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evacatherder.bsky.social
@evacatherder.bsky.social
190 followers 230 following 54 posts
Chronically ill with severe gastroparesis. Proud tubie screaming into the void. But, cats!

Find me at mojovampire.com
Posts Replies Media Videos
evacatherder.bsky.social
This is my new superhero logo. I am Triple-tubed Girl. mojovampire.com/burnout/

#tubie #gastroparesis #chronicillness
May 13, 2025 at 7:41 PM
evacatherder.bsky.social
I have been finding the process of writing posts to be so draining that it takes a bit before I can post them.

mojovampire.com/nothing-here...

#gastroparesis #chronicillness #NEISvoid #insurance
Nothing Here to See - Eva's Gastroparedic Adventure
It seems like forever ago that I first reached out to my GI about an increase in pain and venting. The only way for me to communicate with my GI is via the online portal. There is no office to call. A...
mojovampire.com
March 30, 2025 at 7:54 PM
evacatherder.bsky.social
I go on a rant and then walk in back. Up next: mojovampire.com/musics-back/
mojovampire.com/nevermind/

#gastroparesis #tubie #chronicillness #NEISvoid
Music's Back - Eva's Gastroparedic Adventure
There is a lot going on and I have some news to share, but I thought I would start with something that is going right. I finally got music back. It has been many months since I have been able to liste...
mojovampire.com
March 18, 2025 at 7:57 PM
Reposted
baddestmamajama.bsky.social
Ok. Little chat. As we are hitting the 5 year anniversary of Covid lockdowns beginning in 2020, as someone who is permanently disabled by Long Covid, here’s what I’d *love* to see when people talk about the ongoing pandemic and how it effects them:
March 10, 2025 at 11:40 PM
Reposted
theguardian.com
German tourists’ ordeal reportedly ending as they are returned from US detention
German tourists’ ordeal reportedly ending as they are returned from US detention
Jessica Brösche to join Lucas Sielaff, who is reported to have returned to Germany on 6 March A German tourist detained by US immigration authorities is due to be deported back to Germany on Tuesday after spending more than six weeks in detention,…
www.theguardian.com
March 11, 2025 at 8:16 PM
evacatherder.bsky.social
#NEISvoid
The words “Thank you for contacting the abyss. Your scream is really important to us” over a swirling galaxy in shades of blue with stars in the black void of space.
March 8, 2025 at 8:34 PM
evacatherder.bsky.social
@rds773.bsky.social Happy Birthday!
March 7, 2025 at 9:38 PM
evacatherder.bsky.social
Short update on my life mojovampire.com/five-hundred...
Five hundred, twenty-five thousand, six hundred minutes - Eva's Gastroparedic Adventure
Today is Nommie’s first yahrzeit (anniversary of his death). That means that as of tomorrow, it will have been a year since our cross country move. It has been quite a year, in so many, many ways. Nei...
mojovampire.com
March 7, 2025 at 9:37 PM
Reposted
marisakabas.bsky.social
BREAKING — The Securities and Exchange Commission (SEC) has just announced the closure of major regional offices in Philly, LA and Chicago, per email shared with me.

“5 alarm fire,” SEC employee tells me.

Full email text:
To: All SEC Employees From: Ken Johnson, Chief Operating Officer Date: March 3, 2025 Subject: RE: Update on LARO, PLRO and CHRO Leases As some of you might be aware, the General Services Administration (GSA) has been involved in a process across federal agencies to review office space leases and potential options for reducing space and related costs. GSA has now decided to end all federal leases goverment-wide where GSA can do so unilaterally and where the agency is not providing direct services to the public. As part of this decision, GSA recently informed us it has decided to teminate the building leases for the Los Angeles Regional Office (LARO) and the Philadelphia Regional Office (PLRO). GSA retains the sole authority to terminate the leases because they manage those leases on our behalf. To be clear, these lease terminations are not associated with any reorganization or reduction in force plan regarding SEC personnel, but rather apply solely to SEC space. As part of the initiative described above, GSA also notified us they intend to terminate the lease for the Chicago Regional Office (CHRO). The SEC has responded to the Administration and pointed out that CHRO's lease terms are different iand do not allow for unilateral GSA termination without significant financial penalties. We will keep you posted as we learn more about GSA's decisions. The SEC will be working with GSA on the process for finding new space for these offices. We understand that GSA aims to have the space exited by the end of August 2025 for PLRO and CHRO, and the end of September 2025 for LARO. It is the SEC's intent that if new office locations are not ready by the time the GSA-initiated lease terminations take effect, then the affected SEC staff will be placed on full-time telework. We will provide more information as we learn it. Thank you.
March 3, 2025 at 9:14 PM
evacatherder.bsky.social
I love Oz in all of its multiverses. I also grew up on The Wizard of Oz and The Wiz. This medley got me right in the Gen X feels.
#Wicked #oscars #WizardofOz #TheWiz

youtu.be/In-GXkhzFNM
Ariana Grande and Cynthia Erivo 'Wicked' Performance at 97th Oscars (2025)
YouTube video by Oscars
youtu.be
March 3, 2025 at 7:37 PM
evacatherder.bsky.social
Back in the ER. All I wanted/needed was some hydration. 6 hours later, after a normal CT and land, I*finally* got a liter of fluid and a discharge. #gastroparesis #tubie #NEISvoid
March 2, 2025 at 1:35 AM
evacatherder.bsky.social
My latest update in my Gastroparedic life. mojovampire.com/an-octopuss-...
An Octopus’s Garden - Eva's Gastroparedic Adventure
I think an octopus must have moved into our attic because the shoes keep dropping. When last heard from, things were looking up. I had gone a few nights without venting overnight and we thought the wo...
mojovampire.com
February 26, 2025 at 11:17 PM
evacatherder.bsky.social
Latest in my life journey with gastroparesis. mojovampire.com/so-close/

#gastroparesis #chronicillness #NEISvoid #tubie
So close... - Eva's Gastroparedic Adventure
It has been a while, but I have been occupied with a flare, a birthday party and a visitor. All in good time. On January 29th, I was scheduled to see my GI NP. We arrived at the appointment and there ...
mojovampire.com
February 18, 2025 at 10:00 PM
Reposted
jeisinger.bsky.social
NEW: It's not just coders.

DOGE is filled with lawyers, elite attorneys with conservative credentials.

We have new names:

www.propublica.org/article/elon...
The Elite Lawyers Working for Elon Musk’s DOGE Include Former Supreme Court Clerks
Much attention has been paid to the young Silicon Valley engineers working for Musk’s Department of Government Efficiency, but the group has also hired high-powered legal talent.
www.propublica.org
February 7, 2025 at 10:30 PM
evacatherder.bsky.social
The end of the no propane/G-J tube flipped saga:https://mojovampire.com/wonder-of-wonders/
January 28, 2025 at 8:40 PM
evacatherder.bsky.social
Indie Bookstores Will Soon Be Able to Sell E-Books to Customers www.nytimes.com/2025/01/28/b...

While I am at it, let me add a plug for libro.fm for audiobooks from independent booksellers.

#books #resist #independentbooksellers
Bookshop: Buy books online. Support local bookstores.
An online bookstore that financially supports local independent bookstores and gives back to the book community.
Bookshop.org
January 28, 2025 at 7:30 PM
evacatherder.bsky.social
This has not been a Good Day.

mojovampire.com/just-when-yo...

#gastroparesis #NEISvoid #tubie #chronicillness
A white presenting woman is wearing a green dinosaur onesie. She is shown from the chest up and is wearing a black t-shirt under the partially unzipped onesie. The hood of the onesie, showing white teeth, a snout and yellow eyes, with spikes starting at about her forehead, is covering her eyes and nose. All you can see are her smile and chin, with a cascade of long, dark brown hair on one side.
January 26, 2025 at 9:41 PM
evacatherder.bsky.social
I literally do not know how I am going to make it through the next 4 years. The administration is undoing the work of the civil rights movement with the stroke of a pen.

And that is only one of a million things that have been destroyed or corrupted and it is only day 3. 😭
January 22, 2025 at 9:50 PM
Reposted
joshtpm.bsky.social
some reporters have been too loose with phrasing like DEI. makes it sound like it's all abt post-George Floyd murder stuff. As he notes, they're ditching anti-discrimination policies that go back to LBJ.
January 22, 2025 at 9:13 PM
evacatherder.bsky.social
I wrote a brief update on my continuing efforts to transition from TPN back to enteral feeding.

mojovampire.com/a-brief-brief/

#gastroparesis #tubie #chronicillness
A white presenting man with short, greying, but floppy hair and big sunglasses, wearing a pink button up shirt with a royal blue fleece vest over it. Peering over his right shoulder is a woman wearing a grey hoodie, with the hood over her head, wearing sunglasses pose on Stinson Beach in west Marin county, CA. It is a sandy beach with some people and ocean waves in the background
January 21, 2025 at 10:55 PM
evacatherder.bsky.social
I was so excited that my new pump is smaller and lighter, but forgot that there would be a learning curve.

I love my current pump and have no problem with it. Only switching because the company that made it stopped supporting it in December 2023.

#tubie #gastroparesis #NEISvoid #chronicillness
January 10, 2025 at 8:40 PM
evacatherder.bsky.social
I continue to make progress in my efforts to get off TPN. Details in my blog post:
mojovampire.com/hot-off-the-...

#gastroparesis #chronicillness #tubie #tpn #neisvoid
Hot off the presses! - Eva's Gastroparedic Adventure
I have been diligently working my way to moving back entirely to enteral feeding. Yesterday, I reached 41mls/hour. The goal is 54mls per hour. I attribute my steady progress to better pain management....
mojovampire.com
January 7, 2025 at 12:23 AM
evacatherder.bsky.social
Reached a new milestone last night! My TPN volume has been reduced to a liter, so I can now fit both my TPN and my enteral feed bags and their respective pumps in a single bag. No more hauling around two separate bags to feed. #gastroparesis #tubie #chronicillness #tpn
An open backpack showing a bag of enteral formula connected to a Kangaroo Joey pump and a liter of TPN connected to a separate pump, sitting side by side.
December 23, 2024 at 12:39 AM
evacatherder.bsky.social
My latest blog post including a reflection on having an eating disorder when one cannot eat.
mojovampire.com/tailspins/

#eatingdisorder #gastroparesis #tubie #chronicillness #neisvoid
Tailspins - Eva's Gastroparedic Adventure
The transition to enteral feeding continues to go well. This afternoon, I did a couple of hours at 33mls per hour. The goal is 54 pls per hour. I will stay at 33mls tonight when I reconnect and, depen...
mojovampire.com
December 17, 2024 at 11:13 PM
Reposted
washingtonpost.com
Black women are three times more likely to die from pregnancy-related causes as White women. Doulas, midwives, nurses and obstetricians are explicitly preparing Black women to speak up loudly for themselves in the delivery room.
Why Black women are being told to speak up during and after childbirth
Doulas, midwives, nurses and obstetricians are explicitly preparing Black women to speak up loudly for themselves in the delivery room.
www.washingtonpost.com
December 15, 2024 at 8:17 PM