James Lind Alliance
@jameslindalliance.bsky.social
Bringing patients, carers, and health and care professionals together to identify and prioritise the unanswered questions they want health research to address.
Visit our website: https://www.jla.nihr.ac.uk/
Visit our website: https://www.jla.nihr.ac.uk/
Let’s make care better for gender diverse young people – your voice matters.
🔗Take the survey: buff.ly/Or9cup9
📣Please help us get as many voices heard as possible and share this post.
🔗Take the survey: buff.ly/Or9cup9
📣Please help us get as many voices heard as possible and share this post.
January 5, 2026 at 11:45 AM
Let’s make care better for gender diverse young people – your voice matters.
🔗Take the survey: buff.ly/Or9cup9
📣Please help us get as many voices heard as possible and share this post.
🔗Take the survey: buff.ly/Or9cup9
📣Please help us get as many voices heard as possible and share this post.
Reposted by James Lind Alliance
Sepsis kills more than 45,000 people in the UK each year - costing the NHS £1.1bn, & can lead to long-term physical, mental, & emotional challenges for survivors. We asked patients, carers & clinicians what research mattered most to them.
Full paper: buff.ly/7MBiCmc
THIS summary: buff.ly/pu3onzt
Full paper: buff.ly/7MBiCmc
THIS summary: buff.ly/pu3onzt
December 23, 2025 at 2:51 PM
Sepsis kills more than 45,000 people in the UK each year - costing the NHS £1.1bn, & can lead to long-term physical, mental, & emotional challenges for survivors. We asked patients, carers & clinicians what research mattered most to them.
Full paper: buff.ly/7MBiCmc
THIS summary: buff.ly/pu3onzt
Full paper: buff.ly/7MBiCmc
THIS summary: buff.ly/pu3onzt
In the latest edition of our newsletter, we are pleased to share the most recent updates and highlights from JLA Priority Setting Partnerships.
📰Read our winter newsletter here: buff.ly/heyOqPU
➡️Don’t miss out on future newsletters, sign up to the JLA mailing list: buff.ly/Lo7azFJ
📰Read our winter newsletter here: buff.ly/heyOqPU
➡️Don’t miss out on future newsletters, sign up to the JLA mailing list: buff.ly/Lo7azFJ
James Lind Alliance Newsletter
Welcome to our winter edition of the JLA newsletter.
buff.ly
December 22, 2025 at 11:45 AM
In the latest edition of our newsletter, we are pleased to share the most recent updates and highlights from JLA Priority Setting Partnerships.
📰Read our winter newsletter here: buff.ly/heyOqPU
➡️Don’t miss out on future newsletters, sign up to the JLA mailing list: buff.ly/Lo7azFJ
📰Read our winter newsletter here: buff.ly/heyOqPU
➡️Don’t miss out on future newsletters, sign up to the JLA mailing list: buff.ly/Lo7azFJ
📢JLA PSPs want to hear from you!
Anyone with relevant experience can share what they believe should be priorities for future research. Whether you are a patient, carer or health and care professional your views are welcome.
➡️Complete an open survey to have your say: buff.ly/utn2zgF
Anyone with relevant experience can share what they believe should be priorities for future research. Whether you are a patient, carer or health and care professional your views are welcome.
➡️Complete an open survey to have your say: buff.ly/utn2zgF
December 19, 2025 at 11:45 AM
📢JLA PSPs want to hear from you!
Anyone with relevant experience can share what they believe should be priorities for future research. Whether you are a patient, carer or health and care professional your views are welcome.
➡️Complete an open survey to have your say: buff.ly/utn2zgF
Anyone with relevant experience can share what they believe should be priorities for future research. Whether you are a patient, carer or health and care professional your views are welcome.
➡️Complete an open survey to have your say: buff.ly/utn2zgF
📢New PSP survey!
Help to identify the most important unanswered questions about how digital technology can improve care for people with bone, joint, muscle, and soft tissue conditions (also known as Trauma and Orthopaedics).
Have your say:
Help to identify the most important unanswered questions about how digital technology can improve care for people with bone, joint, muscle, and soft tissue conditions (also known as Trauma and Orthopaedics).
Have your say:
JLA PSP | Digital health technology for trauma and orthopaedics
What are the key research priorities in digital health technology for trauma and orthopaedics?
buff.ly
December 18, 2025 at 11:45 AM
📢New PSP survey!
Help to identify the most important unanswered questions about how digital technology can improve care for people with bone, joint, muscle, and soft tissue conditions (also known as Trauma and Orthopaedics).
Have your say:
Help to identify the most important unanswered questions about how digital technology can improve care for people with bone, joint, muscle, and soft tissue conditions (also known as Trauma and Orthopaedics).
Have your say:
The Obesity Care in Canada PSP worked with people with lived experience of obesity and those supporting them, including caregivers and healthcare providers, to identify and prioritise uncertainties in obesity care.
➡️The priorities for future research: buff.ly/6vBTjMf
🌐 Learn more: buff.ly/kGGWO6f
➡️The priorities for future research: buff.ly/6vBTjMf
🌐 Learn more: buff.ly/kGGWO6f
December 17, 2025 at 11:45 AM
The Obesity Care in Canada PSP worked with people with lived experience of obesity and those supporting them, including caregivers and healthcare providers, to identify and prioritise uncertainties in obesity care.
➡️The priorities for future research: buff.ly/6vBTjMf
🌐 Learn more: buff.ly/kGGWO6f
➡️The priorities for future research: buff.ly/6vBTjMf
🌐 Learn more: buff.ly/kGGWO6f
Please share the Youth Gender Diversity PSP survey with your colleagues, patients, and their carers so their questions about gender dysphoria/incongruence are heard and represented in the future. Survey now open: buff.ly/CRZUinI
December 16, 2025 at 11:45 AM
Please share the Youth Gender Diversity PSP survey with your colleagues, patients, and their carers so their questions about gender dysphoria/incongruence are heard and represented in the future. Survey now open: buff.ly/CRZUinI
It has been another busy year for the James Lind Alliance, and before the year comes to an end, we invite you to join us in reflecting on everything that has been accomplished over the past 12 months...
🎉 Here are some of our highlights of 2025: buff.ly/O2gElt7
🎉 Here are some of our highlights of 2025: buff.ly/O2gElt7
December 11, 2025 at 11:45 AM
It has been another busy year for the James Lind Alliance, and before the year comes to an end, we invite you to join us in reflecting on everything that has been accomplished over the past 12 months...
🎉 Here are some of our highlights of 2025: buff.ly/O2gElt7
🎉 Here are some of our highlights of 2025: buff.ly/O2gElt7
📢New Top 10!
The Community Acquired Pneumonia in Adults PSP worked with patients, carers and clinicians to identify questions for future research to answer about the diagnosis and management of community acquired pneumonia in adults, along with longer term follow up and recovery.
buff.ly/kUZdOHd
The Community Acquired Pneumonia in Adults PSP worked with patients, carers and clinicians to identify questions for future research to answer about the diagnosis and management of community acquired pneumonia in adults, along with longer term follow up and recovery.
buff.ly/kUZdOHd
December 10, 2025 at 5:30 PM
📢New Top 10!
The Community Acquired Pneumonia in Adults PSP worked with patients, carers and clinicians to identify questions for future research to answer about the diagnosis and management of community acquired pneumonia in adults, along with longer term follow up and recovery.
buff.ly/kUZdOHd
The Community Acquired Pneumonia in Adults PSP worked with patients, carers and clinicians to identify questions for future research to answer about the diagnosis and management of community acquired pneumonia in adults, along with longer term follow up and recovery.
buff.ly/kUZdOHd
🗣️Have your say.
What questions do researchers need to answer about care and support for children and young people questioning their gender?
Share your views with us: buff.ly/CRZUinI
What questions do researchers need to answer about care and support for children and young people questioning their gender?
Share your views with us: buff.ly/CRZUinI
December 10, 2025 at 11:45 AM
🗣️Have your say.
What questions do researchers need to answer about care and support for children and young people questioning their gender?
Share your views with us: buff.ly/CRZUinI
What questions do researchers need to answer about care and support for children and young people questioning their gender?
Share your views with us: buff.ly/CRZUinI
📰 Want the latest JLA updates?
Sign up to our newsletter and stay up to date on the latest news from the JLA:
Sign up to our newsletter and stay up to date on the latest news from the JLA:
James Lind Alliance Newsletter
Janes Lind Alliance Email Form
buff.ly
December 9, 2025 at 5:30 PM
📰 Want the latest JLA updates?
Sign up to our newsletter and stay up to date on the latest news from the JLA:
Sign up to our newsletter and stay up to date on the latest news from the JLA:
📢What questions do you have about Sjögren’s disease that you think should be answered by research?
Share your views as a person with lived and/or professional experience to help shape future research into Sjögren’s disease. Take the survey:
Share your views as a person with lived and/or professional experience to help shape future research into Sjögren’s disease. Take the survey:
buff.ly
December 5, 2025 at 11:45 AM
📢What questions do you have about Sjögren’s disease that you think should be answered by research?
Share your views as a person with lived and/or professional experience to help shape future research into Sjögren’s disease. Take the survey:
Share your views as a person with lived and/or professional experience to help shape future research into Sjögren’s disease. Take the survey:
Do you have lived or living experience (as a patient, caregiver, or healthcare professional) of heart failure?
💭 What questions do you have about the link between heart failure and its effects on the brain? Have your say:
💭 What questions do you have about the link between heart failure and its effects on the brain? Have your say:
Brain and Heart Failure Priority Setting Partnership (“Brain-HF PSP”)
buff.ly
December 4, 2025 at 11:45 AM
Do you have lived or living experience (as a patient, caregiver, or healthcare professional) of heart failure?
💭 What questions do you have about the link between heart failure and its effects on the brain? Have your say:
💭 What questions do you have about the link between heart failure and its effects on the brain? Have your say:
🌟 We’re delighted to welcome three new JLA Advisers to our team: Louise Hill-Davis, Rhiann McLean and Victoria Thomas!
Read our latest blog to find out a bit more about them: buff.ly/l0Jhk2X
Read our latest blog to find out a bit more about them: buff.ly/l0Jhk2X
December 3, 2025 at 5:30 PM
🌟 We’re delighted to welcome three new JLA Advisers to our team: Louise Hill-Davis, Rhiann McLean and Victoria Thomas!
Read our latest blog to find out a bit more about them: buff.ly/l0Jhk2X
Read our latest blog to find out a bit more about them: buff.ly/l0Jhk2X
📢Your voice matters.
We want to hear about your experiences of living with gender dysphoria as a young person. How should support and care change in the future?
Influence future research by taking this survey: buff.ly/CRZUinI
We want to hear about your experiences of living with gender dysphoria as a young person. How should support and care change in the future?
Influence future research by taking this survey: buff.ly/CRZUinI
December 2, 2025 at 11:45 AM
📢Your voice matters.
We want to hear about your experiences of living with gender dysphoria as a young person. How should support and care change in the future?
Influence future research by taking this survey: buff.ly/CRZUinI
We want to hear about your experiences of living with gender dysphoria as a young person. How should support and care change in the future?
Influence future research by taking this survey: buff.ly/CRZUinI
📢What's new on the JLA website?
In our latest blog post we celebrate the completion of the Pregnancy and Childbirth (Uganda) PSP. Thank you to everyone who contributed to the PSP, your contributions will help to shape future research!
Find out more about the PSP's final workshop:
buff.ly/S2IjM0N
In our latest blog post we celebrate the completion of the Pregnancy and Childbirth (Uganda) PSP. Thank you to everyone who contributed to the PSP, your contributions will help to shape future research!
Find out more about the PSP's final workshop:
buff.ly/S2IjM0N
December 1, 2025 at 11:45 AM
📢What's new on the JLA website?
In our latest blog post we celebrate the completion of the Pregnancy and Childbirth (Uganda) PSP. Thank you to everyone who contributed to the PSP, your contributions will help to shape future research!
Find out more about the PSP's final workshop:
buff.ly/S2IjM0N
In our latest blog post we celebrate the completion of the Pregnancy and Childbirth (Uganda) PSP. Thank you to everyone who contributed to the PSP, your contributions will help to shape future research!
Find out more about the PSP's final workshop:
buff.ly/S2IjM0N
📢New JLA Blog Post!
Mothers, midwives, clinicians and community members in Eastern Uganda have directly shaped the Top 10 research priorities for maternal and newborn health through the JLA methodology.
Find out more about the Pregnancy & Childbirth PSP in our latest blog post:
buff.ly/hgfLPlC
Mothers, midwives, clinicians and community members in Eastern Uganda have directly shaped the Top 10 research priorities for maternal and newborn health through the JLA methodology.
Find out more about the Pregnancy & Childbirth PSP in our latest blog post:
buff.ly/hgfLPlC
November 28, 2025 at 2:15 PM
📢New JLA Blog Post!
Mothers, midwives, clinicians and community members in Eastern Uganda have directly shaped the Top 10 research priorities for maternal and newborn health through the JLA methodology.
Find out more about the Pregnancy & Childbirth PSP in our latest blog post:
buff.ly/hgfLPlC
Mothers, midwives, clinicians and community members in Eastern Uganda have directly shaped the Top 10 research priorities for maternal and newborn health through the JLA methodology.
Find out more about the Pregnancy & Childbirth PSP in our latest blog post:
buff.ly/hgfLPlC
📢Your voice matters.
Share your experiences of working with young people experiencing gender dysphoria or incongruence. Take the survey: buff.ly/CRZUinI
#GenderDiversity #GenderDysphoria #TransgenderResearch
Share your experiences of working with young people experiencing gender dysphoria or incongruence. Take the survey: buff.ly/CRZUinI
#GenderDiversity #GenderDysphoria #TransgenderResearch
November 27, 2025 at 11:45 AM
📢Your voice matters.
Share your experiences of working with young people experiencing gender dysphoria or incongruence. Take the survey: buff.ly/CRZUinI
#GenderDiversity #GenderDysphoria #TransgenderResearch
Share your experiences of working with young people experiencing gender dysphoria or incongruence. Take the survey: buff.ly/CRZUinI
#GenderDiversity #GenderDysphoria #TransgenderResearch
The LGBTQIA+ Perinatal Care PSP identified and prioritised unanswered questions about LGBTQIA+ people’s fertility, pregnancy, birth, infant feeding experiences and health in the first year after birth.
➡️Check out the PSP's Top 10 here:
➡️Check out the PSP's Top 10 here:
LGBTQIA+ Perinatal Care - Top 10 Priorities
The LGBTQIA+ Perinatal Care PSP Top 10 was published in November 2025.
buff.ly
November 26, 2025 at 11:45 AM
The LGBTQIA+ Perinatal Care PSP identified and prioritised unanswered questions about LGBTQIA+ people’s fertility, pregnancy, birth, infant feeding experiences and health in the first year after birth.
➡️Check out the PSP's Top 10 here:
➡️Check out the PSP's Top 10 here:
Genomics England and the Sickle Cell Society worked with patients, carers, carriers and healthcare professionals to identify uncertainties about the relationship between sickle cell and genomics.
The Top 10 priorities for future research in this area have been announced!
➡️ buff.ly/PEzKSW4
The Top 10 priorities for future research in this area have been announced!
➡️ buff.ly/PEzKSW4
November 25, 2025 at 11:45 AM
Genomics England and the Sickle Cell Society worked with patients, carers, carriers and healthcare professionals to identify uncertainties about the relationship between sickle cell and genomics.
The Top 10 priorities for future research in this area have been announced!
➡️ buff.ly/PEzKSW4
The Top 10 priorities for future research in this area have been announced!
➡️ buff.ly/PEzKSW4
Do you experience chronic or recurrent UTIs, or care for those who do? Have your say!
Help shape the direction of future research by choosing the questions that matter to you the most:
Help shape the direction of future research by choosing the questions that matter to you the most:
Shortlisting survey - chronic and recurrent UTI Priority Setting Partnership (PSP)
Take this survey powered by surveymonkey.com. Create your own surveys for free.
buff.ly
November 24, 2025 at 11:45 AM
Do you experience chronic or recurrent UTIs, or care for those who do? Have your say!
Help shape the direction of future research by choosing the questions that matter to you the most:
Help shape the direction of future research by choosing the questions that matter to you the most:
Reposted by James Lind Alliance
Final day of sharing Top 24 research priorities for LGBTQIA+ Perinatal Care (@jameslindalliance.bsky.social PSP, supported by @ox.ac.uk & @britishacademy.bsky.social ).Qu 19-24 cover bonding, work leave, experiences of gender, induced & shared lactation, written language, & sperm donor diversity 1/
November 20, 2025 at 5:56 PM
Final day of sharing Top 24 research priorities for LGBTQIA+ Perinatal Care (@jameslindalliance.bsky.social PSP, supported by @ox.ac.uk & @britishacademy.bsky.social ).Qu 19-24 cover bonding, work leave, experiences of gender, induced & shared lactation, written language, & sperm donor diversity 1/
📢New Shortlisting survey!
What questions about essential tremor do you think are the most important and should be prioritised in future research?
If you live with essential tremor or provide care and support to anyone who does, you are invited to share your views: buff.ly/6ddfFgO
What questions about essential tremor do you think are the most important and should be prioritised in future research?
If you live with essential tremor or provide care and support to anyone who does, you are invited to share your views: buff.ly/6ddfFgO
November 21, 2025 at 11:45 AM
📢New Shortlisting survey!
What questions about essential tremor do you think are the most important and should be prioritised in future research?
If you live with essential tremor or provide care and support to anyone who does, you are invited to share your views: buff.ly/6ddfFgO
What questions about essential tremor do you think are the most important and should be prioritised in future research?
If you live with essential tremor or provide care and support to anyone who does, you are invited to share your views: buff.ly/6ddfFgO
📢Delirium PSP - Initial survey!
More research is needed to help people with delirium in the best way. Share your experience or professional insight to help shape the future of delirium care in the UK.
Take part in the survey:
More research is needed to help people with delirium in the best way. Share your experience or professional insight to help shape the future of delirium care in the UK.
Take part in the survey:
November 20, 2025 at 11:45 AM
📢Delirium PSP - Initial survey!
More research is needed to help people with delirium in the best way. Share your experience or professional insight to help shape the future of delirium care in the UK.
Take part in the survey:
More research is needed to help people with delirium in the best way. Share your experience or professional insight to help shape the future of delirium care in the UK.
Take part in the survey:
Do you work with young people experiencing gender dysphoria/incongruence? Make a difference by completing this survey.
📝Let us know the questions you think will help shape services in children and young people in future. buff.ly/CRZUinI
📝Let us know the questions you think will help shape services in children and young people in future. buff.ly/CRZUinI
November 18, 2025 at 11:45 AM
Do you work with young people experiencing gender dysphoria/incongruence? Make a difference by completing this survey.
📝Let us know the questions you think will help shape services in children and young people in future. buff.ly/CRZUinI
📝Let us know the questions you think will help shape services in children and young people in future. buff.ly/CRZUinI