So sorry for your loss Brian.

Definitely. Even hour by hour on some days. Just learn to listen to our bodies and down what we can and adapt x

No meds. When they did my MRI to start Siponimod it didn't show any active lesions so didn't meet the criteria. It's why I'm on the ChariotMS trial..try anything to try and slow down progression. Hope you can start Siponimod soon.

Sorry to hear how things are for you now. I'm still able to get around using a walking stick,but do have my problems using hands/fingers when dressing.

For me,I put it down to the damage caused by previous lesions/relapses. Whilst I may have "recovered" from them at the time...the long term damage has happened. I guess it's the new term of smouldering MS. No new lesions,but progression.

Mine came to £385 but thankfully the sunglasses them came free

Yeah, I'm the same..although when he was racking up the price on the till, was over £800....then thankfully he started to add the discounts! Still way too expensive

Yep! And of course I didn't realise that I'd chosen the premium varifocals last time, so going for the basic cheaper option this time would have meant I'd not see as much! Bugger!

I thought it hid it well...plus having my mother in law around didn't help 🤣

I tried the specsavers online fitting, but wasn't sure if they'd fit my fat head, so it was easier to go in. They have a deal on at the moment,buy one get one free... better deal than at Boots. I need varifocals, so adds to the expense sadly.

Sunglasses too.