GHOSTIE_NSG
@ghostiensg.bsky.social
23.
Visual Snow Syndrome.
Functional Vision Loss.
EC and RW, I forever love and miss both of you.
R.I.P. Kee Kee.
R.I.P. Grandma.
Visual Snow Syndrome.
Functional Vision Loss.
EC and RW, I forever love and miss both of you.
R.I.P. Kee Kee.
R.I.P. Grandma.
Pinned
Reposted by GHOSTIE_NSG
Nobody tell him.
August 9, 2025 at 1:30 PM
Nobody tell him.
Reposted by GHOSTIE_NSG
Many people like myself have had to learn to live with this and adjust to the various symptoms that come with it while having nobody around that understands. My hope is that you will read this and visit www.visualsnowinitiative.org To learn more and possibly make a donation.
Home | Visual Snow Initiative
Visual Snow Syndrome (VSS) is a neurological condition that can affect vision, hearing, cognition, sensory processing, and overall quality of life.
www.visualsnowinitiative.org
August 5, 2025 at 3:17 AM
Many people like myself have had to learn to live with this and adjust to the various symptoms that come with it while having nobody around that understands. My hope is that you will read this and visit www.visualsnowinitiative.org To learn more and possibly make a donation.
Reposted by GHOSTIE_NSG
As the condition is very rare there is currently not much research on it. My hope is that will change and someday I’ll see clearly again.
August 5, 2025 at 3:19 AM
As the condition is very rare there is currently not much research on it. My hope is that will change and someday I’ll see clearly again.
Reposted by GHOSTIE_NSG
Today I want to draw attention to something that weighs heavily on me. In high school I was diagnosed with a rare condition called Visual Snow Syndrome. As its so rare there are currently no known treatments that even reduce the severity at all. I’ve seen several doctors that had no idea what VSS is
Home | Visual Snow Initiative
Visual Snow Syndrome (VSS) is a neurological condition that can affect vision, hearing, cognition, sensory processing, and overall quality of life.
www.visualsnowinitiative.org
August 5, 2025 at 3:16 AM
Today I want to draw attention to something that weighs heavily on me. In high school I was diagnosed with a rare condition called Visual Snow Syndrome. As its so rare there are currently no known treatments that even reduce the severity at all. I’ve seen several doctors that had no idea what VSS is