the #PEPFAR work stoppage order.
We know for sure that many clinics have been told to stop distributing drugs already in stock.
Re mid term effects-I am deeply concerned that existing US contracts will tie up global HIV drug supply.🧵1/
We know for sure that many clinics have been told to stop distributing drugs already in stock.
Re mid term effects-I am deeply concerned that existing US contracts will tie up global HIV drug supply.🧵1/
Reposted by Jason Maddix
The R&D landscape for neglected diseases shows choices are being made. But are they the right ones?
Join us for an online webinar as we launch the latest G-FINDER report on neglected diseases R&D.
➡️Register now ➡️bit.ly/4ggBKEQ
Join us for an online webinar as we launch the latest G-FINDER report on neglected diseases R&D.
➡️Register now ➡️bit.ly/4ggBKEQ
January 13, 2025 at 3:06 PM
The R&D landscape for neglected diseases shows choices are being made. But are they the right ones?
Join us for an online webinar as we launch the latest G-FINDER report on neglected diseases R&D.
➡️Register now ➡️bit.ly/4ggBKEQ
Join us for an online webinar as we launch the latest G-FINDER report on neglected diseases R&D.
➡️Register now ➡️bit.ly/4ggBKEQ
Reposted by Jason Maddix
What's at stake for infectious diseases with the new administration:
- Lifesaving HIV treatments.
-Cures for hepatitis C.
- New tuberculosis regimens and a vaccine for RSV.
Great analysis in @propublica.org
www.propublica.org/article/nih-...
- Lifesaving HIV treatments.
-Cures for hepatitis C.
- New tuberculosis regimens and a vaccine for RSV.
Great analysis in @propublica.org
www.propublica.org/article/nih-...
The Second Trump White House Could Drastically Reshape Infectious Disease Research. Here’s What’s at Stake.
Donald Trump’s pick to lead the federal health agency has vowed to replace hundreds of staffers and shift research away from infectious diseases and vaccines. Such an overhaul could imperil the develo...
www.propublica.org
January 15, 2025 at 8:46 PM
What's at stake for infectious diseases with the new administration:
- Lifesaving HIV treatments.
-Cures for hepatitis C.
- New tuberculosis regimens and a vaccine for RSV.
Great analysis in @propublica.org
www.propublica.org/article/nih-...
- Lifesaving HIV treatments.
-Cures for hepatitis C.
- New tuberculosis regimens and a vaccine for RSV.
Great analysis in @propublica.org
www.propublica.org/article/nih-...
“…true pandemic preparedness requires more than reacting to the next ‘Disease X.’ It demands a fundamental shift in priorities, one that acknowledges the deadliest outbreaks today are often fueled by poverty and inequity.”
The mystery illness in the #DRC was revealed to be #Malaria. The world will move on and the epidemics of poverty and inequity to healthcare access will persist. We cannot address the threat of pandemics by ignoring poverty.
Check out my latest #substack on this
open.substack.com/pub/bktitanj...
Check out my latest #substack on this
open.substack.com/pub/bktitanj...
The Mystery Illness That Never Was
Poverty and Healthcare Inequities as Modern Outbreaks
open.substack.com
December 19, 2024 at 9:18 AM
“…true pandemic preparedness requires more than reacting to the next ‘Disease X.’ It demands a fundamental shift in priorities, one that acknowledges the deadliest outbreaks today are often fueled by poverty and inequity.”
“In 2023, some 6 million cases of dengue fever were reported worldwide — more than ever before. Then, 2024 blew that record away. More than 12 million cases have been reported worldwide so far this year.”
Over 12 million cases of dengue fever were reported in 2024, the most ever. A study suggests climate change has likely played a significant role in the disease's expansion.
Climate change plays a role in global rise of dengue fever
Over 12 million cases of dengue fever were reported in 2024, the most ever. A study suggests climate change has likely played a significant role in the disease's expansion.
www.npr.org
November 23, 2024 at 7:35 PM
“In 2023, some 6 million cases of dengue fever were reported worldwide — more than ever before. Then, 2024 blew that record away. More than 12 million cases have been reported worldwide so far this year.”