FND Portal
@fndportal.bsky.social
A person with Functional Neurological Disorder. News and musings on FND, disability, and brain science. Contributing to projects at AAN, FNDS, UCL, NHNN. When we work together we can change it for the better. He/him.
I'm heartbroken to learn of the passing of Dr. Mark Hallett.
A few thoughts in remembrance…
A few thoughts in remembrance…
November 4, 2025 at 4:44 PM
I'm heartbroken to learn of the passing of Dr. Mark Hallett.
A few thoughts in remembrance…
A few thoughts in remembrance…
Final week of my first neuro class. Let’s get it 💪
October 12, 2025 at 3:37 PM
Final week of my first neuro class. Let’s get it 💪
I’m back! And starting to catch up.
Recovering nicely and spent a little time with the palm trees
Recovering nicely and spent a little time with the palm trees
October 6, 2025 at 10:52 PM
I’m back! And starting to catch up.
Recovering nicely and spent a little time with the palm trees
Recovering nicely and spent a little time with the palm trees
Just found my notes from the day I got a call from the NIH’s Undiagnosed Disease Network, telling me I’d been accepted to the program and that they had a dx they’d like to test.
First time I’d ever heard of FND.
Written in my notebook for the intro neuroscience book (Bear et al) I was working thru
First time I’d ever heard of FND.
Written in my notebook for the intro neuroscience book (Bear et al) I was working thru
September 21, 2025 at 4:18 PM
Just found my notes from the day I got a call from the NIH’s Undiagnosed Disease Network, telling me I’d been accepted to the program and that they had a dx they’d like to test.
First time I’d ever heard of FND.
Written in my notebook for the intro neuroscience book (Bear et al) I was working thru
First time I’d ever heard of FND.
Written in my notebook for the intro neuroscience book (Bear et al) I was working thru
Friends with functional seizures: please consider participating in this important study!
University of Sheffield researchers are working to develop a seizure severity measure for folks w FND seizures.
Details below - please share!
sheffieldpsychology.eu.qualtrics.com/jfe/form/SV_...
University of Sheffield researchers are working to develop a seizure severity measure for folks w FND seizures.
Details below - please share!
sheffieldpsychology.eu.qualtrics.com/jfe/form/SV_...
September 17, 2025 at 2:02 PM
Friends with functional seizures: please consider participating in this important study!
University of Sheffield researchers are working to develop a seizure severity measure for folks w FND seizures.
Details below - please share!
sheffieldpsychology.eu.qualtrics.com/jfe/form/SV_...
University of Sheffield researchers are working to develop a seizure severity measure for folks w FND seizures.
Details below - please share!
sheffieldpsychology.eu.qualtrics.com/jfe/form/SV_...
Feedback I've heard from folks with FND so far has run similarly - "we're not wild about it, but yeah, OK. Good enough."
Given the substantial diversity of opinion, that seems like a win to me.
Now let's move on to working out improved diagnostics and treatments for this debilitating condition.
Given the substantial diversity of opinion, that seems like a win to me.
Now let's move on to working out improved diagnostics and treatments for this debilitating condition.
September 4, 2025 at 1:06 PM
Feedback I've heard from folks with FND so far has run similarly - "we're not wild about it, but yeah, OK. Good enough."
Given the substantial diversity of opinion, that seems like a win to me.
Now let's move on to working out improved diagnostics and treatments for this debilitating condition.
Given the substantial diversity of opinion, that seems like a win to me.
Now let's move on to working out improved diagnostics and treatments for this debilitating condition.
First, the background:
Functional / dissociative seizures are an extremely brutal neurological condition.
Science has known about them since at least the 1800s. They were known back then (grossly) as "Hysteria," an umbrella label that incorporated other functional disorders too.
Functional / dissociative seizures are an extremely brutal neurological condition.
Science has known about them since at least the 1800s. They were known back then (grossly) as "Hysteria," an umbrella label that incorporated other functional disorders too.
September 4, 2025 at 12:42 PM
First, the background:
Functional / dissociative seizures are an extremely brutal neurological condition.
Science has known about them since at least the 1800s. They were known back then (grossly) as "Hysteria," an umbrella label that incorporated other functional disorders too.
Functional / dissociative seizures are an extremely brutal neurological condition.
Science has known about them since at least the 1800s. They were known back then (grossly) as "Hysteria," an umbrella label that incorporated other functional disorders too.
Hey folks.
ILAE's International Epilepsy Congress is now concluded (great meeting!), so I thought I'd share a few highlights from my talk on Functional / Dissociative Seizures (FDS).
The full talk (and recording) belong to ILAE, but here are some of the key points!
ILAE's International Epilepsy Congress is now concluded (great meeting!), so I thought I'd share a few highlights from my talk on Functional / Dissociative Seizures (FDS).
The full talk (and recording) belong to ILAE, but here are some of the key points!
September 4, 2025 at 12:39 PM
Hey folks.
ILAE's International Epilepsy Congress is now concluded (great meeting!), so I thought I'd share a few highlights from my talk on Functional / Dissociative Seizures (FDS).
The full talk (and recording) belong to ILAE, but here are some of the key points!
ILAE's International Epilepsy Congress is now concluded (great meeting!), so I thought I'd share a few highlights from my talk on Functional / Dissociative Seizures (FDS).
The full talk (and recording) belong to ILAE, but here are some of the key points!
Excellent talk by Sarah Barnard (hope I’m spelling correctly) on the Human Epilepsy Project.
Very interesting review of neuropsychiatric risk factors - once again “neurological” and “psychiatric” risk factors are together in the brain.
Very interesting review of neuropsychiatric risk factors - once again “neurological” and “psychiatric” risk factors are together in the brain.
September 2, 2025 at 2:39 PM
Excellent talk by Sarah Barnard (hope I’m spelling correctly) on the Human Epilepsy Project.
Very interesting review of neuropsychiatric risk factors - once again “neurological” and “psychiatric” risk factors are together in the brain.
Very interesting review of neuropsychiatric risk factors - once again “neurological” and “psychiatric” risk factors are together in the brain.
We nailed it. Great work everyone and thanks for having me on the panel!
September 2, 2025 at 9:01 AM
We nailed it. Great work everyone and thanks for having me on the panel!
I’ll be speaking on the (new!) terminology of Functional / Dissociative Seizures today at ILAE’s International Epilepsy Conference.
4:45 Lisbon time.
See if you can find me!
4:45 Lisbon time.
See if you can find me!
September 1, 2025 at 8:54 AM
I’ll be speaking on the (new!) terminology of Functional / Dissociative Seizures today at ILAE’s International Epilepsy Conference.
4:45 Lisbon time.
See if you can find me!
4:45 Lisbon time.
See if you can find me!
The mighty @epilepsysparks.bsky.social Torie is up now!
Talking patient education and seizure management, how to improve quality of life
Talking patient education and seizure management, how to improve quality of life
August 31, 2025 at 11:27 AM
The mighty @epilepsysparks.bsky.social Torie is up now!
Talking patient education and seizure management, how to improve quality of life
Talking patient education and seizure management, how to improve quality of life
Lifetime Achievement Award to Guilio Avanzini, who reflects on 60 years of progress in basic and clinical epilepsy science.
He dedicates the award to his late wife, who was also a neurologist. ❤️
He dedicates the award to his late wife, who was also a neurologist. ❤️
August 30, 2025 at 6:34 PM
Lifetime Achievement Award to Guilio Avanzini, who reflects on 60 years of progress in basic and clinical epilepsy science.
He dedicates the award to his late wife, who was also a neurologist. ❤️
He dedicates the award to his late wife, who was also a neurologist. ❤️
This is not a drill - live Fado music at the ceremony!
August 30, 2025 at 6:19 PM
This is not a drill - live Fado music at the ceremony!
August 30, 2025 at 5:32 PM
Made it to Lisbon!
Stay tuned
Stay tuned
August 29, 2025 at 7:44 PM
Made it to Lisbon!
Stay tuned
Stay tuned
It’s happening very soon! ✈️
I’ll be in Lisbon at ILAE’s International Epilepsy Congress 2025 talking functional seizures (and, critically, discussing *how* we talk about functional seizures). 🧠
See you there, nerds!*
*(complimentary)
I’ll be in Lisbon at ILAE’s International Epilepsy Congress 2025 talking functional seizures (and, critically, discussing *how* we talk about functional seizures). 🧠
See you there, nerds!*
*(complimentary)
August 28, 2025 at 1:14 AM
It’s happening very soon! ✈️
I’ll be in Lisbon at ILAE’s International Epilepsy Congress 2025 talking functional seizures (and, critically, discussing *how* we talk about functional seizures). 🧠
See you there, nerds!*
*(complimentary)
I’ll be in Lisbon at ILAE’s International Epilepsy Congress 2025 talking functional seizures (and, critically, discussing *how* we talk about functional seizures). 🧠
See you there, nerds!*
*(complimentary)
You cannot seriously look at places like NYC, DC, Boston, etc and say that crime is worse now. Or even as national averages
August 16, 2025 at 4:20 PM
You cannot seriously look at places like NYC, DC, Boston, etc and say that crime is worse now. Or even as national averages
Friends, some upcoming special programming:
From Aug 30-Sep 3, I'll be at the International Epilepsy Congress in Lisbon - the largest international conference on epilepsy!
And with that, you'll be seeing some different stuff from me 👇
From Aug 30-Sep 3, I'll be at the International Epilepsy Congress in Lisbon - the largest international conference on epilepsy!
And with that, you'll be seeing some different stuff from me 👇
August 16, 2025 at 2:29 PM
Friends, some upcoming special programming:
From Aug 30-Sep 3, I'll be at the International Epilepsy Congress in Lisbon - the largest international conference on epilepsy!
And with that, you'll be seeing some different stuff from me 👇
From Aug 30-Sep 3, I'll be at the International Epilepsy Congress in Lisbon - the largest international conference on epilepsy!
And with that, you'll be seeing some different stuff from me 👇
Folks, Jordan Peterson is happening again
August 14, 2025 at 6:26 PM
Folks, Jordan Peterson is happening again
I’d say that trend is moving in the right direction, wouldn’t you?
Recovery continues. The neural principles work.
Recovery continues. The neural principles work.
July 25, 2025 at 2:08 PM
I’d say that trend is moving in the right direction, wouldn’t you?
Recovery continues. The neural principles work.
Recovery continues. The neural principles work.