International Patient and Public Involvement Network
@ippin.bsky.social
The International PPI Network connects individuals working in, involved with and interested in patient and public involvement across the globe. Join us at https://intppinetwork.wixsite.com/ippin
Pinned
Join us for our next webinar! On the 8th December Silke Lipinksi and Isabel Dziobel explain how they created the PPI structure for the German Centre for Mental Health (DZPG). Register here: t.co/QhlqLjHYY7
How do you see AI fitting into the future of PPI storytelling? And what safeguards or opportunities do you think matter most?
Read the latest IPPIN blog post from Patrick Toland - 'Patient Voices in the Age of AI: Opportunity or Visibility Theft?'
intppinetwork.wixsite.com/ippin/post/p...
Read the latest IPPIN blog post from Patrick Toland - 'Patient Voices in the Age of AI: Opportunity or Visibility Theft?'
intppinetwork.wixsite.com/ippin/post/p...
October 27, 2025 at 3:31 PM
How do you see AI fitting into the future of PPI storytelling? And what safeguards or opportunities do you think matter most?
Read the latest IPPIN blog post from Patrick Toland - 'Patient Voices in the Age of AI: Opportunity or Visibility Theft?'
intppinetwork.wixsite.com/ippin/post/p...
Read the latest IPPIN blog post from Patrick Toland - 'Patient Voices in the Age of AI: Opportunity or Visibility Theft?'
intppinetwork.wixsite.com/ippin/post/p...
Join us for our next webinar! On the 8th December Silke Lipinksi and Isabel Dziobel explain how they created the PPI structure for the German Centre for Mental Health (DZPG). Register here: t.co/QhlqLjHYY7
October 23, 2025 at 9:50 AM
Join us for our next webinar! On the 8th December Silke Lipinksi and Isabel Dziobel explain how they created the PPI structure for the German Centre for Mental Health (DZPG). Register here: t.co/QhlqLjHYY7
The presentation and Q&A from our webinar on Citizen Science with Sarah Ahannach are now available to watch again on our website: t.co/YG6zYkVSJJ
October 20, 2025 at 1:52 PM
The presentation and Q&A from our webinar on Citizen Science with Sarah Ahannach are now available to watch again on our website: t.co/YG6zYkVSJJ
Registration is still open for our next webinar! Sarah Ahannach shares her experiences from the Isala project - one of the world's largest citizen science projects addressing women's health. Register here: zoom.us/webinar/regi...
September 22, 2025 at 10:20 AM
Registration is still open for our next webinar! Sarah Ahannach shares her experiences from the Isala project - one of the world's largest citizen science projects addressing women's health. Register here: zoom.us/webinar/regi...
The presentation and Q&A for last weeks webinar on Measuring the Impact of PPI in Research are now available to watch again on our website. intppinetwork.wixsite.com/ippin/webina...
September 9, 2025 at 9:36 AM
The presentation and Q&A for last weeks webinar on Measuring the Impact of PPI in Research are now available to watch again on our website. intppinetwork.wixsite.com/ippin/webina...
Join us for our next webinar! Sarah Ahannach shares her experiences from the Isala project - one of the world's largest citizen science projects addressing women's health. Register here: zoom.us/webinar/regi...
September 4, 2025 at 9:55 AM
Join us for our next webinar! Sarah Ahannach shares her experiences from the Isala project - one of the world's largest citizen science projects addressing women's health. Register here: zoom.us/webinar/regi...
How do we assess the impact of #patientandpublicinvolvement in research? Jennifer Mohammadi & Sophie Scott-Thorburn explain how the use of reflective sessions to assess impact can improve PPI practices. Register at: zoom.us/webinar/regi...
August 7, 2025 at 11:01 AM
How do we assess the impact of #patientandpublicinvolvement in research? Jennifer Mohammadi & Sophie Scott-Thorburn explain how the use of reflective sessions to assess impact can improve PPI practices. Register at: zoom.us/webinar/regi...
Reposted by International Patient and Public Involvement Network
🚀 THE PEOPLE'S REVIEW IS OPEN NOW 🚀
We are excited to launch Stage 1 of #ThePeoplesReview
✅Open to people worldwide
✅Everything takes place online
✅Make a difference in health research
✅Learn about systematic reviews
Join now ➡️ buff.ly/WAnKUYa
We are excited to launch Stage 1 of #ThePeoplesReview
✅Open to people worldwide
✅Everything takes place online
✅Make a difference in health research
✅Learn about systematic reviews
Join now ➡️ buff.ly/WAnKUYa
April 22, 2025 at 3:58 PM
🚀 THE PEOPLE'S REVIEW IS OPEN NOW 🚀
We are excited to launch Stage 1 of #ThePeoplesReview
✅Open to people worldwide
✅Everything takes place online
✅Make a difference in health research
✅Learn about systematic reviews
Join now ➡️ buff.ly/WAnKUYa
We are excited to launch Stage 1 of #ThePeoplesReview
✅Open to people worldwide
✅Everything takes place online
✅Make a difference in health research
✅Learn about systematic reviews
Join now ➡️ buff.ly/WAnKUYa
Reposted by International Patient and Public Involvement Network
🎉 Celebrating 3 years of the @hralatest.bsky.social Shared Commitment to Public Involvement! We hear from 1000s of patients every year and their voices shape real change in healthcare. Our 6 principles can help other orgs do the same. Learn more: buff.ly/5Pf97bX
#SharedCommitment #PublicInvolvement
#SharedCommitment #PublicInvolvement
March 10, 2025 at 4:32 PM
🎉 Celebrating 3 years of the @hralatest.bsky.social Shared Commitment to Public Involvement! We hear from 1000s of patients every year and their voices shape real change in healthcare. Our 6 principles can help other orgs do the same. Learn more: buff.ly/5Pf97bX
#SharedCommitment #PublicInvolvement
#SharedCommitment #PublicInvolvement
Reposted by International Patient and Public Involvement Network
To mark the third anniversary of our #SharedCommitment to #PublicInvolvement, Matt Westmore, HRA Chief Executive, has written about our public involvement highlights from the past year ➡️https://www.hra.nhs.uk/about-us/news-updates/blog-celebrating-the-third-anniversary-of-our-shared-commitment/
March 10, 2025 at 4:06 PM
To mark the third anniversary of our #SharedCommitment to #PublicInvolvement, Matt Westmore, HRA Chief Executive, has written about our public involvement highlights from the past year ➡️https://www.hra.nhs.uk/about-us/news-updates/blog-celebrating-the-third-anniversary-of-our-shared-commitment/
Reposted by International Patient and Public Involvement Network
We take our membership of the Shared Commitment to Patient Involvement very seriously. Jenny Royle, our lovely Strategic Lead shares our pledges www.youtube.com/watch?si=juW...
#SharedCommitment #patientinvolvement #socialresearch
#SharedCommitment #patientinvolvement #socialresearch
www.youtube.com
February 24, 2025 at 4:41 PM
We take our membership of the Shared Commitment to Patient Involvement very seriously. Jenny Royle, our lovely Strategic Lead shares our pledges www.youtube.com/watch?si=juW...
#SharedCommitment #patientinvolvement #socialresearch
#SharedCommitment #patientinvolvement #socialresearch
Reposted by International Patient and Public Involvement Network
Our public partners Cheryl and Irene are marking the 3rd anniversary of the HRA #SharedCommitment to #PublicInvolvement by sharing their research participation stories & discussing why #PublicInvolvement is so important to them.
Read the blog ⬇️
tinyurl.com/SC25Blog
Read the blog ⬇️
tinyurl.com/SC25Blog
March 10, 2025 at 3:30 PM
Our public partners Cheryl and Irene are marking the 3rd anniversary of the HRA #SharedCommitment to #PublicInvolvement by sharing their research participation stories & discussing why #PublicInvolvement is so important to them.
Read the blog ⬇️
tinyurl.com/SC25Blog
Read the blog ⬇️
tinyurl.com/SC25Blog
Reposted by International Patient and Public Involvement Network
Our #SharedCommitment to #PublicInvolvement in health and social care research is three today! 🥳
Hear from our Director of Comms & Engagement, Nick Hillier, speak with Research Unravelled on how we engage patient & carer voices in research.
👉 ow.ly/e5u050VbF7R
@hralatest.bsky.social
Hear from our Director of Comms & Engagement, Nick Hillier, speak with Research Unravelled on how we engage patient & carer voices in research.
👉 ow.ly/e5u050VbF7R
@hralatest.bsky.social
Nick Hillier | The Academy of Medical Sciences - Research Unravelled
Peter Barker chats with Nick Hillier - Director of Comms and Engagement at the Academy of Medical Sciences - about patient and public involvement.
ow.ly
March 10, 2025 at 11:42 AM
Our #SharedCommitment to #PublicInvolvement in health and social care research is three today! 🥳
Hear from our Director of Comms & Engagement, Nick Hillier, speak with Research Unravelled on how we engage patient & carer voices in research.
👉 ow.ly/e5u050VbF7R
@hralatest.bsky.social
Hear from our Director of Comms & Engagement, Nick Hillier, speak with Research Unravelled on how we engage patient & carer voices in research.
👉 ow.ly/e5u050VbF7R
@hralatest.bsky.social
Reposted by International Patient and Public Involvement Network
Today marks 3 years of the #SharedCommitment to Public Involvement!
As recent signatories, we’ve written a blog reflecting on our achievements, progress, & future goals for #PPIE within the SPCR and health & care research!
Read it here: bit.ly/4kAIEqS
@hralatest.bsky.social
@nihr.bsky.social
As recent signatories, we’ve written a blog reflecting on our achievements, progress, & future goals for #PPIE within the SPCR and health & care research!
Read it here: bit.ly/4kAIEqS
@hralatest.bsky.social
@nihr.bsky.social
March 10, 2025 at 1:01 PM
Today marks 3 years of the #SharedCommitment to Public Involvement!
As recent signatories, we’ve written a blog reflecting on our achievements, progress, & future goals for #PPIE within the SPCR and health & care research!
Read it here: bit.ly/4kAIEqS
@hralatest.bsky.social
@nihr.bsky.social
As recent signatories, we’ve written a blog reflecting on our achievements, progress, & future goals for #PPIE within the SPCR and health & care research!
Read it here: bit.ly/4kAIEqS
@hralatest.bsky.social
@nihr.bsky.social
Today marks the 3rd anniversary of the #SharedCommitment to Public Involvement in Health and Social Care Research.
We, and the many other organisations that have signed up, continue in our commitment to bring about changes that will improve the practice of PPI in health and social care research.
We, and the many other organisations that have signed up, continue in our commitment to bring about changes that will improve the practice of PPI in health and social care research.
March 10, 2025 at 4:10 PM
Today marks the 3rd anniversary of the #SharedCommitment to Public Involvement in Health and Social Care Research.
We, and the many other organisations that have signed up, continue in our commitment to bring about changes that will improve the practice of PPI in health and social care research.
We, and the many other organisations that have signed up, continue in our commitment to bring about changes that will improve the practice of PPI in health and social care research.
Reposted by International Patient and Public Involvement Network
We’re a partner with other leading orgs on the #SharedCommitment to Public Involvement initiative, which turns 3 today!🎈
@vanessapinfold.bsky.social shares why it's important work, helping drive up standards in health & social care research 👉 bit.ly/4hnVTs6
@nihr.bsky.social @hralatest.bsky.social
@vanessapinfold.bsky.social shares why it's important work, helping drive up standards in health & social care research 👉 bit.ly/4hnVTs6
@nihr.bsky.social @hralatest.bsky.social
March 10, 2025 at 3:41 PM
We’re a partner with other leading orgs on the #SharedCommitment to Public Involvement initiative, which turns 3 today!🎈
@vanessapinfold.bsky.social shares why it's important work, helping drive up standards in health & social care research 👉 bit.ly/4hnVTs6
@nihr.bsky.social @hralatest.bsky.social
@vanessapinfold.bsky.social shares why it's important work, helping drive up standards in health & social care research 👉 bit.ly/4hnVTs6
@nihr.bsky.social @hralatest.bsky.social
Reposted by International Patient and Public Involvement Network
Great to see @ippin.bsky.social on here.
Added to the #PPI starter pack (see below). It's almost at capacity so if you work in #PublicInvolvement and/or #CoProduction in health & care research and would like to be added let me know soon. When it's full someone else will need to start a new one!
Added to the #PPI starter pack (see below). It's almost at capacity so if you work in #PublicInvolvement and/or #CoProduction in health & care research and would like to be added let me know soon. When it's full someone else will need to start a new one!
#PublicInvolvement (#PPI #PPIE), #Coproduction and #ParticipatoryResearch in health and care research starter pack: go.bsky.app/PWEAnFR
March 6, 2025 at 4:51 PM
Great to see @ippin.bsky.social on here.
Added to the #PPI starter pack (see below). It's almost at capacity so if you work in #PublicInvolvement and/or #CoProduction in health & care research and would like to be added let me know soon. When it's full someone else will need to start a new one!
Added to the #PPI starter pack (see below). It's almost at capacity so if you work in #PublicInvolvement and/or #CoProduction in health & care research and would like to be added let me know soon. When it's full someone else will need to start a new one!
Reposted by International Patient and Public Involvement Network
Reposted by International Patient and Public Involvement Network
Patient and Public Involvement and Engagement in Med Tech
Tue 12 Nov 2024, 9am - 12:30pm
Join this event to understand the importance of #PPIE throughout the #medtech development cycle.
Book your tickets here: lnkd.in/ePXGWTa3
Sponsored by the WMHTIA in collaboration with Medilink Midlands.
Tue 12 Nov 2024, 9am - 12:30pm
Join this event to understand the importance of #PPIE throughout the #medtech development cycle.
Book your tickets here: lnkd.in/ePXGWTa3
Sponsored by the WMHTIA in collaboration with Medilink Midlands.
November 4, 2024 at 2:36 PM
Patient and Public Involvement and Engagement in Med Tech
Tue 12 Nov 2024, 9am - 12:30pm
Join this event to understand the importance of #PPIE throughout the #medtech development cycle.
Book your tickets here: lnkd.in/ePXGWTa3
Sponsored by the WMHTIA in collaboration with Medilink Midlands.
Tue 12 Nov 2024, 9am - 12:30pm
Join this event to understand the importance of #PPIE throughout the #medtech development cycle.
Book your tickets here: lnkd.in/ePXGWTa3
Sponsored by the WMHTIA in collaboration with Medilink Midlands.
Reposted by International Patient and Public Involvement Network
Podcast!! 🎙️📹 Having patients involved in #epilepsy research is fantastic - if done well! How can Public Patient Involvement impact qualitative research? And, how is this is benefit to quantitative research?! Hear all about it from research fellow Georgia Cook 🤩! Watch/listen, via links 👇🏻!
January 23, 2025 at 5:23 PM
Podcast!! 🎙️📹 Having patients involved in #epilepsy research is fantastic - if done well! How can Public Patient Involvement impact qualitative research? And, how is this is benefit to quantitative research?! Hear all about it from research fellow Georgia Cook 🤩! Watch/listen, via links 👇🏻!
Reposted by International Patient and Public Involvement Network
(2/2)The research team is looking for people diagnosed with coeliac disease or parents or carers of children with coeliac disease to join a Patient and Public Involvement and Engagement (PPIE) panel.
Find out more:
www.coeliac.org.uk/research/our...
#CoeliacDisease #CoeliacUK #Coeliac
Find out more:
www.coeliac.org.uk/research/our...
#CoeliacDisease #CoeliacUK #Coeliac
Recruiting for research
Get involved with research into coeliac disease and the affects of gluten by helping with research projects.
www.coeliac.org.uk
December 17, 2024 at 1:38 PM
(2/2)The research team is looking for people diagnosed with coeliac disease or parents or carers of children with coeliac disease to join a Patient and Public Involvement and Engagement (PPIE) panel.
Find out more:
www.coeliac.org.uk/research/our...
#CoeliacDisease #CoeliacUK #Coeliac
Find out more:
www.coeliac.org.uk/research/our...
#CoeliacDisease #CoeliacUK #Coeliac
Reposted by International Patient and Public Involvement Network
Researchers at Aberdeen Uni are looking for ppl in rural & island Scotland to help shape research into healthcare provision for specific medical conditions. Check out the link for more info on the project & how to get involved.
www.abdn.ac.uk/iahs/academi...
#RuralHealth #IslandHealth
www.abdn.ac.uk/iahs/academi...
#RuralHealth #IslandHealth
January 6, 2025 at 10:36 AM
Researchers at Aberdeen Uni are looking for ppl in rural & island Scotland to help shape research into healthcare provision for specific medical conditions. Check out the link for more info on the project & how to get involved.
www.abdn.ac.uk/iahs/academi...
#RuralHealth #IslandHealth
www.abdn.ac.uk/iahs/academi...
#RuralHealth #IslandHealth