“This study provides first evidence of impaired respiratory interoception in patients with functional neurological disorder.”

* assoc w somatoform dissociation
* novel respiratory resistance sensitivity task
* “group difference further remains after controlling for trait anxiety scores”

Link 👇

🧠 Study exploring new FND treatment! We’re exploring patient views on Brain-Computer Interfaces (BCIs) for #FND rehab.

✅ 18+

✅ Diagnosed w/ motor FND (e.g. weakness, tremor)

📝 10-min survey and educational video: qualtrics.kcl.ac.uk/jfe/form/SV_...

📎 Poster below #FNDresearch #BCI

Thank you Jenee Hughes and Hindsight Retro Podcast for spreading awareness about FND - Debugging a Brain open.substack.com/pub/hindsigh...

Alberta, Canada
The Alberta petition to improve care and treatment for #FND patients in the province is below. An important initiative by Esther Peters for Alberta 👏
Please print, sign, and return to Esther. Thank you for you support!!!
➡️ drive.google.com/file/d/18L_n...

The cost of ignoring FND patients is immeasurable—lives lost in silence, potential research halted, and trust in healthcare eroded. It's time for the medical community to step up, listen, and create real pathways to care. #FNDawareness #HealthEquity"

Children/teen with #FND continue facing barriers to care

www.sciencedirect.com/science/arti...

Jen is continuing to recruit Canadian 🇨🇦 FND candidates for her research project until the end of March 2025. See detail below.

I still think, from personal experience w the condition as well as the literature, that FND could offer a lot of insight into how brain function works generally.

New editorial in @PracticalNeurol on the pitfalls of diagnostic signs in FND - a short thread...

pn.bmj.com/content/earl...

🇨🇦Susan Brown’s letter to the Minister of Health of Canada 🇨🇦

Gross delays in access to care with longterm, debilitating consequences for thousands of Canadians. Shine a light on this medical blind spot.
#FND
#FNDawareness
#StopTheHarm
#Health

drive.google.com/file/d/1Kjrp...

Justin Trudeau prorogued parlement in 🇨🇦, delaying our chance to present the #FND petition this winter. Signatures will continue to be collected until the session reopens on March 24th. Let’s keep pushing for support & awareness! Your signature matters⬇️

fndtogether.com/en/petitions/

practicalneurology.com/articles/202...

FND research study-online survey (adults population)
FND patients outside of Ireland can participate

Link : psychologygalway.qualtrics.com/jfe/form/SV_...

Non partisan FND petition for Canadians 🇨🇦

Due to the ongoing post office strike in Canada, please forward your signatures via private courier (FedEx/UPS) before Dec 31, 2024. Thank you for your support.
Petition

fndtogether.com/en/petitions/

I've put together a starter pack for the FND science community.

Please repost to share the link and do let me know of folks I've missed so I can add them to the group.

Thanks everyone 🙏

🧵 1/

Note….Candidates are required to have “sufficient fluency in French” to participate in this FND trial

clinicaltrials.gov/study/NCT064...