IaccSky Updates
iaccsky-updates.bsky.social
IaccSky Updates
@iaccsky-updates.bsky.social
Custom feeds for the IACC community (IACCs=infection-associated chronic conditions, such as Long Covid and ME/CFS).
Pinned
blog post is up! includes survey results, feed descriptions and moderation policy. for new people who don't want to read a whole blog post, I am gonna post the feeds and other key information below one more time with non-broken links. moderation policy will be at the end. 🧵
IACCSky: Bluesky Feeds for People with Long Covid, ME/CFS and Related Diseases
(Re)Introduction to Bluesky I started using Bluesky in 2023, soon after developing Long Covid. I’d been mostly a lurker on social media since deleting my...
buttondown.com
blog post is up! includes survey results, feed descriptions and moderation policy. for new people who don't want to read a whole blog post, I am gonna post the feeds and other key information below one more time with non-broken links. moderation policy will be at the end. 🧵
IACCSky: Bluesky Feeds for People with Long Covid, ME/CFS and Related Diseases
(Re)Introduction to Bluesky I started using Bluesky in 2023, soon after developing Long Covid. I’d been mostly a lurker on social media since deleting my...
buttondown.com
April 16, 2025 at 6:46 PM
Reposted by IaccSky Updates
this is ready for people to try out! here's how it works:

1) message this account the word "password" (no quotes) and you'll get an automated response including a randomly generated password. 1/
bonus feed coming soon: I figured out a hack so that people can make a private list, since a few people mentioned it as a feature they'd like. this will be available w/in the next few weeks. not specifically IACC related, but for the IACC community. 12/
March 19, 2025 at 1:25 AM
Reposted by IaccSky Updates
at this point @iaccsky-updates.bsky.social feeds should not be down for anyone at any time. if you get an error PLEASE let me know!!!
March 25, 2025 at 1:43 AM
this is ready for people to try out! here's how it works:

1) message this account the word "password" (no quotes) and you'll get an automated response including a randomly generated password. 1/
bonus feed coming soon: I figured out a hack so that people can make a private list, since a few people mentioned it as a feature they'd like. this will be available w/in the next few weeks. not specifically IACC related, but for the IACC community. 12/
March 19, 2025 at 1:25 AM
this should be fixed now. posts go back about 12 hours since that's when I restarted the queue
tomorrow I'm gonna fix the issue of a limited number of posts loading.
March 14, 2025 at 5:18 PM
alright y'all the following, discover and links feeds should be back up. there were some issues with the queue getting corrupted, hopefully now fixed--please let me know if you try to access one of these feeds and get an error message!
March 14, 2025 at 3:07 AM
Reposted by IaccSky Updates
I (hopefully) figured out the main issues with the @iaccsky-updates.bsky.social feeds, gonna try and fix them tomorrow 👍 so if they’re entirely down that’s why
March 13, 2025 at 3:08 AM
oh my god 🐞🐞🐞
March 11, 2025 at 9:19 PM
thanks for your patience everyone!
alright, great catch! the two issues you identified seem to be two different problems rather than one, as Jessica's post doesn't appear in the queue (though it should). I think I figured out why it's only taking you back a few hours, noticed this is happening for me as well. I'm asking on github 1/
March 11, 2025 at 3:13 AM
random twitter outage day: great day to share these custom feeds I've been working on for the IACC (infection-associated chronic condition)* community! 1/🧵

*inclusive of related diseases such as EDS
March 10, 2025 at 10:11 PM
🙂
February 8, 2025 at 1:32 AM