Hannah Joy
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hannahjoy1234.bsky.social
Hannah Joy
@hannahjoy1234.bsky.social
470 followers 620 following 230 posts
Eclectic thoughts on Life, Disability & Christianity ❤️ INFJ 🇵🇭 TCK 🇺🇲 ME/CFS 😴 Married to "Mr Nomad" 😷 Artist 🎨 Fluent in Whale 🐳
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hannahjoy1234.bsky.social
Testing out a new mask, for lower risk environments. So far I'm a fan! ❤️
Picture of me wearing a blue shirt and a red kn95 respirator
March 10, 2025 at 2:11 PM
hannahjoy1234.bsky.social
My sweet husband drove me to my psych appointment! I rested in the car's back seat.

My appointment went well! It actually felt connecting & encouraging. 🙂

I had on my 3M Aura. And it looked like there were air purifiers in all/most rooms in the building! 😃

Tired now. 😴

#MECFS #cPTSD
Caucasian woman with dark shoulder length hair, wearing black rimmed glasses and a colorful necklace, is wearing a blue sweater and smiling at the camera in the backseat of a car.
January 28, 2025 at 8:03 PM
hannahjoy1234.bsky.social
Just $73 to go! And today is the last day to raise this money if I'm going to get my food allergy testing done tomorrow. Thank you so much to all of you who have already prayed or given! 🙏
A gray and pink thermometer chart to show progress towards a fundraising goal. So far, $427 has been raised towards the $500 need.
January 21, 2025 at 4:20 PM
hannahjoy1234.bsky.social
Update! 25/500 raised so far 🙂 🙂
A fundraiser thermometer that is mostly gray, with the bottom 5% filled in with hot pink to denote raising $25 towards the $500 goal.
January 18, 2025 at 5:08 PM
hannahjoy1234.bsky.social
Look at this amazing mask chain I got in the mail earlier this week! It matches my sit valve so well! It fits my 3M aura perfectly! Thank you so very much @saeboria.bsky.social for making me this custom chain! I love it so much! 🥰🙌🏻😀🙏🏻
#saltingthevibes #stillcoviding #covidcompetent #communitycare
A white 3M Aura mask with a blue and green sip valve, and a silver blue and green mask chain. Also in this photo are two covid aware stickers and a cute note from an Etsy seller
January 18, 2025 at 3:51 PM
hannahjoy1234.bsky.social
This is a semi-typical Hannah meal. Main components include: moderately small amounts of healthy starchy carbs, about 1 cup of cooked vegetables, about 30 g of protein from meat or fish, and plenty of fat and sea salt.
#nutrients #mcas #mecfs #spoonie
A blue plate on a light colored counter. On the plate are cooked green vegetables, one and a half slices of sprouted buckwheat sourdough bread, one piece of salmon, and two small pieces of bacon.
January 4, 2025 at 8:11 PM
hannahjoy1234.bsky.social
Christmas morning started with me eating the most delicious buckwheat pancakes made by the sweetest husband 😍🤤
This photo is a selfie of me, a white woman with dark brown hair, wearing a dark green sweater. I am smiling and holding a yellow plate with three buckwheat pancakes and a little pack of maple syrup.
December 26, 2024 at 11:15 PM
hannahjoy1234.bsky.social
I am so very thankful for a beautiful gluten-free pizza from a nearby restaurant, and a box full of pre prepped or low prep food from HungryRoot! As anticipated, my symptoms are worse this week, and having easy and yummy food is so helpful! Thank you all so much! 🥲❤️🙏🏻
December 24, 2024 at 12:56 AM
hannahjoy1234.bsky.social
There have been 6 or more people who have been especially gentle and generous towards me and Will this month. We are so thankful for y'all!

Photo by Eiliv Aceron on Unsplash
Photo of a breakfast table on an outdoor porch, overlooking green trees and a white building.
December 20, 2024 at 2:15 AM
hannahjoy1234.bsky.social
Here are five key aspects of health:
1. Education access and quality
2. Healthcare and quality
3. Neighborhood and built environment
4. Social and community context
5. Economic stability

#MAHA
Graphic by the CDC, detailing five components of health. 1. Education access and quality 2. Healthcare and quality 3. Neighborhood and built environment 4. Social and community context 5. Economic stability
December 18, 2024 at 3:19 PM
hannahjoy1234.bsky.social
These delightful gifts just arrived! I love this creamy blush and the bourbon pear candle! Thank you so so much, Camille! 🥰🤗🎄❤️
White woman with dark brown hair is wearing a floral shirt, smiling at the camera, and holding a Root candle in the scent bourbon pear, and a stick blush by the brand Pixi. In the background is a white bookshelf.
December 16, 2024 at 5:56 PM
hannahjoy1234.bsky.social
Mary Davis writes: "May this new day go easy on your heart, be gentle on your soul, comfort your worries and grow your hope." 🥲❤️ #encouragement #quote #MaryDavis
A white background with colorful watercolor florals across the top and bottom. In the middle is a quote in dark letters by Mary Davis, which says: "May this new day go easy on your heart, be gentle on your soul, comfort your worries and grow your hope." 🥲❤️
December 16, 2024 at 3:48 PM
hannahjoy1234.bsky.social
What are YOUR best pieces of advice for surviving the holidays as a #spoonie ? :)

Here are some of mine: open.substack.com/pub/homeboun...
December 14, 2024 at 3:49 PM
hannahjoy1234.bsky.social
I've still got a few prints of my greeting cards available for sale at ko-fi.com/hannahsart 🎨🖌️😊
Photo of four greeting cards. One has pine trees and snow. Another has a sunset over the beach. Another is a giant red flower. And the fourth is a green vase with flowers and leaves in it. These are prints of watercolor and ink artwork by Hannah Joy.
December 13, 2024 at 12:07 AM
hannahjoy1234.bsky.social
This is what I look like for most of each day---resting in a mostly dark room 🦥💕🫂 #pwME
White woman with dark brown hair resting on a pillow in a dark room
December 12, 2024 at 2:00 AM
hannahjoy1234.bsky.social
Speaking of gifts, thank you so much to the friend who sent me these mango treats and blueberry lavender tea! It all looks so joyful and delicious! Thank you so much! 😍🙌🏻🥰
a photo of Yammy mango chips and blueberry lavender tea, sitting on a navy blue chair
December 11, 2024 at 7:54 PM
hannahjoy1234.bsky.social
Look at this adorable coloring book that arrived today! I'm not sure who it it's from, but whoever it was, thank you so much! It is just so cute! 🥰😍🙌🏻
#ShareYourWishlist
Photo of a cozy and cute coloring book by coco Wyo
December 11, 2024 at 7:28 PM
hannahjoy1234.bsky.social
I got to go to church again today! All 4 of us in the side room had on respirators! 💟💟
#accessibility #pwME #CovidConscious #Community
White woman with brown hair, wearing a pink sweater and an N95 style black respirator and a Sip Valve
December 8, 2024 at 6:38 PM
hannahjoy1234.bsky.social
It is so helpful that one of my friends in Mississippi sent me a HungryRoot e-giftcard. Cooking, even low prep meals, can be overwhelming and exhausting for me. Being able to buy pre-made foods that fit my dietary needs is so helpful! 🥲🥲🥲 #pwME
A white plate of food featuring beets, seaweed, apple chips, and oven roasted sliced chicken. Off to the side as a bar of Hu salty chocolate.
December 5, 2024 at 8:30 PM
hannahjoy1234.bsky.social
Thanks, everyone! I'm back home from the eye doctor and pretty exhausted and sore. But I did a good job! And hopefully soon I'll get some glasses that will help take some stress off of my eyes and body 💗💗💗
White woman with brown hair wearing a black respirator style mask with a silver and pearlescent mask chain across the front. Wearing black and purple. Inside and optometrist's office, featuring a Christmas tree in the background.
December 5, 2024 at 6:39 PM
hannahjoy1234.bsky.social
This is really helpful info, from a source I've found to be reliable!
Short List to Fight COVID if Infected 1. Metformin: anti-inflammatory & anti-viral 2. Zinc: anti-viral 3. Quercetin: anti-viral 4. Famotidine: slows the production of inflammatory cytokines. 5. Mouthwash with CPC kills the virus in the mouth & throat. 6. Saline nasal spray & rinse 7. Vit.C, B2, D3 w/K2, & E 8. Probiotics 9. CoQ-10: helps prevent mitochondrial dysfunction. 10. No sugar 11. Extra water 12. Sleep/ rest by @tactNowInfo on Twitter/X
December 2, 2024 at 8:40 PM
hannahjoy1234.bsky.social
Nothing says Presbyterian Worship Service like a statue of a giant chocolate M&M off in the corner 😂😂😂
Photo of the inside of a church auditorium, featuring a 3 ft tall plastic red M&M statue.
November 25, 2024 at 11:36 PM
hannahjoy1234.bsky.social
We did it! 🥲🙌🏻💒
Sparkly pink heart sticker that says covid cautious cutie Photo of a Caucasian woman with dark brown hair, wearing a blue dress, a black particulate respirator, a sip valve, and a mask chain. Location is an accessible worship service at a local church.
November 24, 2024 at 8:50 PM
hannahjoy1234.bsky.social
If you would like to receive occasional articles by me--on the topics of chronic illness, Christianity, creativity, and/or culture--please consider subscribing to my Substack!
homeboundnomad.substack.com
Promo photo for Homebound Nomad by Hannah Joy. Read and subscribe at homeboundnomad.substack.com
November 23, 2024 at 11:43 PM
hannahjoy1234.bsky.social
It's beginning to look a little like Christmas! Take a look at this adorable, festive tree! 🌲🤩
November 22, 2024 at 10:08 PM