ENDO1000
@endo1000.bsky.social
The ENDO1000 project, based at the University of Edinburgh, researching endometriosis.
Recruiting 1000 participants with the condition in Autumn 2025.
Researching diagnosis, treatment, and influencing factors for endometriosis
https://www.endo1000.com/
Recruiting 1000 participants with the condition in Autumn 2025.
Researching diagnosis, treatment, and influencing factors for endometriosis
https://www.endo1000.com/
Pinned
ENDO1000
@endo1000.bsky.social
· Oct 1
Endo1000 | The UK-wide Endometriosis Research Project
endo1000.com
Curious to know more about what we do?
We’re more active over on our Instagram page @endo1000project, and you can always see updates and sign up to our newsletter on our website endo1000.com🩸
We’re more active over on our Instagram page @endo1000project, and you can always see updates and sign up to our newsletter on our website endo1000.com🩸
Curious to know more about what we do?
We’re more active over on our Instagram page @endo1000project, and you can always see updates and sign up to our newsletter on our website endo1000.com🩸
We’re more active over on our Instagram page @endo1000project, and you can always see updates and sign up to our newsletter on our website endo1000.com🩸
Endo1000 | The UK-wide Endometriosis Research Project
endo1000.com
October 1, 2025 at 12:35 PM
Curious to know more about what we do?
We’re more active over on our Instagram page @endo1000project, and you can always see updates and sign up to our newsletter on our website endo1000.com🩸
We’re more active over on our Instagram page @endo1000project, and you can always see updates and sign up to our newsletter on our website endo1000.com🩸
When did you last have to plan months ahead for work? ☝️
More of our ambassadors, Ffion, Lynsey and Rebecca, have shared their workspace stories. Starting a conversation can make a difference. It's time to #TALKEndo.
More of our ambassadors, Ffion, Lynsey and Rebecca, have shared their workspace stories. Starting a conversation can make a difference. It's time to #TALKEndo.
September 30, 2025 at 3:30 PM
When did you last have to plan months ahead for work? ☝️
More of our ambassadors, Ffion, Lynsey and Rebecca, have shared their workspace stories. Starting a conversation can make a difference. It's time to #TALKEndo.
More of our ambassadors, Ffion, Lynsey and Rebecca, have shared their workspace stories. Starting a conversation can make a difference. It's time to #TALKEndo.
#Endometriosis doesn't just affect personal life.
Here are some of our ambassadors, Candice, Phoebe and Neroli, talking about their journeys through work and education. It isn't just work, it's a challenge, which is why we need to #TALKEndo - it can end careers.
Here are some of our ambassadors, Candice, Phoebe and Neroli, talking about their journeys through work and education. It isn't just work, it's a challenge, which is why we need to #TALKEndo - it can end careers.
September 16, 2025 at 10:10 AM
#Endometriosis doesn't just affect personal life.
Here are some of our ambassadors, Candice, Phoebe and Neroli, talking about their journeys through work and education. It isn't just work, it's a challenge, which is why we need to #TALKEndo - it can end careers.
Here are some of our ambassadors, Candice, Phoebe and Neroli, talking about their journeys through work and education. It isn't just work, it's a challenge, which is why we need to #TALKEndo - it can end careers.
Retrograde menstruation - what's it got to do with #endometriosis? ⬇️
September 10, 2025 at 4:00 PM
Retrograde menstruation - what's it got to do with #endometriosis? ⬇️
What does an ideal #endometriosis diagnosis look like, and what can we do now? ✍️
At the end of August we joined Lucy Whittaker, Nicola Boydell and Marie Larsson for the 'Diagnostic Futures in Endometriosis' workshop.
A huge thank you to everyone who gave their time to this event! ❤️
At the end of August we joined Lucy Whittaker, Nicola Boydell and Marie Larsson for the 'Diagnostic Futures in Endometriosis' workshop.
A huge thank you to everyone who gave their time to this event! ❤️
September 8, 2025 at 2:00 PM
What does an ideal #endometriosis diagnosis look like, and what can we do now? ✍️
At the end of August we joined Lucy Whittaker, Nicola Boydell and Marie Larsson for the 'Diagnostic Futures in Endometriosis' workshop.
A huge thank you to everyone who gave their time to this event! ❤️
At the end of August we joined Lucy Whittaker, Nicola Boydell and Marie Larsson for the 'Diagnostic Futures in Endometriosis' workshop.
A huge thank you to everyone who gave their time to this event! ❤️
Need something to read in the sunshine this weekend? How about taking a look at these 3 books about women's health? ☀️🩸
Which of these are you picking up? 👇
Which of these are you picking up? 👇
August 14, 2025 at 10:00 AM
Need something to read in the sunshine this weekend? How about taking a look at these 3 books about women's health? ☀️🩸
Which of these are you picking up? 👇
Which of these are you picking up? 👇
What is the ideal future of endometriosis diagnosis?
You can take part in this creative and interactive workshop, ran by the EXPPECT research team. Link in our bio to sign up ✍️
You can take part in this creative and interactive workshop, ran by the EXPPECT research team. Link in our bio to sign up ✍️
August 1, 2025 at 10:00 AM
What is the ideal future of endometriosis diagnosis?
You can take part in this creative and interactive workshop, ran by the EXPPECT research team. Link in our bio to sign up ✍️
You can take part in this creative and interactive workshop, ran by the EXPPECT research team. Link in our bio to sign up ✍️
Did you catch our ambassador Rajini Vaidyanathan on BBC Radio 2 talking about her experience with endometriosis?
We were delighted for the shout out and hope that the open conversation educates and raises awareness for endometriosis💛
You can catch up on the conversation now on BBC sounds!
We were delighted for the shout out and hope that the open conversation educates and raises awareness for endometriosis💛
You can catch up on the conversation now on BBC sounds!
July 23, 2025 at 10:24 AM
Did you catch our ambassador Rajini Vaidyanathan on BBC Radio 2 talking about her experience with endometriosis?
We were delighted for the shout out and hope that the open conversation educates and raises awareness for endometriosis💛
You can catch up on the conversation now on BBC sounds!
We were delighted for the shout out and hope that the open conversation educates and raises awareness for endometriosis💛
You can catch up on the conversation now on BBC sounds!
ENDO1000 supporters come in all shapes and sizes 🐾
Want to make our day paw-fect? You can pop us a little donation at the link in our bio.
Every penny will help us recruit more participants for our research into #endometriosis 🩸
Want to make our day paw-fect? You can pop us a little donation at the link in our bio.
Every penny will help us recruit more participants for our research into #endometriosis 🩸
July 20, 2025 at 10:00 AM
ENDO1000 supporters come in all shapes and sizes 🐾
Want to make our day paw-fect? You can pop us a little donation at the link in our bio.
Every penny will help us recruit more participants for our research into #endometriosis 🩸
Want to make our day paw-fect? You can pop us a little donation at the link in our bio.
Every penny will help us recruit more participants for our research into #endometriosis 🩸
Have you got your tickets yet? 🎟️
We’re so excited to announce that we are collaborating with Jessica Knappett for her live recording of the Perfect Day podcast, and you can get tickets RIGHT NOW from the link in our bio 🎟️
Join Jessica and her special guest at this live recording, with all ticket sales supporting ENDO1000.🩸
Join Jessica and her special guest at this live recording, with all ticket sales supporting ENDO1000.🩸
July 16, 2025 at 12:47 PM
Have you got your tickets yet? 🎟️
Welcome to our new series 'What's that?' Wednesday!
Every Wednesday we're going to #TALKendo by answering and de-mystifying questions you might have about endometriosis.
First up, what are the three different types of #endometriosis?
Every Wednesday we're going to #TALKendo by answering and de-mystifying questions you might have about endometriosis.
First up, what are the three different types of #endometriosis?
July 9, 2025 at 1:00 PM
Welcome to our new series 'What's that?' Wednesday!
Every Wednesday we're going to #TALKendo by answering and de-mystifying questions you might have about endometriosis.
First up, what are the three different types of #endometriosis?
Every Wednesday we're going to #TALKendo by answering and de-mystifying questions you might have about endometriosis.
First up, what are the three different types of #endometriosis?
Reposted by ENDO1000
Going to be in Edinburgh this August? Come to see Jessica Knappet on the 19th, in support of the amazing @endo1000.bsky.social www.eventbrite.co.uk/e/perfect-da... #Comedy #Endometriosis #Research
Perfect Day LIVE with Jessica Knappett and ENDO1000 featuring special guest
Join star of Taskmaster and Drifters, Jessica Knappett, for a LIVE episode of Perfect Day podcast featuring a special guest.
www.eventbrite.co.uk
July 7, 2025 at 3:59 PM
Going to be in Edinburgh this August? Come to see Jessica Knappet on the 19th, in support of the amazing @endo1000.bsky.social www.eventbrite.co.uk/e/perfect-da... #Comedy #Endometriosis #Research
Reposted by ENDO1000
Looking for shows this festival season? Comedian Jessica Knappett is collaborating with IRR's @endo1000.bsky.social and performing a live recording of her podcast Perfect Day on Tues 19 Aug!
All ticket sales support our endometriosis research. Get yours today:
www.eventbrite.co.uk/e/perfect-da...
All ticket sales support our endometriosis research. Get yours today:
www.eventbrite.co.uk/e/perfect-da...
July 8, 2025 at 2:18 PM
Looking for shows this festival season? Comedian Jessica Knappett is collaborating with IRR's @endo1000.bsky.social and performing a live recording of her podcast Perfect Day on Tues 19 Aug!
All ticket sales support our endometriosis research. Get yours today:
www.eventbrite.co.uk/e/perfect-da...
All ticket sales support our endometriosis research. Get yours today:
www.eventbrite.co.uk/e/perfect-da...
Our Co-Director Andrew Horne recently visited Professor René Wenzl at the University of Vienna, delivering a lecture on innovative approaches to managing endometriosis as part of his Adjunct Professor appointment. 🤝
July 7, 2025 at 12:15 PM
Our Co-Director Andrew Horne recently visited Professor René Wenzl at the University of Vienna, delivering a lecture on innovative approaches to managing endometriosis as part of his Adjunct Professor appointment. 🤝
We’re so excited to announce that we are collaborating with Jessica Knappett for her live recording of the Perfect Day podcast, and you can get tickets RIGHT NOW from the link in our bio 🎟️
Join Jessica and her special guest at this live recording, with all ticket sales supporting ENDO1000.🩸
Join Jessica and her special guest at this live recording, with all ticket sales supporting ENDO1000.🩸
June 30, 2025 at 3:00 PM
We’re so excited to announce that we are collaborating with Jessica Knappett for her live recording of the Perfect Day podcast, and you can get tickets RIGHT NOW from the link in our bio 🎟️
Join Jessica and her special guest at this live recording, with all ticket sales supporting ENDO1000.🩸
Join Jessica and her special guest at this live recording, with all ticket sales supporting ENDO1000.🩸
Did you know we take donations big and small?
The price of your morning takeaway drink could make all the difference! Those regular, small donations are helping us to reach our target.
Find out more about how to donate at the link in our bio ❤️
The price of your morning takeaway drink could make all the difference! Those regular, small donations are helping us to reach our target.
Find out more about how to donate at the link in our bio ❤️
June 26, 2025 at 9:00 AM
Did you know we take donations big and small?
The price of your morning takeaway drink could make all the difference! Those regular, small donations are helping us to reach our target.
Find out more about how to donate at the link in our bio ❤️
The price of your morning takeaway drink could make all the difference! Those regular, small donations are helping us to reach our target.
Find out more about how to donate at the link in our bio ❤️
Did you know we have a newsletter? 📨
If you want all your updates in one place (and exclusive first-looks at things we have coming up) make sure to head to our website and sign up (link in our bio)! Our first edition is coming soon.
If you want all your updates in one place (and exclusive first-looks at things we have coming up) make sure to head to our website and sign up (link in our bio)! Our first edition is coming soon.
June 20, 2025 at 10:00 AM
Did you know we have a newsletter? 📨
If you want all your updates in one place (and exclusive first-looks at things we have coming up) make sure to head to our website and sign up (link in our bio)! Our first edition is coming soon.
If you want all your updates in one place (and exclusive first-looks at things we have coming up) make sure to head to our website and sign up (link in our bio)! Our first edition is coming soon.
Meet the ENDO1000 team!
Doug Gibson, Lead in Discover Science, explains what is happening in some of our research behind the scenes 🔬
Interested in staying up to date with research like this? Sign up to our mailing list and keep an eye on our website (links in our bio!)
Doug Gibson, Lead in Discover Science, explains what is happening in some of our research behind the scenes 🔬
Interested in staying up to date with research like this? Sign up to our mailing list and keep an eye on our website (links in our bio!)
June 16, 2025 at 10:00 AM
Meet the ENDO1000 team!
Doug Gibson, Lead in Discover Science, explains what is happening in some of our research behind the scenes 🔬
Interested in staying up to date with research like this? Sign up to our mailing list and keep an eye on our website (links in our bio!)
Doug Gibson, Lead in Discover Science, explains what is happening in some of our research behind the scenes 🔬
Interested in staying up to date with research like this? Sign up to our mailing list and keep an eye on our website (links in our bio!)
We thought we should probably re-introduce ourselves 👋
We're ENDO1000, and here is a run down of who we are and what we want to do.
You can always find more information about what stage the project is in on our website, or follow us if you haven't already to keep up to date!
We're ENDO1000, and here is a run down of who we are and what we want to do.
You can always find more information about what stage the project is in on our website, or follow us if you haven't already to keep up to date!
June 10, 2025 at 2:30 PM
We thought we should probably re-introduce ourselves 👋
We're ENDO1000, and here is a run down of who we are and what we want to do.
You can always find more information about what stage the project is in on our website, or follow us if you haven't already to keep up to date!
We're ENDO1000, and here is a run down of who we are and what we want to do.
You can always find more information about what stage the project is in on our website, or follow us if you haven't already to keep up to date!
Ever had people ask 'what is endometriosis anyway?' because we definitely have! 🩸
We're hear to #TALKendo and breakdown a bit more about endometriosis and why we're researching it. If you want to read more about endometriosis, or our project, head over to our website (link in bio)
We're hear to #TALKendo and breakdown a bit more about endometriosis and why we're researching it. If you want to read more about endometriosis, or our project, head over to our website (link in bio)
June 6, 2025 at 4:00 PM
Ever had people ask 'what is endometriosis anyway?' because we definitely have! 🩸
We're hear to #TALKendo and breakdown a bit more about endometriosis and why we're researching it. If you want to read more about endometriosis, or our project, head over to our website (link in bio)
We're hear to #TALKendo and breakdown a bit more about endometriosis and why we're researching it. If you want to read more about endometriosis, or our project, head over to our website (link in bio)
It's been a week since the Edinburgh Marathon Festival! 🏃
Dayna, who professes herself as 'not a natural runner', speaks about why she chose to join the marathon relay for ENDO1000, despite the tough training. Head to our website for more about fundraising, or donate at the link in our bio!
Dayna, who professes herself as 'not a natural runner', speaks about why she chose to join the marathon relay for ENDO1000, despite the tough training. Head to our website for more about fundraising, or donate at the link in our bio!
June 2, 2025 at 10:30 AM
It's been a week since the Edinburgh Marathon Festival! 🏃
Dayna, who professes herself as 'not a natural runner', speaks about why she chose to join the marathon relay for ENDO1000, despite the tough training. Head to our website for more about fundraising, or donate at the link in our bio!
Dayna, who professes herself as 'not a natural runner', speaks about why she chose to join the marathon relay for ENDO1000, despite the tough training. Head to our website for more about fundraising, or donate at the link in our bio!
“Women with endometriosis can lose between 1.9 and 15.8 work hours per week managing painful and fluctuating symptoms”
Could the new UK employment rights bill make an impact on working with endometriosis? We hope so 🤞
Read the article 👇
Could the new UK employment rights bill make an impact on working with endometriosis? We hope so 🤞
Read the article 👇
Left unsupported, endometriosis can bring misery for the women who suffer it – and it can damage their careers and workplace wellbeing.
Working women are too often left to deal with endometriosis alone. But big changes could be coming
Left unsupported, endometriosis can bring misery for the women who suffer it – and it can damage their careers and workplace wellbeing.
tcnv.link
May 28, 2025 at 1:13 PM
“Women with endometriosis can lose between 1.9 and 15.8 work hours per week managing painful and fluctuating symptoms”
Could the new UK employment rights bill make an impact on working with endometriosis? We hope so 🤞
Read the article 👇
Could the new UK employment rights bill make an impact on working with endometriosis? We hope so 🤞
Read the article 👇
Yesterday our runners took on the Edinburgh Marathon Festival relay, tackling rain, wind, hail, before finishing with sunshine as they crossed the finish line and collected their medals 🏅
So far they have raised an incredible £1,580, donate at the link in our bio!
So far they have raised an incredible £1,580, donate at the link in our bio!
May 26, 2025 at 9:45 AM
Yesterday our runners took on the Edinburgh Marathon Festival relay, tackling rain, wind, hail, before finishing with sunshine as they crossed the finish line and collected their medals 🏅
So far they have raised an incredible £1,580, donate at the link in our bio!
So far they have raised an incredible £1,580, donate at the link in our bio!
Reposted by ENDO1000
Fantastic talk from Dr Lucy Whitaker from Centre for Reproductive Health at University of Edinburgh at #wce2025 presenting work from our PhD student Katherine Edgley on the use of wearable technology in #endometriosis @edinuni-irr.bsky.social @endo1000.bsky.social
May 22, 2025 at 11:06 PM
Fantastic talk from Dr Lucy Whitaker from Centre for Reproductive Health at University of Edinburgh at #wce2025 presenting work from our PhD student Katherine Edgley on the use of wearable technology in #endometriosis @edinuni-irr.bsky.social @endo1000.bsky.social
When co-head, Andrew Horne, took to the stage he shared the importance behind our project, and the disparity of research in to women's health.
We have already made an amazing amount of progress, but we still need your support. Find out more at www.endo1000.com/...
We have already made an amazing amount of progress, but we still need your support. Find out more at www.endo1000.com/...
May 20, 2025 at 3:25 PM
When co-head, Andrew Horne, took to the stage he shared the importance behind our project, and the disparity of research in to women's health.
We have already made an amazing amount of progress, but we still need your support. Find out more at www.endo1000.com/...
We have already made an amazing amount of progress, but we still need your support. Find out more at www.endo1000.com/...