It's ME(Jaime)
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exceedhergrasp1.bsky.social
It's ME(Jaime)
@exceedhergrasp1.bsky.social
16K followers 3.8K following 20K posts
Scientific Director, #MEAction
Stanford Med
Université de Montréal
TIME100 Health 2024
#ME, #EDS, #POTS, #LongCOVID
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exceedhergrasp1 on Twitter
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exceedhergrasp1.bsky.social
If there's a better encapsulation of the past ten years, I haven't read it:
Highlighted text reads, "To take only one near example, most everyone at the moment seems to need, quite reasonably, two not wholly compatible things: to return to a ballasting sense of some continuity, some normalcy, in the texture of things, so that we might in this way stay attached to the world in its dailiness, where so many of our struggles are sure to transpire; and, with this, to resist, absolutely and implacably, any least normalization of this, our new Nonconsensual Real..." Full text reads: "Anger and fear, yes. But, with these, a tremendous nauseating uncertainty. It ramifies, this stunned unknowing, in dozens of directions at once, and brings with it this sickening sense of the world slewing unstoppably toward some still more malignant and cruel version of itself. To take only one near example, most everyone at the moment seems to need, quite reasonably, two not wholly compatible things: to return to a ballasting sense of some continuity, some normalcy, in the texture of things, so that we might in this way stay attached to the world in its dailiness, where so many of our struggles are sure to transpire; and, with this, to resist, absolutely and implacably, any least normalization of this, our new Nonconsensual Real, presided over by the Short-Fingered Führer. Nothing about how to execute this double-move is easy or self-evident. (For a few days there, Facebook, where over the years I’d taken such solace, became a cauldron of aggro micro-distinction, as justly frightened and angry people set upon one another for leaning just a bit too far to one side or the other of this impossible toggle.) We’re all out here, in real time, trying in our different ways to figure out how the fuck to do it."
November 9, 2025 at 1:14 PM
exceedhergrasp1.bsky.social
Just gave the talk!! (Whew.) Sabrina said "please go slowly for the interpreter" and that added five minutes, just goes to show how quickly I usually talk!
Me, a white woman with long curly brown hair, wearing a pinkish button-down with a brown and black jacket
November 5, 2025 at 7:00 PM
exceedhergrasp1.bsky.social
Muahaha
Brian PJ Cronin ‪@brianpjcronin.bsky.social‬ says, Find someone who loves you the way Curtis Silwa loves cats and telling Andrew Cuomo to go fuck himself ‪Olúfẹ́mi O. Táíwò‬ ‪@olufemiotaiwo.bsky.social's post is quoted:‬ according to @jessyedwards.bsky.social of @hellgatenyc.com Curtis Sliwa just said on stage that he was offered $10 million to drop out of the race
November 5, 2025 at 2:59 AM
exceedhergrasp1.bsky.social
Dusenbery highlights the astonishing underfunding of conditions that affect more women than men.
According to the Chronic Pain Research Alliance, vulvodynia, temporomandibular joint disorders, interstitial cystitis, fibro, endometriosis, irritable bowel syndrome, chronic tension-type headache, chronic migraine, chronic low back pain, and myalgic encephalomyelitis research received just $100M total from the NIH in 2014. They estimated that is an average investment of just $1.06 per affected patient. (By comparison, the NIH spends about $35 on each person with diabetes.)
November 4, 2025 at 6:54 PM
exceedhergrasp1.bsky.social
Looks on purpose but that's lies.
Me with my hair blowing back from my face dramatically
October 31, 2025 at 9:08 PM
exceedhergrasp1.bsky.social
Real costume time! Awaiting the tiny ones in Baltimore
Me in a white dress with elaborate jewelery and a red velvet scarf with fringes. A medieval Ren Faire kinda thing
October 31, 2025 at 9:04 PM
exceedhergrasp1.bsky.social
They say you don't know what you've got til it's gone. If you don't want to envision a future that doesn't #SaveMedicaid and the #ACA, join us in contacting your Congressperson. Tell them only they can save American Healthcare! @meactnet.bsky.social
Jaime wearing all black stands before a misty spooky graveyard with trees in the background. Beside her is a gravestone that reads, "HERE LIES MEDICAID, 1965-2025" and above her it reads in large, white spooky letters, "DON'T MOURN MEDICAID! ACT, BEFORE IT'S TOO LATE!"
October 31, 2025 at 8:11 PM
exceedhergrasp1.bsky.social
The page that said ketotifen is antiserotinergic shouldn't have implied that's the case, clinically:
In addition, ketotifen has weak anticholinergic and antiserotonergic activity.[72][80] However, at the dosages in which it is typically used clinically, both the anticholinergic and antiserotonergic activity of ketotifen are said not to be appreciable.[81] (From Wikipedia page on ketotifen)
October 31, 2025 at 3:16 AM
exceedhergrasp1.bsky.social
Hope everyone's doing okay out there!
A parakeet with fluffy pastel rainbow bubble background. The parakeet has its little mouth open seemingly in joy. Above in black letters it says, "Have that meltdown. You've earned it." Unfortunately the credit on the lower RH corner is a bit blurred.
October 28, 2025 at 2:49 PM
exceedhergrasp1.bsky.social
I just read what other ppl write, in neurology
Two panel comic of a guy in a tie and dress shirt. First panel has him with folded arms, thinking; he looks a little conflicted. Second has him throwing his hands in the air shouting, I GUESS! A very reluctant, frustrated agreement meme
October 27, 2025 at 3:15 PM
exceedhergrasp1.bsky.social
OK, like... this is the problem... we didn't "believe" that up til now! What?!

Of course the brain can run on fatty acids in certain circumstances-- what an odd opening statement. This is in Nature, tho, so I must be missing something
Abstract Although fatty acids support mitochondrial ATP production in most tissues, neurons are believed to rely exclusively on glucose for energy.
October 27, 2025 at 12:32 PM
exceedhergrasp1.bsky.social
Stumbled across "Jesus from Texas" and the lyrics shot me dead.
My mom turned 18 in the 1960s, and she doesn't remember Stonewall To be fair, she can't have known I'd be her kid That the bricks launched at police would compel me to exist And I think about that now down the ballot Of the ones I love and I don't know, yet I voted for you Oh, what a terrible honor it is To watch the sky fall as a character witness
October 21, 2025 at 7:58 PM
exceedhergrasp1.bsky.social
It's too Saturday for this
jaimes (8:00am) @channel Friday night massacre at CDC, incluidng those who create the Morbidity and Mortality Weekly Report Because of recent CDC events, to be clear, that refers to a large number of people being fired at once
October 11, 2025 at 12:02 PM
exceedhergrasp1.bsky.social
I could be wrong, having never experienced it from the other side, but I think women may face even more pressure to look kind and welcoming than men.

The result is that when I get tired or lose patience, I'm just like, "OK no masking for u", and all "pleasantness" drops away at once.
From (I think!) an old Pokemon game. Old Nintendo-lookin' font in a little stylized text box that reads, "It's super effective!"
October 10, 2025 at 1:07 AM
exceedhergrasp1.bsky.social
🙄 subtle
from CNN, "Former FBI Director James Comey Enters Not Guilty Plea; Trial Set for January 5"
October 8, 2025 at 4:09 PM
exceedhergrasp1.bsky.social
it's used for people undergoing chemo

it is not, in itself, chemo

www.ncbi.nlm.nih.gov/books/NBK553...
Continuing Education Activity Leucovorin is a medication used in the treatment of methotrexate toxicity and chemotherapy regimens. Leucovorin is a folate analog. This activity reviews the indications, action, and contraindications for leucovorin as a valuable agent in the reversal of methotrexate toxicity and as a part of chemotherapy regimens. This activity will highlight the mechanism of action, adverse event profile, and other key factors pertinent to members of the healthcare team in the management of patients on leucovorin therapy.
September 23, 2025 at 8:03 PM
exceedhergrasp1.bsky.social
@lebvantine (on old Twitter) says: "Good morning ladies. On today's episode of "What Object Am I?", we are currency!" (The original said, "we are vehicles")
September 23, 2025 at 12:12 PM
exceedhergrasp1.bsky.social
LOTR meme with Gimli and Legolas Gimli: Never thought I'd be fighting side-by-side with an insurance company Legolas: What about side-by-side with a friend? G: Don't push your luck
September 22, 2025 at 10:29 PM
exceedhergrasp1.bsky.social
I mean...
Same user as quoted, muted and blocked by every labeler known to man. Specifically muted by "Psyops, Dommers, Conspiracy Theorists, and Trolls", blcked by "Trolls / TriggerinTheLibz", Jonathan Chait Follower, Matt Yglesias Follower...
September 21, 2025 at 9:12 PM
exceedhergrasp1.bsky.social
Going to Bsky to insult Bsky remains a winning strategy
‪Shadi Hamid‬ ‪@shadihamid.bsky.social‬· 2d One of the biggest mistakes left-of-center pundits and influencers made was decamping to Bluesky. They made themselves irrelevant, shrunk their audiences, and dramatically lessened the positive impact they could have on our public debate at the precise time we needed it most. With 683 replies, 322 shares (all but one of them quotes) and NINETEEN likes.
September 20, 2025 at 8:43 PM
exceedhergrasp1.bsky.social
I am NOT trying to dampen people's enthusiasm for protest or boycott but I admit I am like, "Kimmel? KIMMEL. That's what it takes?"
The scene from The Good Place where Jason is the one who figures it out. Ted Danson's character says, "this is a real low point. Yeah, this one hurts."
September 18, 2025 at 11:48 PM
exceedhergrasp1.bsky.social
And this is why schizophrenic people like to smoke!

(But they should really be given cholinergic medications to avoid the lung cancer of it all.)
A total of 3259 studies were screened and 61 met eligibility criteria for the systematic review, including 8 in vivo neuroimaging and 53 post-mortem studies. About 74% of these studies described significant alterations, most often reductions in either muscarinic or nicotinic receptor levels in schizophrenia.
September 18, 2025 at 11:17 PM
exceedhergrasp1.bsky.social
Oof. Nothing I love more than a panel of white male decisionmakers determining the fate of those with an illness that affects more women than men.

Todd Young has said some encouraging things in the past, so it's not all bad news.
Washington-- Sept 17, 2025 - HHS Secretary RFK Jr will lead two roundtable discussions to drive actionable steps against Long COVID in the US-- one focused on patient experiences and the other on research. The event underscores the Trump admin's committment to confronting the "invisible illnesses" that affect millions of Americans. Lists those involved inc. RFK Jr, Jay Battacharya, FDA Commissioner Marty Makary, and Sens Roger Marshall (R-KS), Todd Young (R-IN), Jack Bergman (R-MI). Pts, med prof, providers, and others researching treating and who have been affected by Long COVID
September 18, 2025 at 2:34 PM
exceedhergrasp1.bsky.social
So RFK Jr's HHS released a video on Twitter/X saying to the public one thing about public health, without consulting anyone at CDC, about vaccine schedules/vaccination in kids and pregnant people

And then, when asked for it in writing, HHS presented a totally different story.
This is fine meme with a dog in a little hat with a cup of coffee surrounded by flames in his apartment.
September 17, 2025 at 9:43 PM
exceedhergrasp1.bsky.social
Eyeconic

(I'm sorry, I'll show myself out)
Mr. Benedick, the villain from the Last Action Hero, lowers his sunglasses to show a glass eye with a smiley-face pupil in place of his left one.
September 16, 2025 at 11:01 PM