Stephanie Grach M.D. M.S.
@grachstephanie.bsky.social
Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
YESSSS, my knowledge of Lonely Island lyrics had intrigued/scared(?) my husband lol
October 7, 2025 at 7:52 PM
YESSSS, my knowledge of Lonely Island lyrics had intrigued/scared(?) my husband lol
Thank you @exceedhergrasp1.bsky.social !!
a man in a blue shirt and tie is pointing at a woman and saying " too legit to quit " .
Alt: a man in a blue shirt and tie is pointing at a woman and saying " too legit to quit " .
media.tenor.com
October 7, 2025 at 5:35 PM
Thank you @exceedhergrasp1.bsky.social !!
And thank you also to everyone in the community who took the time to send thank you messages!! Wow!! We received the eCard and are so overwhelmed (in the best way) by your support and are so so grateful. 🥹 @meactnet.bsky.social
October 7, 2025 at 4:34 PM
And thank you also to everyone in the community who took the time to send thank you messages!! Wow!! We received the eCard and are so overwhelmed (in the best way) by your support and are so so grateful. 🥹 @meactnet.bsky.social
@exceedhergrasp1.bsky.social, Ravi Ganesh, and Jen Bell and Brayden Yellman from @batemanhornecenter.bsky.social have all been guides and inspiration for me since the start of my journey in ME/CFS care. I could not think of a better experience to have with my first textbook chapter. Thank you all 💙
October 7, 2025 at 4:34 PM
@exceedhergrasp1.bsky.social, Ravi Ganesh, and Jen Bell and Brayden Yellman from @batemanhornecenter.bsky.social have all been guides and inspiration for me since the start of my journey in ME/CFS care. I could not think of a better experience to have with my first textbook chapter. Thank you all 💙
So funny, Jay and I were chatting with each other right as you posted this! 😁
June 20, 2025 at 10:02 PM
So funny, Jay and I were chatting with each other right as you posted this! 😁
"This mindset shift not only benefits patients with post-infectious conditions but strengthens our ability to manage other complex, poorly understood illnesses across medicine." - beautiful statement by Dr. Zeest Khan (2/2)
May 10, 2025 at 8:44 PM
"This mindset shift not only benefits patients with post-infectious conditions but strengthens our ability to manage other complex, poorly understood illnesses across medicine." - beautiful statement by Dr. Zeest Khan (2/2)
Thank you! No placebo control group for this one (would have needed more funding for the first round) but the biomarkers (blinded) will be informative in the full report. I believe PolyBio is doing a placebo-controlled for LC but I don't know which labs they'll use.
April 6, 2025 at 6:29 PM
Thank you! No placebo control group for this one (would have needed more funding for the first round) but the biomarkers (blinded) will be informative in the full report. I believe PolyBio is doing a placebo-controlled for LC but I don't know which labs they'll use.
I don't have the exact numbers (will be seeing with the manuscript draft soon), but my understanding has been that adverse effects have been uncommon, with the notable one being mouth sores, consistent with other studies at this dose. Pts could stop and reintroduce at a lower dose if so.
April 5, 2025 at 9:02 PM
I don't have the exact numbers (will be seeing with the manuscript draft soon), but my understanding has been that adverse effects have been uncommon, with the notable one being mouth sores, consistent with other studies at this dose. Pts could stop and reintroduce at a lower dose if so.
in the overall interpretation even in this non-placebo controlled group, to be discussed in the upcoming manuscript.
April 4, 2025 at 7:03 PM
in the overall interpretation even in this non-placebo controlled group, to be discussed in the upcoming manuscript.
I'll leave it to the study leads to share overall plans, but note that this is just aggregate data of one area assessed (patient-reported outcomes, which was what was available at the time of conference abstract submission) and so use of biomarkers and subtyping in the more full data will be helpful
April 4, 2025 at 7:02 PM
I'll leave it to the study leads to share overall plans, but note that this is just aggregate data of one area assessed (patient-reported outcomes, which was what was available at the time of conference abstract submission) and so use of biomarkers and subtyping in the more full data will be helpful
Sorry all*
April 4, 2025 at 7:01 PM
Sorry all*
We're excited too! 🙌
April 4, 2025 at 6:44 PM
We're excited too! 🙌
Great question! This will be addressed in the greater analysis in the manuscript, interesting what we may be finding in respect to infection history. :)
April 4, 2025 at 4:49 PM
Great question! This will be addressed in the greater analysis in the manuscript, interesting what we may be finding in respect to infection history. :)
Thank you so much! Definitely looking forward to the full results coming out.
April 4, 2025 at 4:32 PM
Thank you so much! Definitely looking forward to the full results coming out.
Thanks for the question - app participants for this study received rapamycin and were aware.
April 4, 2025 at 4:31 PM
Thanks for the question - app participants for this study received rapamycin and were aware.
Thank you for the kind words 💙🙏
April 4, 2025 at 4:15 PM
Thank you for the kind words 💙🙏
Thank you so much!
April 4, 2025 at 1:03 AM
Thank you so much!
Thank you! It was exciting to present 😁 I was limited to presenting the kind of data available at time of submission (December) so it'll be great to have the full data out in the future.
April 4, 2025 at 1:02 AM
Thank you! It was exciting to present 😁 I was limited to presenting the kind of data available at time of submission (December) so it'll be great to have the full data out in the future.