James Lind Alliance
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jameslindalliance.bsky.social
James Lind Alliance
@jameslindalliance.bsky.social
Bringing patients, carers, and health and care professionals together to identify and prioritise the unanswered questions they want health research to address.

Visit our website: https://www.jla.nihr.ac.uk/
📢New Shortlisting survey!

What questions about essential tremor do you think are the most important and should be prioritised in future research?

If you live with essential tremor or provide care and support to anyone who does, you are invited to share your views: buff.ly/6ddfFgO
November 21, 2025 at 11:45 AM
📢Delirium PSP - Initial survey!

More research is needed to help people with delirium in the best way. Share your experience or professional insight to help shape the future of delirium care in the UK.

Take part in the survey:
November 20, 2025 at 11:45 AM
Do you work with young people experiencing gender dysphoria/incongruence? Make a difference by completing this survey.
📝Let us know the questions you think will help shape services in children and young people in future. buff.ly/CRZUinI
November 18, 2025 at 11:45 AM
Help improve the care and well being of people having chest & lung surgery.

Healthcare professionals and those with experience of chest and lung surgery are invited to select the most important questions for future research to address.

Take part in the survey: buff.ly/fEGJxyh
November 14, 2025 at 11:45 AM
📢The Sepsis (Australia) PSP wants to hear your views!

Choose which questions you think are the top research priorities for sepsis in Australia.
Have your say: buff.ly/30zmfhb
November 13, 2025 at 11:45 AM
Have you questioned your gender identity? Are you trans or gender diverse? Help shape future support and care of gender diverse children and young adults by telling us what matters to you.
👉Take the survey: buff.ly/CRZUinI
📣Please help us get as many voices heard as possible and share this post.
November 12, 2025 at 11:45 AM
💭What questions you would like research to answer about communication and/or swallowing difficulty during or following critical illness?

Your questions can relate to any aspect of care or can include risks, causes and recovery.

Have your say:https://buff.ly/3DFXnSs
November 10, 2025 at 11:45 AM
Help to identify the Top 10 priorities for research into gender diversity in young people. Share your experiences with the Youth Gender Diversity Priority Setting Partnership: buff.ly/lGw3Zp8
November 6, 2025 at 11:45 AM
💭Do you wonder what is important for babies and young children? Would you like to know what affects their social and emotional wellbeing?

Share the questions that you have about children's development. Your questions will help to shape future research: buff.ly/YKOL3HN
November 4, 2025 at 11:45 AM
📢New Top 10!

The Food Allergy in Children PSP worked with children, parents and health care professionals to identify the most important questions for future research to answer.

Check out the Top 10 research priorities: buff.ly/lChTI1U
October 30, 2025 at 11:45 AM
📢The page for the Paediatric Intensive Care (Australia and New Zealand) Priority Setting Partnership (PSP) is now live and can be found on the JLA website:
🔗 buff.ly/nFBj8RK
October 28, 2025 at 5:31 PM
No one understands the issues related to gender diversity better than those with lived experience, their parents/carers and the professionals who work with them.

Share your views to help ensure that research focuses on what matters most: buff.ly/lGw3Zp8
October 27, 2025 at 3:30 PM
🎉200+ Completed PSPs!

There are now over 200 published Top 10s, providing a huge range of questions for researchers and funders to work on. These lists of priorities are directly relevant to patients, carers and families, and healthcare professionals.

Check out the Top 10s here: buff.ly/RN6NNrV
October 16, 2025 at 4:31 PM
📢Shortlisting survey!

Help to choose which questions about problematic menstrual bleeding (bleeding problems associated with periods) are the most important to those who are affected, those who support them, and healthcare professionals who care for them.

➡️Take part here: buff.ly/JPCiB06
October 15, 2025 at 10:45 AM
📢Shortlisting survey!

Help to decide the most important questions for research to answer about Developmental Coordination Disorder (DCD)/ Dyspraxia. If you have lived and/or professional experience of DCD, have your say: buff.ly/RTLPFWI
October 10, 2025 at 10:45 AM
📢 The second survey is now open for Metabolic Interventions for People with Severe Mental Illness (SMI) PSP.

Help to decide which questions researchers should focus on to improve the metabolic health of people living with SMI. Have your say: buff.ly/isjGdqQ

#JLA
October 8, 2025 at 10:45 AM
The JLA is excited to join the incredible lineup of speakers at the 2025 PeDRA Annual Conference in Minneapolis this October! We look forward to sharing the work of the JLA with the pediatric dermatology community.

📅 October 9-11, 2025
📍 Minneapolis, MN
🌐 Learn more: buff.ly/sKqzy7m

#PeDRA2025
October 7, 2025 at 10:45 AM
The Childhood Deafness and Hearing Loss PSP has published the top priorities for future research aimed at improving our understanding of childhood hearing loss.

➡️Top 10 priorities ranked by adults: buff.ly/GQq4qNB
➡️Top 10 priorities ranked by children: buff.ly/1hR5qEu
October 3, 2025 at 10:45 AM
We are thrilled to share that the JLA will be speaking at the 2025 PeDRA Annual Conference this October in Minneapolis! We look forward to forming new connections and sharing the value of JLA Priority Setting Partnerships.

📅 October 9-11, 2025
📍 Minneapolis, MN
🌐 Learn more: buff.ly/sKqzy7m
October 2, 2025 at 10:45 AM
Help to identify which research areas matter most to the sickle cell community, ensuring that people directly affected are at the heart of future research decisions. Whether you have sickle cell, carry the trait, or are a loved one, or a clinician, your insights are vital.

➡️ buff.ly/f20QnEM
September 23, 2025 at 10:45 AM
📢PSP Shortlisting survey

The Stillbirth PSP is asking parents, professionals and anyone affected by stillbirth to prioritise the most urgent unanswered research questions. Your input will shape the future of research and care.

To take part in the survey, visit: buff.ly/jtffsUo
September 22, 2025 at 10:45 AM
📢 PSP Initial survey:

You are invited to take part in a survey to help researchers understand what matters most to families and clinicians about Paediatric Sepsis. You do not need to be an expert, just share your thoughts and experiences.

👉Have your say - buff.ly/O3Vuspo
September 18, 2025 at 10:45 AM
📢 PSP Shortlisting survey:

The Forensic Mental Health and Neurodiversity Priority Setting Partnership would like to hear from you. What questions relating to offending behaviour and mental health/neurodiversity would you like research to answer?

🔗Have your say - buff.ly/ZvLGS7R
September 17, 2025 at 4:45 PM
🌟 Behind every PSP's Top 10 is a robust, inclusive process!

The #JLA methodology ensures that priorities are identified and agreed in a way that is fair and transparent. A full list of PSP Top 10s can be found on the JLA website: buff.ly/tJpBWwt

#ResearchPriorities
September 15, 2025 at 10:45 AM
From the formation of the Steering Group to the final workshop, JLA PSPs are designed to ensure the voices of patients, carers and healthcare professionals remain at the heart of everything they do.

💬Below is feedback shared by a final workshop participant:
September 9, 2025 at 4:31 PM