Delighted to present at the EACD/IAACD conference on Co-production in research with family carers of people with a learning disability.

warwick.ac.uk/fac/soc/cidd...

#coproduction #parentcarers #accessibleresearch #parents #disability #learningdisability #livedexperience

Professionals with an interest in the psychological wellbeing of parents of disabled children - sign up to info & research quarterly newsletter here:

dashboard.mailerlite.com/forms/534658...

#parentcarers and #specialneedsparents can sign up too

#parentcarerwellbeing

Almost a third of families (31%) spend more than 10 hours per week on essential administrative tasks to ensure that their disabled child gets the support they need.

Failed and Forgotten report
Disabled Children’s Partnership

#carers #carersweek #carersweek2025

Carers week 2025 focuses on equality for carers highlighting the significant inequalities they face putting them at greater risk of poor mental and physical health, social isolation, financial hardship and poverty.
#carers #carersweek #carersweek2025 #unpaidcarers #parentcarers #parentcarerwellbeing

On SNJ Today: What is good coproduction in research? A parent carer, & a researcher @griffinpsychology.bsky.social have written of their work collaborating on research & their new 7 golden rules of co-production guidance for researchers—that works in most situations www.specialneedsjungle.com/c...

NEW POST: The seven golden rules of co-production for researchers with guidance for working with family carers- a parent and researcher @griffinpsychology.bsky.social write about their experiences- and the 7 rules work for all kinds of co-production www.specialneedsjungle.com/c...

www.specialneedsjungle.com/research-inf...

Thank you Special Needs Jungle for your interest in our work. It's about the interplay between the mental health of everyone in the room, in particular rooms where people with profound disabilities are cared for by staff members.
#PMLD #PIMD #mentalhealth

Affinityhub.uk signposts to emotional support for #parentcarers and includes words of wisdom from other parents to know you’re not alone. #specialneedsparents

Grief is not a disorder, a disease or sign of weakness. It is an emotional, physical and spiritual necessity, the price you pay for love. The only cure for grief is to grieve.

- Earl Grollman

#grief #grieving #psychology #griefjourney #griefawareness

Professionals with an interest in the psychological wellbeing of parents of disabled children - sign up to info & research quarterly newsletter here:

bit.ly/3zuZDI4

#parentcarers and #specialneedsparents can sign up too

#parentcarerwellbeing
Affinityhub.uk

If you’re a parent of a disabled child who relies on the LA to provide transport to school, please consider taking part in this survey.

Contact A Family are campaigning for better transport to school, esp for those who are not of statutory school age. #SEND

www.surveymonkey.com/r/TransportM...

'There is no excuse' is the tldr from this typically good read from Prof Chris Hatton on the issue of involving people in research.

#LearningDisability

communitylivingmagazine.com/chris-hatton...

Whilst I’m not leaving X as yet, I would very much like to spend more time here.

So, if you see this and you’d be kind enough to share it to let readers find me, that would be greatly appreciated. Hi!

If you're interested in #LearningDisability, I edit this independent, charity-run digital mag, not (yet) on Bluesky (most readers/contributors/supporters/people with lived experience are still on X). On the digital cover: Richard Keegan-Bull and @tuffrey-wijne.bsky.social communitylivingmagazine.com