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hendie3.bsky.social
@hendie3.bsky.social
28 followers 13 following 13 posts
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adamfare1996.bsky.social
Keir Starmer has today shaken the hand of a man who signed bombs that were dropped on children in Gaza.

His hands permanently stained with the blood of the children and innocent civilians who have been killed.
September 10, 2025 at 5:40 PM
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tomkindlon.bsky.social
Crowdfunding for David Tuller's work reported on ME, ME/CFS, Long Covid, & so on...

crowdfund.berkeley.edu/project/46120

Image is from latest Science for ME weekly update

#MEcfs #LongCovid @davetuller1.bsky.social
Trial by Error: Reporting on ME, ME/CFS, Long Covid, & so on... New crowdfund campaign via Berkeley University to secure David Tuller's important work and position for further 6 months. The aim is to raise $68,000 by May 5th. 10 years ago Tuller launched Trial By Error in 2015 and his work since then with reporting, investigation, analysis, letters and much more has been invaluable for moving matters forwards.
April 14, 2025 at 1:56 AM
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adamfare1996.bsky.social
Eligibility for disability benefits should not be associated directly or solely to a diagnosis.

It can take years, decades even, to get one… If it all… especially for women.

So it would exclude so many people with severe disabilities and significant support needs.
April 11, 2025 at 8:10 AM
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tomkindlon.bsky.social
From ME Research UK:

Former ME Research UK-funded researcher Prof. Dr Carmen Scheibenbogen and Prof. Dr Klaus Wirth summarised skeletal muscle research on individuals with ME/CFS, and those with long COVID with post-exertional malaise (PEM).

Read more - bit.ly/3Y8uHqB

#mecfs
Skeletal muscles in ME/CFS and long COVID what do studies say? Scheibenbogen & Wirth (2025) CLINICAL SIGNS MUSCLE FORCE TEST Compared to healthy controls - Early exhaustion, fatigue, weakness, fasciculations, pain, and cramps. Muscular force impaired. Hand grip strength correlates with symptom severity/prognosis ENDURANCE ASSESSMENT Metabolic changes during exercise - early appearance anaerobic metabolism. Reduced oxygen uptake and extraction. of MUSCLE BIOPSY Muscle damage and subsequent regeneration. Evidence of muscle mitochondrial changes and damage/dysfunction. and more... Scheibenbogen, C. and Wirth, K.J. (2025). Key Pathophysiological Role of Skeletal Muscle Disturbance in Post COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Accumulated Evidence. Journal of cachexia, sarcopenia and muscle. INFORM. INFLUENCE. INVEST. ME RESEARCH UK SC036942
April 4, 2025 at 2:47 PM
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kirsties.bsky.social
Thank you Nish Kumar of @podsavetheuk.crooked.com
You're one of the only people talking about Long Covid being a direct link to the amount of people unable to work due to sickness in the UK
Far too much collective amnesia going on

Full episode on Pod Save the World here
youtu.be/f3Q6cJc6Z7A?...
March 26, 2025 at 7:16 PM
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pillowwriters.bsky.social
Both Early Pillows and Standard Pillows every Thursday.

pillowwriters.wordpress.com/2025/02/18/e...
Early Pillows Information
Are you looking for a writing group but finding Standard Pillows too late in the day for you? Welcome to Early Pillows. Exactly the same as the original Standard Pillows, just earlier in the day. E…
pillowwriters.wordpress.com
March 13, 2025 at 12:02 PM
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merespite.bsky.social
Please share this video for anyone wanting to be educated and to increase for #ME/CFS awareness:
youtu.be/rxDPFSgfYus?...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #ChronicIllness #ME #CFS
What is ME/CFS?
YouTube video by ME RESPITE
youtu.be
December 16, 2024 at 4:17 AM
Reposted
tomkindlon.bsky.social
Infection-associated chronic conditions: Why Long Covid is our best chance to untangle Osler’s web

www.science.org/doi/10.1126/...

#LongCovid #PASC #IACCs #MEcfs #CFS #PwME
Infection-associated chronic conditions: Why Long Covid is our best chance to untangle Osler’s web Michael J. Peluso , Maureen R. Hanson , and Steven G. Deeks Authors Info & Affiliations Science Translational Medicine 13 Nov 2024 Vol 16, Issue 773 DOI: 10.1126/scitranslmed.ado2101 Abstract The recognition of Long Covid has renewed efforts to understand other infection-associated chronic conditions (IACCs). Here, we describe how studies of Long Covid and other IACCs might inform one another. We argue for the importance of a coordinated research agenda addressing these debilitating illnesses.
November 13, 2024 at 9:51 PM