FND Portal
@fndportal.bsky.social
A person with Functional Neurological Disorder. News and musings on FND, disability, and brain science. Contributing to projects at AAN, FNDS, UCL, NHNN. When we work together we can change it for the better. He/him.
I think it’s really important to both
1) continue to question our assumptions and look at the foundational beliefs we bring to the table
2) continually improve research + analysis methods over time
IMHO, This is the way ❤️
1) continue to question our assumptions and look at the foundational beliefs we bring to the table
2) continually improve research + analysis methods over time
IMHO, This is the way ❤️
November 10, 2025 at 12:05 AM
I think it’s really important to both
1) continue to question our assumptions and look at the foundational beliefs we bring to the table
2) continually improve research + analysis methods over time
IMHO, This is the way ❤️
1) continue to question our assumptions and look at the foundational beliefs we bring to the table
2) continually improve research + analysis methods over time
IMHO, This is the way ❤️
And we’re still having to argue against allegations of faking, secondary gain, argue for better models than “conversion”, etc, 100 years later, to overcome some highly… let’s say “edited”… accounts of a sample size of patients that would fit in a bus
November 9, 2025 at 11:52 PM
And we’re still having to argue against allegations of faking, secondary gain, argue for better models than “conversion”, etc, 100 years later, to overcome some highly… let’s say “edited”… accounts of a sample size of patients that would fit in a bus
The kindest thing I can say here is that your guest seems to mean well but appears not to be aware of current patient or research perspectives (beyond caricaturing them briefly?).
If I were on a panel with this person, I would not let these assertions pass unchallenged.
If I were on a panel with this person, I would not let these assertions pass unchallenged.
November 9, 2025 at 11:39 PM
The kindest thing I can say here is that your guest seems to mean well but appears not to be aware of current patient or research perspectives (beyond caricaturing them briefly?).
If I were on a panel with this person, I would not let these assertions pass unchallenged.
If I were on a panel with this person, I would not let these assertions pass unchallenged.
I should say that I genuinely appreciate you highlighting this condition and raising awareness!
But come on: “If they’re not getting better, I wonder about malingering component.” Would we say this of anyone w any other dx?
But come on: “If they’re not getting better, I wonder about malingering component.” Would we say this of anyone w any other dx?
November 9, 2025 at 11:38 PM
I should say that I genuinely appreciate you highlighting this condition and raising awareness!
But come on: “If they’re not getting better, I wonder about malingering component.” Would we say this of anyone w any other dx?
But come on: “If they’re not getting better, I wonder about malingering component.” Would we say this of anyone w any other dx?
There are also more modern conceptual nations of the disorder.
We don’t have to, and shouldn’t, keep going back to Freud for everything.
pmc.ncbi.nlm.nih.gov/articles/PMC...
We don’t have to, and shouldn’t, keep going back to Freud for everything.
pmc.ncbi.nlm.nih.gov/articles/PMC...
A Framework for Understanding the Pathophysiology of Functional Neurological Disorder
The symptoms of functional neurological disorder (FND) are a product of its pathophysiology. The pathophysiology of FND is reflective of dysfunction within and across different brain circuits that, in turn, affects specific constructs. In this ...
pmc.ncbi.nlm.nih.gov
November 9, 2025 at 11:32 PM
There are also more modern conceptual nations of the disorder.
We don’t have to, and shouldn’t, keep going back to Freud for everything.
pmc.ncbi.nlm.nih.gov/articles/PMC...
We don’t have to, and shouldn’t, keep going back to Freud for everything.
pmc.ncbi.nlm.nih.gov/articles/PMC...
I’m about 8 minutes in, and my first impression is:
* FND should not be dxed via exclusion
* “No cause found” also not appropriate
* framing FND as a “defense” is weak and unsupported
* the debate of neuro vs psych is a misnomer - it’s a brain condition. Neuro + psych are careers not natural kinds
* FND should not be dxed via exclusion
* “No cause found” also not appropriate
* framing FND as a “defense” is weak and unsupported
* the debate of neuro vs psych is a misnomer - it’s a brain condition. Neuro + psych are careers not natural kinds
November 9, 2025 at 11:30 PM
I’m about 8 minutes in, and my first impression is:
* FND should not be dxed via exclusion
* “No cause found” also not appropriate
* framing FND as a “defense” is weak and unsupported
* the debate of neuro vs psych is a misnomer - it’s a brain condition. Neuro + psych are careers not natural kinds
* FND should not be dxed via exclusion
* “No cause found” also not appropriate
* framing FND as a “defense” is weak and unsupported
* the debate of neuro vs psych is a misnomer - it’s a brain condition. Neuro + psych are careers not natural kinds
Failing is part of the plan. 🙏
November 9, 2025 at 4:39 PM
Failing is part of the plan. 🙏
That’s very good news indeed! Glad you’re starting things off with someone who knows the condition, I’ll be cheering for you!
November 4, 2025 at 4:50 PM
That’s very good news indeed! Glad you’re starting things off with someone who knows the condition, I’ll be cheering for you!
And even though he’s impacted my life incalculably for the better, I know that I can only see a small slice of what Dr. Mark Hallett meant to his colleagues, and to other disabled people around the world.
We’ve lost a lion.
Rest in peace, Dr. Hallett.
We’ve lost a lion.
Rest in peace, Dr. Hallett.
November 4, 2025 at 4:49 PM
And even though he’s impacted my life incalculably for the better, I know that I can only see a small slice of what Dr. Mark Hallett meant to his colleagues, and to other disabled people around the world.
We’ve lost a lion.
Rest in peace, Dr. Hallett.
We’ve lost a lion.
Rest in peace, Dr. Hallett.
I finally got to thank him, 7 years later, at the 2024 Functional Neurological Disorder Society meeting in Verona.
November 4, 2025 at 4:48 PM
I finally got to thank him, 7 years later, at the 2024 Functional Neurological Disorder Society meeting in Verona.
But that’s not who Mark Hallett was to me.
To me, he was the doctor who actually cared enough to take the case, to actually figure out the problem, and to support patients w little-known conditions no one else would look at.
To me, he was the doctor who actually cared enough to take the case, to actually figure out the problem, and to support patients w little-known conditions no one else would look at.
November 4, 2025 at 4:48 PM
But that’s not who Mark Hallett was to me.
To me, he was the doctor who actually cared enough to take the case, to actually figure out the problem, and to support patients w little-known conditions no one else would look at.
To me, he was the doctor who actually cared enough to take the case, to actually figure out the problem, and to support patients w little-known conditions no one else would look at.
He mentored countless clinicians and researchers at the NIH’s Human Motor Control Unit.
He served as President of the Movement Disorder Society, FND Society, and more.
He received, and earned, too many awards to count.
He served as President of the Movement Disorder Society, FND Society, and more.
He received, and earned, too many awards to count.
November 4, 2025 at 4:47 PM
He mentored countless clinicians and researchers at the NIH’s Human Motor Control Unit.
He served as President of the Movement Disorder Society, FND Society, and more.
He received, and earned, too many awards to count.
He served as President of the Movement Disorder Society, FND Society, and more.
He received, and earned, too many awards to count.
It was only later that I learned about the Dr. Hallett that everyone else seemed to know – the world’s most-cited contemporary neurologist, pioneer in the field of transcranial magnetic stimulation (TMS), investigator of the neurobiological basis of free will.
November 4, 2025 at 4:46 PM
It was only later that I learned about the Dr. Hallett that everyone else seemed to know – the world’s most-cited contemporary neurologist, pioneer in the field of transcranial magnetic stimulation (TMS), investigator of the neurobiological basis of free will.