Lizzy
@hopefullizzy.bsky.social
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice✨ Bristol, UK
Update: a week after my 31st birthday I was taken back into hospital. Still here a week later.
Fed up, but still here and still persevering.
On my 10th failed cannula, extremely frustrated, and totally wiped out. I guess we’ll see what today brings.
Fed up, but still here and still persevering.
On my 10th failed cannula, extremely frustrated, and totally wiped out. I guess we’ll see what today brings.
November 4, 2025 at 8:09 AM
Update: a week after my 31st birthday I was taken back into hospital. Still here a week later.
Fed up, but still here and still persevering.
On my 10th failed cannula, extremely frustrated, and totally wiped out. I guess we’ll see what today brings.
Fed up, but still here and still persevering.
On my 10th failed cannula, extremely frustrated, and totally wiped out. I guess we’ll see what today brings.
October 12, 2025 at 10:11 AM
Here is the top half of it! @ozgib.bsky.social @rainbowsteph.bsky.social
October 11, 2025 at 12:44 PM
Here is the top half of it! @ozgib.bsky.social @rainbowsteph.bsky.social
Here is a sneak peak but I will ask mum to take a photo for me tomorrow 😍 I’d love to share it with you, thank you for asking!! X
October 8, 2025 at 9:49 PM
Here is a sneak peak but I will ask mum to take a photo for me tomorrow 😍 I’d love to share it with you, thank you for asking!! X
Mum has hung the beautiful autumnal bunting she made me for my 30th birthday last October, up across my room. It looks so lovely!
October 8, 2025 at 4:33 PM
Mum has hung the beautiful autumnal bunting she made me for my 30th birthday last October, up across my room. It looks so lovely!
Apologies for the silence, I have tried to update people on the ‘other’ platform, but couldn’t manage here too.
It’s been a rocky year, I spent most of the summer in hospital due to the progression of this disease/ these set of diseases and the malnutrition being allowed to get so critical… #MECFS
It’s been a rocky year, I spent most of the summer in hospital due to the progression of this disease/ these set of diseases and the malnutrition being allowed to get so critical… #MECFS
September 12, 2025 at 10:59 AM
Apologies for the silence, I have tried to update people on the ‘other’ platform, but couldn’t manage here too.
It’s been a rocky year, I spent most of the summer in hospital due to the progression of this disease/ these set of diseases and the malnutrition being allowed to get so critical… #MECFS
It’s been a rocky year, I spent most of the summer in hospital due to the progression of this disease/ these set of diseases and the malnutrition being allowed to get so critical… #MECFS
Yesterday was phenomenal! 160+ people came out and battled the wind to stand in a #mirrorbox to listen to my message, while looking at a place I love, & for many, that they do too.
I’ve been wiped out today from the messages & hype, it was so lovely having my family come home & tell me about it all
I’ve been wiped out today from the messages & hype, it was so lovely having my family come home & tell me about it all
June 2, 2025 at 9:57 PM
Yesterday was phenomenal! 160+ people came out and battled the wind to stand in a #mirrorbox to listen to my message, while looking at a place I love, & for many, that they do too.
I’ve been wiped out today from the messages & hype, it was so lovely having my family come home & tell me about it all
I’ve been wiped out today from the messages & hype, it was so lovely having my family come home & tell me about it all
That sky 😍 always makes it harder to be trapped inside though!!! Sooo beautiful
April 1, 2025 at 4:44 PM
That sky 😍 always makes it harder to be trapped inside though!!! Sooo beautiful
So cute!!! Mum took this for me over at the farm a few days ago, there were about 10 honey bees in the video getting a drink from the moss on the pond ramp!
March 31, 2025 at 1:22 PM
So cute!!! Mum took this for me over at the farm a few days ago, there were about 10 honey bees in the video getting a drink from the moss on the pond ramp!
@teamlabouruk.bsky.social These are a FEW of the things I use my PIP for…
Stair lift, recliner, hot waterbottles for pain relief & warmth, adapted cushion, portable toilet, medical devices to help drs assess, noise cancelling headphones, adaptive clothes/coats, wash bowls/cloths
Stair lift, recliner, hot waterbottles for pain relief & warmth, adapted cushion, portable toilet, medical devices to help drs assess, noise cancelling headphones, adaptive clothes/coats, wash bowls/cloths
March 31, 2025 at 1:18 PM
@teamlabouruk.bsky.social These are a FEW of the things I use my PIP for…
Stair lift, recliner, hot waterbottles for pain relief & warmth, adapted cushion, portable toilet, medical devices to help drs assess, noise cancelling headphones, adaptive clothes/coats, wash bowls/cloths
Stair lift, recliner, hot waterbottles for pain relief & warmth, adapted cushion, portable toilet, medical devices to help drs assess, noise cancelling headphones, adaptive clothes/coats, wash bowls/cloths
A haiku about asking Drs questions about tests that have been done by another doctor in the same hospital, but they say they can’t speak for them… can’t they speak TO them? #disjointedhealthcare #complexillness
November 23, 2024 at 2:07 PM
A haiku about asking Drs questions about tests that have been done by another doctor in the same hospital, but they say they can’t speak for them… can’t they speak TO them? #disjointedhealthcare #complexillness
November 23, 2024 at 2:00 PM
November 23, 2024 at 1:58 PM
Snuggles with my boy ❤️🥰
November 21, 2024 at 11:06 PM
Snuggles with my boy ❤️🥰
Snowwww! Hope I don’t get snowed in🤣😭 still waiting (was due 10:30…) least I’m laying on a trolly but damn I’ve been awake almost all night, I’ve not eaten in 42hrs, and in that 42 hrs I’ve been to the toilet 39 times🙃 bloody joy. Will update you later x
November 19, 2024 at 12:19 PM
Snowwww! Hope I don’t get snowed in🤣😭 still waiting (was due 10:30…) least I’m laying on a trolly but damn I’ve been awake almost all night, I’ve not eaten in 42hrs, and in that 42 hrs I’ve been to the toilet 39 times🙃 bloody joy. Will update you later x
Thank you so much. Here’s my thoughts from Twitter (easier than copy and pasting sorry!)
November 18, 2024 at 11:08 PM
Thank you so much. Here’s my thoughts from Twitter (easier than copy and pasting sorry!)
Love my little pickle ❤️
November 5, 2023 at 4:08 PM
Love my little pickle ❤️