EveryLife Foundation for Rare Diseases
@everylifeorg.bsky.social
We empower the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments, and cures.
The Senate LHHS appropriations report language has been released, and we are thrilled that some of our NCATS report language is included! The research from the National Center for Advancing Translational Sciences plays an important role in delivering rare disease innovation.
July 31, 2025 at 8:17 PM
The Senate LHHS appropriations report language has been released, and we are thrilled that some of our NCATS report language is included! The research from the National Center for Advancing Translational Sciences plays an important role in delivering rare disease innovation.