AZLatina
@endrarediseases.bsky.social
Blue Dog Dem. Rare Disease Patient Advocate for Amyloidosis that killed my Mom & ALS that is killing my friends. Passionate about Enviro Justice, Foster Care & Gun Safety. Proud GGD of a Righteous Gentile murdered by Nazis. 💙LA sports.
People with terminal #RareDiseases urgently need DISRUPTIVE policy change & a conditional approval pathway at FDA.
32k people with 100% fatal #ALS like Brian Wallach are #DyingWaiting when drugs could help them live.
Humanity & science can co-exist.
#EndALS
@bsw5020.bsky.social
32k people with 100% fatal #ALS like Brian Wallach are #DyingWaiting when drugs could help them live.
Humanity & science can co-exist.
#EndALS
@bsw5020.bsky.social
November 17, 2024 at 9:55 PM
People with terminal #RareDiseases urgently need DISRUPTIVE policy change & a conditional approval pathway at FDA.
32k people with 100% fatal #ALS like Brian Wallach are #DyingWaiting when drugs could help them live.
Humanity & science can co-exist.
#EndALS
@bsw5020.bsky.social
32k people with 100% fatal #ALS like Brian Wallach are #DyingWaiting when drugs could help them live.
Humanity & science can co-exist.
#EndALS
@bsw5020.bsky.social