Helene M Epstein Author
@helenemepstein.substack.com
Writer. Advocate. Speaker. Patient Empowerment. Patient Safety. In 2025, I’m sharing two chapters a month of my current book: 𝗔 𝗚𝘂𝗶𝗱𝗲 𝘁𝗼 𝗦𝘂𝗿𝘃𝗶𝘃𝗶𝗻𝗴 𝗔𝗺𝗲𝗿𝗶𝗰𝗮𝗻 𝗛𝗲𝗮𝗹𝘁𝗵𝗰𝗮𝗿𝗲. Subscribe FREE at HeleneMEpstein.substack.com
…Here’s a primer on rare disease. What is it? How is it both rare and common? Where can I learn more? What if I suspect I — or a loved one —have a rare disease? 2/2
helenemepstein.substack.com/p/chapter-15...
helenemepstein.substack.com/p/chapter-15...
Chapter 15: Rare Diseases Are Common
Why Are They Missed? What do celebrities Justin Bieber, Celine Dion and Jameela Jamil have in common? They’ve all shared what life feels like with a rare disease.
helenemepstein.substack.com
September 16, 2025 at 11:48 AM
…Here’s a primer on rare disease. What is it? How is it both rare and common? Where can I learn more? What if I suspect I — or a loved one —have a rare disease? 2/2
helenemepstein.substack.com/p/chapter-15...
helenemepstein.substack.com/p/chapter-15...
September 5, 2025 at 6:47 PM
tl:dr the average premium will rise 75% & will triple for those in their 50s and 60s. Given the current political atmosphere, the odds that Congress will vote to keep an additional almost $400 billion for this support are extremely low. Time to start calling your representatives and senators. #ACA
August 25, 2025 at 1:22 PM
tl:dr the average premium will rise 75% & will triple for those in their 50s and 60s. Given the current political atmosphere, the odds that Congress will vote to keep an additional almost $400 billion for this support are extremely low. Time to start calling your representatives and senators. #ACA
It's bad here. It will be worse in the red states. Thanks for sharing. Important info here.
July 31, 2025 at 10:33 PM
It's bad here. It will be worse in the red states. Thanks for sharing. Important info here.