Sami Berry
fighting-4-me.bsky.social
Sami Berry
@fighting-4-me.bsky.social
Advocate for disabled people, campaigning for change for those with MCAS, cPOTS with mutli-systemic Dysautomnia, EDS, SevereME, Haemophilia, Gastroparisis and the list goes on.

Trying to make change within the health care system!
I’m still trying to get use to Bluesky, it feels like the original twitter but I’m not sure I’m doing so well with it.

What would you recommend for a newbie on here?
April 9, 2025 at 7:29 PM
Reposted by Sami Berry
February 10, 2025 at 5:56 PM
Reposted by Sami Berry
When you are chronically or mentally ill you get a lot of peer pressure to try weird cures
#chronicillness #chronicillnessmemes #chronicillnesshumor
January 26, 2025 at 2:51 PM
When you have chronic illness, that’s all people see. They seem to forget that you are not defined by bad health, it’s just a part of who I am that takes up a lot of time but I’m more than that. I play many instruments, I love art and have a business.

We are more than our diagnosis ❤️
February 10, 2025 at 7:44 AM
So my father-in-law bought me a t-shirt for Christmas as he thought I could use it for any hospital or doctors appointments.

Had me laughing. Just says;

Papa
India
Sierra
Sierra

Oscar
Foxtrot
Foxtrot

Now this will go under a sweater until the doctors gaslight me and then boom 💥😂

Got to laugh!
January 30, 2025 at 9:26 AM
So my darling mum who passed away in November was laid to rest last Wednesday was the hardest day of my life.

Now we have found out that the coroner has reported as an unnatural death with significant head injury. She was in a ‘care’ home, using the word care very loosely. Kings Lodge home!
January 15, 2025 at 10:14 AM
When you push too hard because you have no choice, it’s a fine line between listening to your body and doing what is right. I’ve been dealing with very bad health for decades and it still doesn’t get easier 🫣 #BurnOut #MEcfs #EDS #Grief
December 8, 2024 at 1:30 AM
I’ve been in mourning for my darling mam for the past year, she passed away just over two weeks ago and you’d think it would be just as normal.

It’s not normal to have the police involved or a coroners inquest because nobody gets a significant bleed to the brain from sleeping funny!

Why?! #RIPMam
December 3, 2024 at 11:53 AM
Hello, you lovely lot!

Now what’s this Bluesky all about? I have no idea what I’m doing but that is just my norm! 🫣😂
November 26, 2024 at 2:02 AM