Helene M Epstein Author
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helenemepstein.substack.com
Helene M Epstein Author
@helenemepstein.substack.com
Writer. Advocate. Speaker. Patient Empowerment. Patient Safety. In 2025, I’m sharing two chapters a month of my current book: 𝗔 𝗚𝘂𝗶𝗱𝗲 𝘁𝗼 𝗦𝘂𝗿𝘃𝗶𝘃𝗶𝗻𝗴 𝗔𝗺𝗲𝗿𝗶𝗰𝗮𝗻 𝗛𝗲𝗮𝗹𝘁𝗵𝗰𝗮𝗿𝗲. Subscribe FREE at HeleneMEpstein.substack.com
There are just 2 days left to vote for the 𝐂𝐨𝐦𝐦𝐮𝐧𝐢𝐭𝐲 𝐕𝐨𝐢𝐜𝐞 bit of #TheAnthemAwards. It closes October 30. I'm overwhelmed by how many voted for me. Being named a finalist is an incredible honor but it's your encouragement that has meant everything. VOTE wbby.co/HEPSNP
#PatientAdvocacy #PatientSafety
October 29, 2025 at 1:29 PM
I'm a finalist for #TheAnthemAwards & I need YOUR vote to win #CommunityVoice! All year I've researched, written & published a free book: A GUIDE TO SURVIVING AMERICAN HEALTHCARE. My mission is to teach you how to protect yourself in every medical situation. Please VOTE for me.
wbby.co/HEPSNP
October 15, 2025 at 4:34 PM
@penparentis.bsky.social for authors who parent because sometimes THIS is what parenting feels like.
September 16, 2025 at 1:22 AM
Did you know one of the best tools for fighting misdiagnosis and medical error is the phone in your hand? Read for more details on how you can protect yourself from medical harm. #misdiagnosis #medicalharm #patientempowerment #patienteducation #medicalerror

open.substack.com/pub/heleneme...
September 12, 2025 at 1:39 PM
My back is killing me. So, I'm on my way to have a corticosteroid shot in my spine. It has side effects but it's worth it to me. All procedures have side effects. Before you have any surgery or procedure, know the risks and side effects. Read Chapter 14 for more.
Links in comments
September 5, 2025 at 6:46 PM
August 28, 2025 at 5:17 AM
Online medical info is both a boon to patient autonomy & a dangerous source of unreliable advice, products, & bad data. Ch 13 covers how to use the three main resources –– social media crowd-sourcing, symptom checkers & AI chatbots ––while protecting yourself.
bit.ly/13Online
#HealthTech
July 31, 2025 at 10:31 PM
[Spoiler] The attacks against our rights have been so constant, even the games in the @nytimes now remind us of our constitutional freedoms! #strands #Constitution #Vote #Speech #Assembly #Liberty #Life
July 30, 2025 at 4:12 PM
My favorite doctors share their doubts when it’s called for. I’m seeking accuracy, not speed. Of course, I expect them to 1st rule out any life-threatening conditions quickly, then commit to getting the necessary answers. 𝘛𝘦𝘭𝘭 𝘮𝘦 𝘺𝘰𝘶 𝘥𝘰𝘯’𝘵 𝘬𝘯𝘰𝘸 𝘣𝘶𝘵 𝘱𝘳𝘰𝘮𝘪𝘴𝘦 𝘮𝘦 𝘺𝘰𝘶 𝘸𝘰𝘯’𝘵 𝘭𝘦𝘢𝘷𝘦 𝘮𝘦 bit.ly/DxUncertain
July 16, 2025 at 12:01 AM
Do you know the 4 major barriers to getting a second opinion and how to get past them? The answers are in my latest chapter 𝗚𝗲𝘁 𝗔 𝗦𝗲𝗰𝗼𝗻𝗱 𝗢𝗽𝗶𝗻𝗶𝗼𝗻. 𝗚𝗲𝘁 𝗔 𝗦𝗲𝗰𝗼𝗻𝗱 𝗢𝗽𝗶𝗻𝗶𝗼𝗻. 𝗚𝗲𝘁 𝗔 𝗦𝗲𝗰𝗼𝗻𝗱 𝗢𝗽𝗶𝗻𝗶𝗼𝗻. (And it's 100% free)
helenemepstein.substack.com/i/167293196/...
#Misdiagnosis #SecondOpinions #PatientSafety
July 3, 2025 at 5:32 AM
Throughout my book, I consistently recommend getting a second opinion. Here are the What, Why, When, How and How Much of getting Second Opinions. bit.ly/2nd-Opinions
#SecondOpinion #PatientSafety #Surgery #PeaceOfMind #Cancer #Scheduling #Multidisciplinary #PatientAdvocate #RemoteSecondOpinions
July 1, 2025 at 11:53 PM
Blown away by this pledge. Dr. Mark Graber is a visionary. Over 15 years ago, Mark identified that the biggest patient safety issue is misdiagnosis. His leadership has made patient lives healthier & safer. I've long admired him; his support means the world to me. open.substack.com/pub/heleneme...?
June 28, 2025 at 1:19 AM
Gaslighted, Dismissed or Ignored By Your Doctor? All three are dangerous to your health. Do you know the difference? Why they each happen and how to combat them? There are steps you can take when it happens to you or someone you love. Here are NINE of them. bit.ly/Ch10Gaslighted
#PatientEmpowerment
June 13, 2025 at 7:55 AM
4 of 4. ...due process, the vacuuming up of our private data, the attacks on rule of law,or the police state that's just around the corner. Let's also protest to support the strength of our judicial system!
#BodilyAutonomy #ReproductiveRights #DueProcess #Privacy #RuleOfLaw #SupportJudges
June 9, 2025 at 5:05 PM
3 of 4. ...institutions like #universities, the cowardly weakness of the members of #Congress, the crippling #tariffs and inconsistent economic actions that harm so many small and medium businesses, the attack on...
#BodilyAutonomy #ReproductiveRights #DueProcess #Privacy #RuleOfLaw #SupportJudges
June 9, 2025 at 5:05 PM
2 of4. ...destruction of funding for #science and #publichealth, the dismantling of #DEI, the #misogyny and wish to control women's bodies, the lack of intellect and planning while they destroy our educational ...

#BodilyAutonomy #ReproductiveRights #DueProcess #Privacy #RuleOfLaw #SupportJudges
June 9, 2025 at 5:05 PM
1 of 4. On June 14, and every day you protest, help maintain civil control. 𝗗𝗼𝗻'𝘁 𝗴𝗶𝘃𝗲 𝘁𝗵𝗲𝗺 𝗮𝗻 𝗲𝘅𝗰𝘂𝘀𝗲 𝘁𝗼 𝗱𝗲𝗰𝗹𝗮𝗿𝗲 𝗺𝗮𝗿𝘁𝗶𝗮𝗹 𝗹𝗮𝘄!

Whether you are protesting against the demonization of #immigrants, the...

#BodilyAutonomy #ReproductiveRights #DueProcess #Privacy #RuleOfLaw #SupportJudges
June 9, 2025 at 5:05 PM
I made a new friend! A new temporary outdoor art exhibit featuring 26 fiberglass piggies called OINK! in Stamford Downtown. This lovely gal is modeled after classic Chinese porcelain and is outside our fantastic library.
June 5, 2025 at 2:56 AM
Outside my window, right now, in Downtown Stamford CT. Fire ladders reaching to third floor apartments in the Sofi buildings across the street. Everyone is safe.
May 26, 2025 at 3:04 AM
Finally. Made it to the new @frickcollection today. And it was glorious like an old friend with a great facelift. ❤️
May 25, 2025 at 5:33 AM
I guess vaccine usage has really slowed. For the first time ever, I received a phone call from my local CVS asking me if I would like to schedule any vaccinations. The spiel included the list of vaccinations they offer. #Vaccines #Vaccinations
May 20, 2025 at 3:36 AM
Why are we not all yelling about this? I suspected that the government would rewrite the federal healthcare websites like they have deconstructed the federal healthcare agencies. I just never expected they would do something this egregious!

Check out the new covid.gov.
#COVID-19 #PublicHealth 1/3
April 24, 2025 at 3:30 PM
My goal is to teach as many people as possible how to protect themselves against the dangers of American healthcare. That that's why my Substack is free. I hope I never have to charge but I appreciate all of you who have pledged to support me. 2/2
HeleneMEpstein.substack.com
April 17, 2025 at 1:43 PM
I have a mission. I don't want anyone else to experience the hell that healthcare put my family through. We were fully unprepared. We had complete trust in our doctors. We never suspected that despite their best efforts to help us, they would harm us instead, over and over and over again. 1/2
April 17, 2025 at 1:43 PM
April 11, 2025 at 4:59 PM