ENDO1000
@endo1000.bsky.social
The ENDO1000 project, based at the University of Edinburgh, researching endometriosis.
Recruiting 1000 participants with the condition in Autumn 2025.
Researching diagnosis, treatment, and influencing factors for endometriosis
https://www.endo1000.com/
Recruiting 1000 participants with the condition in Autumn 2025.
Researching diagnosis, treatment, and influencing factors for endometriosis
https://www.endo1000.com/
When did you last have to plan months ahead for work? ☝️
More of our ambassadors, Ffion, Lynsey and Rebecca, have shared their workspace stories. Starting a conversation can make a difference. It's time to #TALKEndo.
More of our ambassadors, Ffion, Lynsey and Rebecca, have shared their workspace stories. Starting a conversation can make a difference. It's time to #TALKEndo.
September 30, 2025 at 3:30 PM
When did you last have to plan months ahead for work? ☝️
More of our ambassadors, Ffion, Lynsey and Rebecca, have shared their workspace stories. Starting a conversation can make a difference. It's time to #TALKEndo.
More of our ambassadors, Ffion, Lynsey and Rebecca, have shared their workspace stories. Starting a conversation can make a difference. It's time to #TALKEndo.
#Endometriosis doesn't just affect personal life.
Here are some of our ambassadors, Candice, Phoebe and Neroli, talking about their journeys through work and education. It isn't just work, it's a challenge, which is why we need to #TALKEndo - it can end careers.
Here are some of our ambassadors, Candice, Phoebe and Neroli, talking about their journeys through work and education. It isn't just work, it's a challenge, which is why we need to #TALKEndo - it can end careers.
September 16, 2025 at 10:10 AM
#Endometriosis doesn't just affect personal life.
Here are some of our ambassadors, Candice, Phoebe and Neroli, talking about their journeys through work and education. It isn't just work, it's a challenge, which is why we need to #TALKEndo - it can end careers.
Here are some of our ambassadors, Candice, Phoebe and Neroli, talking about their journeys through work and education. It isn't just work, it's a challenge, which is why we need to #TALKEndo - it can end careers.
Retrograde menstruation - what's it got to do with #endometriosis? ⬇️
September 10, 2025 at 4:00 PM
Retrograde menstruation - what's it got to do with #endometriosis? ⬇️
What does an ideal #endometriosis diagnosis look like, and what can we do now? ✍️
At the end of August we joined Lucy Whittaker, Nicola Boydell and Marie Larsson for the 'Diagnostic Futures in Endometriosis' workshop.
A huge thank you to everyone who gave their time to this event! ❤️
At the end of August we joined Lucy Whittaker, Nicola Boydell and Marie Larsson for the 'Diagnostic Futures in Endometriosis' workshop.
A huge thank you to everyone who gave their time to this event! ❤️
September 8, 2025 at 2:00 PM
What does an ideal #endometriosis diagnosis look like, and what can we do now? ✍️
At the end of August we joined Lucy Whittaker, Nicola Boydell and Marie Larsson for the 'Diagnostic Futures in Endometriosis' workshop.
A huge thank you to everyone who gave their time to this event! ❤️
At the end of August we joined Lucy Whittaker, Nicola Boydell and Marie Larsson for the 'Diagnostic Futures in Endometriosis' workshop.
A huge thank you to everyone who gave their time to this event! ❤️
Need something to read in the sunshine this weekend? How about taking a look at these 3 books about women's health? ☀️🩸
Which of these are you picking up? 👇
Which of these are you picking up? 👇
August 14, 2025 at 10:00 AM
Need something to read in the sunshine this weekend? How about taking a look at these 3 books about women's health? ☀️🩸
Which of these are you picking up? 👇
Which of these are you picking up? 👇
What is the ideal future of endometriosis diagnosis?
You can take part in this creative and interactive workshop, ran by the EXPPECT research team. Link in our bio to sign up ✍️
You can take part in this creative and interactive workshop, ran by the EXPPECT research team. Link in our bio to sign up ✍️
August 1, 2025 at 10:00 AM
What is the ideal future of endometriosis diagnosis?
You can take part in this creative and interactive workshop, ran by the EXPPECT research team. Link in our bio to sign up ✍️
You can take part in this creative and interactive workshop, ran by the EXPPECT research team. Link in our bio to sign up ✍️
ENDO1000 supporters come in all shapes and sizes 🐾
Want to make our day paw-fect? You can pop us a little donation at the link in our bio.
Every penny will help us recruit more participants for our research into #endometriosis 🩸
Want to make our day paw-fect? You can pop us a little donation at the link in our bio.
Every penny will help us recruit more participants for our research into #endometriosis 🩸
July 20, 2025 at 10:00 AM
ENDO1000 supporters come in all shapes and sizes 🐾
Want to make our day paw-fect? You can pop us a little donation at the link in our bio.
Every penny will help us recruit more participants for our research into #endometriosis 🩸
Want to make our day paw-fect? You can pop us a little donation at the link in our bio.
Every penny will help us recruit more participants for our research into #endometriosis 🩸
Welcome to our new series 'What's that?' Wednesday!
Every Wednesday we're going to #TALKendo by answering and de-mystifying questions you might have about endometriosis.
First up, what are the three different types of #endometriosis?
Every Wednesday we're going to #TALKendo by answering and de-mystifying questions you might have about endometriosis.
First up, what are the three different types of #endometriosis?
July 9, 2025 at 1:00 PM
Welcome to our new series 'What's that?' Wednesday!
Every Wednesday we're going to #TALKendo by answering and de-mystifying questions you might have about endometriosis.
First up, what are the three different types of #endometriosis?
Every Wednesday we're going to #TALKendo by answering and de-mystifying questions you might have about endometriosis.
First up, what are the three different types of #endometriosis?
Our Co-Director Andrew Horne recently visited Professor René Wenzl at the University of Vienna, delivering a lecture on innovative approaches to managing endometriosis as part of his Adjunct Professor appointment. 🤝
July 7, 2025 at 12:15 PM
Our Co-Director Andrew Horne recently visited Professor René Wenzl at the University of Vienna, delivering a lecture on innovative approaches to managing endometriosis as part of his Adjunct Professor appointment. 🤝
We’re so excited to announce that we are collaborating with Jessica Knappett for her live recording of the Perfect Day podcast, and you can get tickets RIGHT NOW from the link in our bio 🎟️
Join Jessica and her special guest at this live recording, with all ticket sales supporting ENDO1000.🩸
Join Jessica and her special guest at this live recording, with all ticket sales supporting ENDO1000.🩸
June 30, 2025 at 3:00 PM
We’re so excited to announce that we are collaborating with Jessica Knappett for her live recording of the Perfect Day podcast, and you can get tickets RIGHT NOW from the link in our bio 🎟️
Join Jessica and her special guest at this live recording, with all ticket sales supporting ENDO1000.🩸
Join Jessica and her special guest at this live recording, with all ticket sales supporting ENDO1000.🩸
Did you know we take donations big and small?
The price of your morning takeaway drink could make all the difference! Those regular, small donations are helping us to reach our target.
Find out more about how to donate at the link in our bio ❤️
The price of your morning takeaway drink could make all the difference! Those regular, small donations are helping us to reach our target.
Find out more about how to donate at the link in our bio ❤️
June 26, 2025 at 9:00 AM
Did you know we take donations big and small?
The price of your morning takeaway drink could make all the difference! Those regular, small donations are helping us to reach our target.
Find out more about how to donate at the link in our bio ❤️
The price of your morning takeaway drink could make all the difference! Those regular, small donations are helping us to reach our target.
Find out more about how to donate at the link in our bio ❤️
Did you know we have a newsletter? 📨
If you want all your updates in one place (and exclusive first-looks at things we have coming up) make sure to head to our website and sign up (link in our bio)! Our first edition is coming soon.
If you want all your updates in one place (and exclusive first-looks at things we have coming up) make sure to head to our website and sign up (link in our bio)! Our first edition is coming soon.
June 20, 2025 at 10:00 AM
Did you know we have a newsletter? 📨
If you want all your updates in one place (and exclusive first-looks at things we have coming up) make sure to head to our website and sign up (link in our bio)! Our first edition is coming soon.
If you want all your updates in one place (and exclusive first-looks at things we have coming up) make sure to head to our website and sign up (link in our bio)! Our first edition is coming soon.
Meet the ENDO1000 team!
Doug Gibson, Lead in Discover Science, explains what is happening in some of our research behind the scenes 🔬
Interested in staying up to date with research like this? Sign up to our mailing list and keep an eye on our website (links in our bio!)
Doug Gibson, Lead in Discover Science, explains what is happening in some of our research behind the scenes 🔬
Interested in staying up to date with research like this? Sign up to our mailing list and keep an eye on our website (links in our bio!)
June 16, 2025 at 10:00 AM
Meet the ENDO1000 team!
Doug Gibson, Lead in Discover Science, explains what is happening in some of our research behind the scenes 🔬
Interested in staying up to date with research like this? Sign up to our mailing list and keep an eye on our website (links in our bio!)
Doug Gibson, Lead in Discover Science, explains what is happening in some of our research behind the scenes 🔬
Interested in staying up to date with research like this? Sign up to our mailing list and keep an eye on our website (links in our bio!)
We thought we should probably re-introduce ourselves 👋
We're ENDO1000, and here is a run down of who we are and what we want to do.
You can always find more information about what stage the project is in on our website, or follow us if you haven't already to keep up to date!
We're ENDO1000, and here is a run down of who we are and what we want to do.
You can always find more information about what stage the project is in on our website, or follow us if you haven't already to keep up to date!
June 10, 2025 at 2:30 PM
We thought we should probably re-introduce ourselves 👋
We're ENDO1000, and here is a run down of who we are and what we want to do.
You can always find more information about what stage the project is in on our website, or follow us if you haven't already to keep up to date!
We're ENDO1000, and here is a run down of who we are and what we want to do.
You can always find more information about what stage the project is in on our website, or follow us if you haven't already to keep up to date!
Ever had people ask 'what is endometriosis anyway?' because we definitely have! 🩸
We're hear to #TALKendo and breakdown a bit more about endometriosis and why we're researching it. If you want to read more about endometriosis, or our project, head over to our website (link in bio)
We're hear to #TALKendo and breakdown a bit more about endometriosis and why we're researching it. If you want to read more about endometriosis, or our project, head over to our website (link in bio)
June 6, 2025 at 4:00 PM
Ever had people ask 'what is endometriosis anyway?' because we definitely have! 🩸
We're hear to #TALKendo and breakdown a bit more about endometriosis and why we're researching it. If you want to read more about endometriosis, or our project, head over to our website (link in bio)
We're hear to #TALKendo and breakdown a bit more about endometriosis and why we're researching it. If you want to read more about endometriosis, or our project, head over to our website (link in bio)
It's been a week since the Edinburgh Marathon Festival! 🏃
Dayna, who professes herself as 'not a natural runner', speaks about why she chose to join the marathon relay for ENDO1000, despite the tough training. Head to our website for more about fundraising, or donate at the link in our bio!
Dayna, who professes herself as 'not a natural runner', speaks about why she chose to join the marathon relay for ENDO1000, despite the tough training. Head to our website for more about fundraising, or donate at the link in our bio!
June 2, 2025 at 10:30 AM
It's been a week since the Edinburgh Marathon Festival! 🏃
Dayna, who professes herself as 'not a natural runner', speaks about why she chose to join the marathon relay for ENDO1000, despite the tough training. Head to our website for more about fundraising, or donate at the link in our bio!
Dayna, who professes herself as 'not a natural runner', speaks about why she chose to join the marathon relay for ENDO1000, despite the tough training. Head to our website for more about fundraising, or donate at the link in our bio!
Yesterday our runners took on the Edinburgh Marathon Festival relay, tackling rain, wind, hail, before finishing with sunshine as they crossed the finish line and collected their medals 🏅
So far they have raised an incredible £1,580, donate at the link in our bio!
So far they have raised an incredible £1,580, donate at the link in our bio!
May 26, 2025 at 9:45 AM
Yesterday our runners took on the Edinburgh Marathon Festival relay, tackling rain, wind, hail, before finishing with sunshine as they crossed the finish line and collected their medals 🏅
So far they have raised an incredible £1,580, donate at the link in our bio!
So far they have raised an incredible £1,580, donate at the link in our bio!
When co-head, Andrew Horne, took to the stage he shared the importance behind our project, and the disparity of research in to women's health.
We have already made an amazing amount of progress, but we still need your support. Find out more at www.endo1000.com/...
We have already made an amazing amount of progress, but we still need your support. Find out more at www.endo1000.com/...
May 20, 2025 at 3:25 PM
When co-head, Andrew Horne, took to the stage he shared the importance behind our project, and the disparity of research in to women's health.
We have already made an amazing amount of progress, but we still need your support. Find out more at www.endo1000.com/...
We have already made an amazing amount of progress, but we still need your support. Find out more at www.endo1000.com/...
Priscilla took the stage at our charity dinner to talk about how ENDO1000 will be the key to better diagnosis times so that less women have to spend years in pain.
We raised an incredible £22,000 from our dinner but we still need your help to reach our goal, link in our bio!
We raised an incredible £22,000 from our dinner but we still need your help to reach our goal, link in our bio!
May 19, 2025 at 1:30 PM
Priscilla took the stage at our charity dinner to talk about how ENDO1000 will be the key to better diagnosis times so that less women have to spend years in pain.
We raised an incredible £22,000 from our dinner but we still need your help to reach our goal, link in our bio!
We raised an incredible £22,000 from our dinner but we still need your help to reach our goal, link in our bio!
What a night!
With £22,000 raised at our charity dinner, we can now recruit another 22 participants to our life-changing research. A HUGE thank you to everyone who bought tables, donated prizes, and bid at the auction, particularly @lloydsbankinggroup
Donate at eendo1000.com/...
With £22,000 raised at our charity dinner, we can now recruit another 22 participants to our life-changing research. A HUGE thank you to everyone who bought tables, donated prizes, and bid at the auction, particularly @lloydsbankinggroup
Donate at eendo1000.com/...
May 8, 2025 at 8:58 AM
What a night!
With £22,000 raised at our charity dinner, we can now recruit another 22 participants to our life-changing research. A HUGE thank you to everyone who bought tables, donated prizes, and bid at the auction, particularly @lloydsbankinggroup
Donate at eendo1000.com/...
With £22,000 raised at our charity dinner, we can now recruit another 22 participants to our life-changing research. A HUGE thank you to everyone who bought tables, donated prizes, and bid at the auction, particularly @lloydsbankinggroup
Donate at eendo1000.com/...
At our fundraising dinner on Tuesday, Kayleigh shared her experience living with endometriosis, and how ENDO1000 can change lives. Her voice and story are an inspiration to our work.
Learn more about Endo1000 and donate to support our cause at www.endo1000.com/...
Learn more about Endo1000 and donate to support our cause at www.endo1000.com/...
May 8, 2025 at 8:16 AM
At our fundraising dinner on Tuesday, Kayleigh shared her experience living with endometriosis, and how ENDO1000 can change lives. Her voice and story are an inspiration to our work.
Learn more about Endo1000 and donate to support our cause at www.endo1000.com/...
Learn more about Endo1000 and donate to support our cause at www.endo1000.com/...
We’re at The Mound tonight for our charity auction, fingers crossed we raise a lot of money! 🤞
May 6, 2025 at 5:30 PM
We’re at The Mound tonight for our charity auction, fingers crossed we raise a lot of money! 🤞
Ambassador Lynsey has successfully raised over £1000 for ENDO1000! To find out how you can raise money for us and help us include as many participants as possible, head to endo1000.com
Thank you Lynsey!
Thank you Lynsey!
April 28, 2025 at 10:18 AM
Ambassador Lynsey has successfully raised over £1000 for ENDO1000! To find out how you can raise money for us and help us include as many participants as possible, head to endo1000.com
Thank you Lynsey!
Thank you Lynsey!
Meet the team! Say hello to Thanasis, lead for digital health 👋 Thanasis is working on the data collection for ENDO1000, including our custom app and smartwatches. Head to our website for more info about the team and sign up to our mailing list!
#womenshealth #talkendo#endometriosis
#womenshealth #talkendo#endometriosis
April 16, 2025 at 10:19 AM
Meet the team! Say hello to Thanasis, lead for digital health 👋 Thanasis is working on the data collection for ENDO1000, including our custom app and smartwatches. Head to our website for more info about the team and sign up to our mailing list!
#womenshealth #talkendo#endometriosis
#womenshealth #talkendo#endometriosis
Do you have endometriosis or suspected endometriosis?
Take part in our research that explores the prevalence of brain fog in people with endometriosis 🧠
Complete the 15-20 minute survey at the following link: crh-redcap.igmm.ed.ac.uk/surveys/?s=E...
Take part in our research that explores the prevalence of brain fog in people with endometriosis 🧠
Complete the 15-20 minute survey at the following link: crh-redcap.igmm.ed.ac.uk/surveys/?s=E...
April 9, 2025 at 11:33 AM
Do you have endometriosis or suspected endometriosis?
Take part in our research that explores the prevalence of brain fog in people with endometriosis 🧠
Complete the 15-20 minute survey at the following link: crh-redcap.igmm.ed.ac.uk/surveys/?s=E...
Take part in our research that explores the prevalence of brain fog in people with endometriosis 🧠
Complete the 15-20 minute survey at the following link: crh-redcap.igmm.ed.ac.uk/surveys/?s=E...