AZLatina
@endrarediseases.bsky.social
Blue Dog Dem. Rare Disease Patient Advocate for Amyloidosis that killed my Mom & ALS that is killing my friends. Passionate about Enviro Justice, Foster Care & Gun Safety. Proud GGD of a Righteous Gentile murdered by Nazis. 💙LA sports.
Praying for you and you family. 💔
November 18, 2024 at 12:10 PM
Praying for you and you family. 💔
Subjective clinical outcome assessments are causing failed trial endpoints in therapies for terminal neurodegenerative diseases like #ALS & #Duchenne -- yet therapies are improving how the patients "feel function & survive."
Patients are #DyingWaitng when drugs could help them live.
#EndALS
Patients are #DyingWaitng when drugs could help them live.
#EndALS
November 17, 2024 at 11:04 PM
Subjective clinical outcome assessments are causing failed trial endpoints in therapies for terminal neurodegenerative diseases like #ALS & #Duchenne -- yet therapies are improving how the patients "feel function & survive."
Patients are #DyingWaitng when drugs could help them live.
#EndALS
Patients are #DyingWaitng when drugs could help them live.
#EndALS
Great! Please add me!
@aVoiceforALS on X
@aVoiceforALS on X
November 17, 2024 at 9:04 PM
Great! Please add me!
@aVoiceforALS on X
@aVoiceforALS on X