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ghostiensg.bsky.social
GHOSTIE_NSG
@ghostiensg.bsky.social
23.
Visual Snow Syndrome.
Functional Vision Loss.
EC and RW, I forever love and miss both of you.
R.I.P. Kee Kee.
R.I.P. Grandma.
Reposted by GHOSTIE_NSG
Many people like myself have had to learn to live with this and adjust to the various symptoms that come with it while having nobody around that understands. My hope is that you will read this and visit www.visualsnowinitiative.org To learn more and possibly make a donation.
Home | Visual Snow Initiative
Visual Snow Syndrome (VSS) is a neurological condition that can affect vision, hearing, cognition, sensory processing, and overall quality of life.
www.visualsnowinitiative.org
August 5, 2025 at 3:17 AM
Reposted by GHOSTIE_NSG
As the condition is very rare there is currently not much research on it. My hope is that will change and someday I’ll see clearly again.
August 5, 2025 at 3:19 AM
Visual Snow Syndrome has ruined my life, but I keep pushing forward out of spite. I pray that one day a cure will surface.
August 9, 2025 at 1:59 PM