There are #MillionsMissing from their lives. WE NEED MORE FUNDING

Today is ME awareness day. Will @wesstreeting.bsky.social
@ashleydaltonmp.bsky.social
#FundThePlan?

@meactionuk.bsky.social
@thereforme.bsky.social
#DisabilitySOS
@alancampbellmp.bsky.social
@nihr.bsky.social

2/3

Seismic cuts are being made to research funding, healthcare, and disability services in the U.S. for this scandalously underfunded life-destroying disease.

Use the toolkit to participate any way you can (US version)

ow.ly/zHJX50VQmBX

www.meactions.org/millionsmiss...

#pwME #pwLC

Comprehensive new study on GLP-1 receptor agonists’ effects on health, AND a promise of more research in the pipeline wrt #LongCovid 🤞🏻

Also important to spread the word that for people with *pre-existing ME/CFS (or long covid), flu vaccination carries a significant risk. The @meassociation.bsky.social has a good booklet on this.

meassociation.org.uk/2024/10/upda...

Bad news for UK ppl waiting for Novavax

#pwLC #pwME

Thank you to the amazing @swastrosarah.bsky.social and @binitakane.bsky.social for speaking so eloquently on the bbc this morning about severe #ME and how Maeve was failed by the health system

This concise description sums up why conditions like #MECFS and #longcovid are not just ‘chronic fatigue’

- Updated pfizer and moderna JN.1 vaccines now approved by MHRA for use in UK

- It’s not clear whether these or the stockpile of outdated XBB.1.5 vaccines will be used by govt for autumn booster campaign

- Novavax has filed for MHRA authorisation for its JN.1 vax, this has not yet been approved

I think this headline is misleading - it’s actually 1/20 ppl with symptomatic COVID infection who still have symptoms at 1 year - frequency of LC patients with >1yr symptoms will be much higher