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grace-project-uk.bsky.social
GRACE Project
@grace-project-uk.bsky.social
25 followers 40 following 20 posts
GRACE: Genetics Research Awareness via Community Engagement.
A community engagement and outreach project about genetics. Based at the Open University, UK.

https://university.open.ac.uk/research-projects/grace/
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grace-project-uk.bsky.social
GRACE Project @grace-project-uk.bsky.social · 16d
Find out how to access free #genetic testing for personalised healthcare through the #NHS, what the process involves, and how your results can support diagnosis and treatment, in this new animation - part of our GRACE Project series...

www.open.edu/openlearn/sc...
Accessing genetic testing through the NHS
Find out how to access free genetic testing for personalised healthcare through the NHS, what the process involves, and how your results can support diagnosis and treatment.
www.open.edu
grace-project-uk.bsky.social
The GRACE Project is shedding light on genetics and health within the #Gypsy, #Roma and #Traveller community.

Watch our new mini-documentary to learn more ⏯️

ow.ly/qrSv50Xqzr7
Guide to engaging with the Gypsy, Roma and Traveller community
The GRACE Project is shedding light on genetics and health within the Gypsy, Roma and Traveller community. Through research, dialogue, and storytelling, it aims to empower communities, tackle ...
ow.ly
November 14, 2025 at 4:47 PM
grace-project-uk.bsky.social
Delighted to be invited to attend the diverse data showcase initiative by Genomics England and learning about various initiatives working hard to tackle under representation in genetics research

@genomicsengland.bsky.social
November 14, 2025 at 11:34 AM
grace-project-uk.bsky.social
Find out how to access free #genetic testing for personalised healthcare through the #NHS, what the process involves, and how your results can support diagnosis and treatment, in this new animation - part of our GRACE Project series...

www.open.edu/openlearn/sc...
Accessing genetic testing through the NHS
Find out how to access free genetic testing for personalised healthcare through the NHS, what the process involves, and how your results can support diagnosis and treatment.
www.open.edu
November 14, 2025 at 9:55 AM
Reposted by GRACE Project
chcharityuk.bsky.social
On #WorldKindnessDay, we want to give a special shout-out to these kind and amazing people! Our fantastic Hyperinsulinism Community, friends and supporters, wonderful volunteers, and amazing fundraisers! Thank you 🥰
https://hyperinsulinism.co.uk/dedicated-fundraising/
November 13, 2025 at 9:00 AM
grace-project-uk.bsky.social
Fantastic talks @camraredisease on inclusive and equitable genetics healthcare and research for all!
November 6, 2025 at 1:02 PM
Reposted by GRACE Project
kaustubhad.bsky.social
I'm attending the Cambridge Rare Summit #RAREsummit25 tomorrow on behalf of @grace-project-uk.bsky.social, with our partners Breaking Down Barriers & Alström Syndrome UK. Please stop by our desk if you are there!

www.camraredisease.org/raresummit25/
November 5, 2025 at 12:13 PM
Reposted by GRACE Project
chcharityuk.bsky.social
🎉 Excited to be a showcase charity at Cambridge Rare Disease Network 10th Anniversary Summit! Our patient-led neurology project on HI explores family questions & aims to improve early screening, follow-up & support. Visit us at our stand, we would love you to get involved!
https://ow.ly/OjyI50Xi0HM
October 27, 2025 at 3:59 PM
Reposted by GRACE Project
camrare.bsky.social
📣 DON'T MISS OUT!
We’re going global, with a virtual option to attend #RAREsummit25 this Thurs 6 Nov!
Tickets give access to the auditorium talks, you'll be able to join interactive polls & Q&As with Slido
Check out the programme & ticket link here:
camraredisease.org/raresummit25
Graphic including a computer monitor showing a still image from rare summit 2019. Text reads: join us wherever you are in the world. Live stream.
November 4, 2025 at 7:40 PM
Reposted by GRACE Project
chcharityuk.bsky.social
🎃👻 This Halloween, let’s raise awareness for Congenital Hyperinsulinism (CHI).

Too much insulin = severe hypoglycemia, depriving the brain of glucose and leading to neurological harm.

Follow @CHCharityUK to learn more
#CongenitalHyperinsulinism #HyperinsulinismUK
October 31, 2025 at 9:00 AM
grace-project-uk.bsky.social
Some BTS photos of Emily Darlington, MP of Milton Keynes Central filming a video for The Generation Study, in partnership with @genomicsengland.bsky.social. 🎥🧬

@emily4mk.bsky.social
@openuniversity.bsky.social
@gensocuk.bsky.social
@kaustubhad.bsky.social
October 31, 2025 at 3:01 PM
grace-project-uk.bsky.social
An interesting riddle for those curious to know about consanguinity in 15th century. 🙃

The GRACE project is also involved in creating awareness about genetics and genetic conditions in families with consanguineous marriages in the UK.
matthewcobb.bsky.social Matthew Cobb @matthewcobb.bsky.social · Oct 28
Consanguity riddle from the 15th century: A count had twelve knights, all of whom had the same mother – four were his sons, four his brothers-in-law and four his sons-in-law. How could this be possible? Use these handy figures to work it out.
October 28, 2025 at 1:44 PM
Reposted by GRACE Project
genomicsengland.bsky.social
New research led by Genomics England highlights the need for greater diversity in genetic research to make genomics’ use in cancer care and screening more accurate and reliable for all.

Find out more: ow.ly/LOUj50Wcg2q
Greater genetic diversity needed to widen genomics benefits in cancer…
Find the contact, social media, service desk, and other important information for Genomics England.
ow.ly
June 20, 2025 at 2:53 PM
grace-project-uk.bsky.social
We are looking forward to this meeting! If you are going, come and say hello!
camrare.bsky.social Cambridge Rare Disease Network @camrare.bsky.social · Aug 5
Did you catch the latest about #RAREsummit25? - the programme is shaping up!
RAREsummit alumni, patients pitching research ideas, interactive workshops, networking dinner and more...
Read more here & grab your tickets before they're all snapped up!
www.camraredisease.org/raresummit25...
Catch a glimpse of the much anticipated RAREsummit25 programme.
Celebrating 10 years of progress and impact in rare diseases, the UK’s leading multi stakeholder RAREsummit returns to Cambridge
www.camraredisease.org
October 26, 2025 at 8:52 PM
grace-project-uk.bsky.social
Fantastic meeting full of fabulous talks and discussions on population genomic screening! And an @openuniversity.bsky.social staff reunion is always delightful!
October 26, 2025 at 8:40 PM
Reposted by GRACE Project
nuffieldfoundation.org
Delighted to see NELI, the Nuffield Early Language Intervention programme, described as an ‘education silver bullet’ by @beckyfrancis.bsky.social in @schoolsweek.bsky.social. NELI is a programme for reception pupils in England who need extra support with speech & language development. bit.ly/47CEtq3
‘I dream the curriculum every night’: Becky Francis profile
Becky Francis reflects on control, compromise, and finding the balance between ‘firebrand’ and 'technocrat'
bit.ly
October 22, 2025 at 4:18 PM
Reposted by GRACE Project
ukbiobank.bsky.social
💨 Data from over 300,000 UK Biobank participants show that air pollution can raise older people’s risk of a condition causing unbearably itchy skin.

Almost 16% of late-life eczema cases could be prevented by cutting air pollution in the worst-affected areas researchers estimate.
October 23, 2025 at 10:09 AM
Reposted by GRACE Project
genomicsengland.bsky.social
4 weeks after being born, Freddie was diagnosed with a rare form of eye cancer. He is one of numerous babies born with rare conditions who are receiving earlier diagnoses and treatment as a result of the Generation Study.

Read the full story: ow.ly/YJ7850XcTNk
Text saying 'The Generation Study is looking for more than 200 rare conditions which usually appear in the first few years of life, can be improved if caught early, and can be treated in the NHS.', with a green, a yellow and a pink circle below on a light green background. Text saying 'Four weeks after being born and having his genome sequenced, Freddie was diagnosed with hereditary retinoblastoma, a rare and aggressive form of eye cancer usually diagnosed in very young children.', and a photo of Freddie on a pink background. Text saying 'Very shortly after his diagnosis, Freddie was able to start treatment at Birmingham Children's Hospital. This gives doctors the best chance to minimise the impact on his vision.' and a photo of Freddie, his parents and sibling on a blue, yellow and pink background. Quote from Dr Rich Scott, Chief Executive Officer of Genomics England on a pink and white background saying “We believe genomics can transform healthcare in this country and be used to get ahead of serious illness. It’s been incredibly moving to see the lifechanging impact the Generation Study is having for families like Freddie’s, who have been able to access treatment that makes a world of difference soon after being born.”.
October 17, 2025 at 8:17 AM
Reposted by GRACE Project
emily4mk.bsky.social
It was great to speak with Dr Zoe Williams about the importance of regularly self-checking, it takes two minutes, once a month – if you notice something unusual speak to your GP.

Self-checking not on your to-do list this month? Make sure you set a reminder!
October 15, 2025 at 1:41 PM
Reposted by GRACE Project
mhealthuk.bsky.social
We’re thinking of you this #WorldMentalHealthDay.

Whether you're asking for help, supporting someone else, or simply getting through today, we’re here for you every step of the way.
Graphic titled "This World Mental Health Day, we're thinking of anyone who…" with eight illustrated icons. The icons represent experiencing trauma, being on a waiting list for support, navigating treatment, is facing stigma, or judgement, supporting a loved one's mental health, struggling to express feelings, needing better mental health support, and just trying to get through the day. Each concept is visually symbolised by simple, colourful icons such as an eye with a tear, a clock, confused question marks, speech bubbles around an ear, supportive hands, a pen on a notebook, a signpost, and an hourglass.
October 10, 2025 at 8:15 AM
Reposted by GRACE Project
camrare.bsky.social
The #RAREsummit25 agenda is live!
Packed with diverse voices, patient-driven insights & bold innovation.
www.camraredisease.org/raresummit25...
Grab your ticket to join us on 6 Nov to be part of the conversation & on't forget to book your dinner spot!

What are you most looking forward to?
An abstract image formed of an array of triangles in the shape of a forward facing arrow. Some of the triangles contain pictures from the previous summits, illustrating the talks, exhibitions and conversations. Text: Thurs 6 November at Hinxton Hall, Wellcome Genome Campus.
October 9, 2025 at 10:27 AM
grace-project-uk.bsky.social
The GRACE project was delighted to be part of this vibrant festival celebrating the diversity of Milton Keynes. We're excited to continue fostering greater participation from diverse communities in genetic research.
emily4mk.bsky.social Emily Darlington MP @emily4mk.bsky.social · Oct 8
This month is Milton Keynes City of Codes and Light Festival 2025 – a celebration of where science meets art, organised by Milton Keynes Islamic Arts and Culture.

I had the opportunity this weekend to see the breathtaking “Mind and Matter” projection at the Milton Keynes Central Library.
October 8, 2025 at 2:00 PM
Reposted by GRACE Project
emily4mk.bsky.social
October 2, 2025 at 5:00 PM
Reposted by GRACE Project
mft-edi.bsky.social
Black History Month — a time to honour legacy, celebrate brilliance, and amplify Black voices.
Throughout the month, we’ll be hosting events that shine a light on Black history, culture, and creativity. Stay tuned, get involved, and let’s make this month meaningful.
#BlackHistoryMonth #BHM2025
October 2, 2025 at 11:30 AM
grace-project-uk.bsky.social
A great opportunity to discuss genetics as well as the generation study through various activities with the wonderful students of Milton Keynes College.

@openuniversity.bsky.social @genomicsengland.bsky.social @gensocuk.bsky.social
September 27, 2025 at 4:38 PM
Reposted by GRACE Project
genomicsengland.bsky.social
Our research seminar this month will focus on the Generation Study, a landmark UK initiative exploring the feasibility, impact, and ethics of using whole-genome sequencing in newborn screening.

30 September, 14:00 - 15:00. Our seminars are open to everyone.

Register for free: ow.ly/eoEt50WYb46
Research Seminar: Harriet Etheredge, Dalia Kasperaviciute & Joanna…
Genomics England's monthly, free-to-attend talks presented by Research Network members on the latest research.
ow.ly
September 23, 2025 at 3:04 PM