‼️The House of Representatives has passed the Give Kids a Chance Act (H.R. 1262)‼️

You made this happen! To learn more, visit our website ➡️ everylifefoundation.org/the-everylif...

Tell your Senator to support the Give Kids a Chance Act now ➡️ everylifefoundation.quorum.us/campaign/110...

The EveryLife, Every Action year-end campaign highlights how advocacy, evidence-based policy, and community partnerships fuel momentum even in challenging times.

Visit our campaign page to learn more and hear advocates' stories: t.co/sIKKPVrnhp t.co/LnzDAdcps8

The Energy and Commerce Committee voted to advance the Give Kids a Chance Act, which would reauthorize the PRV Program! This markup signifies important progress. You can still make a difference, support the reauthorization of the PRV program here:
everylifefoundation.quorum.us/campaign/110...

The EveryLife Foundation for Rare Diseases is honored to co-lead 190 patient advocacy organizations in urging Congress to pass the Give Kids a Chance Act. Now is the time for Congress to #RenewPRV and help find #Cures4Kids.

Read the letter here: everylifefoundation.org/wp-content/u...

September is Newborn Screening Awareness Month, and we have a full calendar of opportunities for you to learn and engage!

👉 To register and find more details visit our events calendar here: everylifefoundation.org/events-sched...

#newbornscreening #awarenessmonth #nbs #policy #raredisease

This week, Congress continues their work on budget reconciliation. As the Senate considers passing major cuts to Medicaid, there's still time to share your Medicaid story.

To learn more about how YOU can take action, visit: bit.ly/42swSIm

#IAmMedicaid #RareDisease

This week, Congress continues their work on budget reconciliation. As the Senate considers passing major cuts to Medicaid, there's still time to share your Medicaid story.

To learn more about how YOU can take action, visit: bit.ly/42swSIm

#IAmMedicaid #RareDisease

📣 Calling all rare disease community members. #RareDC2025

Sign this petition urging Congress to continue their support of steady and robust federal agency leadership, federal biomedical research funding, and public health agency resources.

Take action: everylifefoundation.quorum.us/campaign/111...