Lily K
@elilykelsey.bsky.social
Doxie Mom, Proudly Autistic, Disney lover, pin collector
Thanksgiving…
Cultural implications cannot be ignored. It’s a day of remembering & grief for Indigenous Americans. We cannot forget that. It’s a struggle day for many autistics. Personally I like the food, but I don’t think I always did.
Cultural implications cannot be ignored. It’s a day of remembering & grief for Indigenous Americans. We cannot forget that. It’s a struggle day for many autistics. Personally I like the food, but I don’t think I always did.
November 27, 2025 at 8:53 PM
Thanksgiving…
Cultural implications cannot be ignored. It’s a day of remembering & grief for Indigenous Americans. We cannot forget that. It’s a struggle day for many autistics. Personally I like the food, but I don’t think I always did.
Cultural implications cannot be ignored. It’s a day of remembering & grief for Indigenous Americans. We cannot forget that. It’s a struggle day for many autistics. Personally I like the food, but I don’t think I always did.
Sleep is difficult again. Part of that was Miss Weenie shaking and poking me awake at 11pm. She was not due for pain meds for hours. I’m hoping it was the wind because I did get her to sleep on the couch again but was up at like 3am with pretty intermittent sleep. Yesterday was not a great day.
November 26, 2025 at 1:37 PM
Sleep is difficult again. Part of that was Miss Weenie shaking and poking me awake at 11pm. She was not due for pain meds for hours. I’m hoping it was the wind because I did get her to sleep on the couch again but was up at like 3am with pretty intermittent sleep. Yesterday was not a great day.
Last thoughts for the day…1) it was good while it lasted. Headaches are back. Symptoms are back. Inflammation is back. 2) I finished the laundry at least today. One task I don’t enjoy that I 95% out of the way. 3) doggo sleeping in a small pile of laundry I couldn’t get folded fast enough…
November 25, 2025 at 4:23 AM
Last thoughts for the day…1) it was good while it lasted. Headaches are back. Symptoms are back. Inflammation is back. 2) I finished the laundry at least today. One task I don’t enjoy that I 95% out of the way. 3) doggo sleeping in a small pile of laundry I couldn’t get folded fast enough…
A week without headaches was nice. It’s back… still gotta try to finish tasks.
November 24, 2025 at 7:04 PM
A week without headaches was nice. It’s back… still gotta try to finish tasks.
This this this this this!! Holy wow, they did amazing a putting together a full on about the whole “profound autism” thing and the parents who are “grieving” autism & and the ugly realities behind it.
thinkingautismguide.com/2022/11/grie...
thinkingautismguide.com/2022/11/grie...
Grievance Parents Are Autism's MAGA Movement — THINKING PERSON'S GUIDE TO AUTISM
Horrified by the misinformation peddled by MAGA truthers? You should be just as concerned about grievance-based autism parent orgs.
thinkingautismguide.com
November 24, 2025 at 3:57 PM
This this this this this!! Holy wow, they did amazing a putting together a full on about the whole “profound autism” thing and the parents who are “grieving” autism & and the ugly realities behind it.
thinkingautismguide.com/2022/11/grie...
thinkingautismguide.com/2022/11/grie...
Back pain & hip pain are returning. Day 5 of steroids I definitely noticed the potential for the negative side effects to start. It was nice to have the inflammation alleviated for a hot minute though. My OT is going to bring her vibration plate for me to try some time, which might be a way to
November 24, 2025 at 3:03 PM
Back pain & hip pain are returning. Day 5 of steroids I definitely noticed the potential for the negative side effects to start. It was nice to have the inflammation alleviated for a hot minute though. My OT is going to bring her vibration plate for me to try some time, which might be a way to
I made nachos! This is a major executive function win. Like, my brain wanted nachos, it realized I could try to make them, made a list of what was needed, was able to get the ingredients on a quick get them post laser therapy for Weenie, and then assembled a lunch, refrigerated left overs.
November 21, 2025 at 7:02 PM
I made nachos! This is a major executive function win. Like, my brain wanted nachos, it realized I could try to make them, made a list of what was needed, was able to get the ingredients on a quick get them post laser therapy for Weenie, and then assembled a lunch, refrigerated left overs.
In personal news…as I guess I choose dissociation or whatever since there’s a whole life of chronic illness that demands a lot out of me. 5 day course of steroids has actually been fine. It tends to be like this with the non-dose pack course. That tends to be less harsh for me. Actually getting
November 21, 2025 at 3:45 AM
In personal news…as I guess I choose dissociation or whatever since there’s a whole life of chronic illness that demands a lot out of me. 5 day course of steroids has actually been fine. It tends to be like this with the non-dose pack course. That tends to be less harsh for me. Actually getting
Today’s US news cycle 😬😬. Another day of something literally outrageous happening, but the needle has incrementally moved toward tolerance of this rhetoric. It happened in the past in…
It’s still wild we watch this stuff regularly & I cycle between many states of being over it.
It’s still wild we watch this stuff regularly & I cycle between many states of being over it.
November 21, 2025 at 3:40 AM
Today’s US news cycle 😬😬. Another day of something literally outrageous happening, but the needle has incrementally moved toward tolerance of this rhetoric. It happened in the past in…
It’s still wild we watch this stuff regularly & I cycle between many states of being over it.
It’s still wild we watch this stuff regularly & I cycle between many states of being over it.
Ah the joy of prednisone. It’s helping the sinus inflammation but aggravating the sleep issues. And having the hiccups for 45 mins didn’t help. Outcome of PCP appt was to do a course of steroids to knock down sinus inflammation to keep anything from turning to a bacterial sinus infection if possible
November 19, 2025 at 6:25 AM
Ah the joy of prednisone. It’s helping the sinus inflammation but aggravating the sleep issues. And having the hiccups for 45 mins didn’t help. Outcome of PCP appt was to do a course of steroids to knock down sinus inflammation to keep anything from turning to a bacterial sinus infection if possible
I’m thinking it’s probably a reality at this point that this might be playing a part in my life. I seriously wondered in 2022. I feel like I can confidently check yes on a lot of the stuff.
www.cdc.gov/me-cfs/signs...
www.cdc.gov/me-cfs/signs...
Symptoms of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
ME/CFS has 5 core symptoms. Diagnosis requires 3 main symptoms and at least 1 other symptom
www.cdc.gov
November 16, 2025 at 4:04 AM
I’m thinking it’s probably a reality at this point that this might be playing a part in my life. I seriously wondered in 2022. I feel like I can confidently check yes on a lot of the stuff.
www.cdc.gov/me-cfs/signs...
www.cdc.gov/me-cfs/signs...
On a day when you have a fever, it’s probably not wise to attempt an experiment especially after crazy medical issues, but I have adhd med generics that are part of the recall, not recalled that are “old” but not expired (I don’t think) same dose, name brand…why do I feel completely different at
November 16, 2025 at 12:04 AM
On a day when you have a fever, it’s probably not wise to attempt an experiment especially after crazy medical issues, but I have adhd med generics that are part of the recall, not recalled that are “old” but not expired (I don’t think) same dose, name brand…why do I feel completely different at
Snagged an appt with my PCP. Was going to wait til I could ideally get a Thurs/fri to get my vaccines since I had to wait 3 mos post covid, but I need a “I’m sick & my body is chronic illnessing in concerning ways” visit.
November 15, 2025 at 8:32 PM
Snagged an appt with my PCP. Was going to wait til I could ideally get a Thurs/fri to get my vaccines since I had to wait 3 mos post covid, but I need a “I’m sick & my body is chronic illnessing in concerning ways” visit.
I had a solid 2-3 hours where I was nearly 1 foot out the door to the ER this afternoon. I felt so unwell but it was just odd & off. Weakness. Shaking. I think I was experiencing dizziness in my head but I’m not 100% because I struggle to put words to what I’m feeling so I couldn’t describe it but
November 15, 2025 at 4:09 AM
I had a solid 2-3 hours where I was nearly 1 foot out the door to the ER this afternoon. I felt so unwell but it was just odd & off. Weakness. Shaking. I think I was experiencing dizziness in my head but I’m not 100% because I struggle to put words to what I’m feeling so I couldn’t describe it but
Woke up again feeling my 5th day of just blah but really 4th day of incapacitating flares. My OT actually had the same thing & is getting the same sinus pressure headaches that won’t go away. I crashed for like 3 hours & did manage GF Mac & cheese & broccoli for dinner & dried mango for later snack
November 14, 2025 at 3:59 AM
Woke up again feeling my 5th day of just blah but really 4th day of incapacitating flares. My OT actually had the same thing & is getting the same sinus pressure headaches that won’t go away. I crashed for like 3 hours & did manage GF Mac & cheese & broccoli for dinner & dried mango for later snack
This week looks like this. Rollercoaster weather pattern is not my friend. Sinus migraine has been back with a vengeance too
November 13, 2025 at 5:18 AM
This week looks like this. Rollercoaster weather pattern is not my friend. Sinus migraine has been back with a vengeance too
I know I have fibro, EDS, and PCOS…and every one of those cause exhaustion. And maybe it’s just another really really bad year again after a couple winters that were ok. I could not move last night or well today at all & Weenie dog and I just slept pretty much all day today. My back is so angry
November 10, 2025 at 3:20 AM
I know I have fibro, EDS, and PCOS…and every one of those cause exhaustion. And maybe it’s just another really really bad year again after a couple winters that were ok. I could not move last night or well today at all & Weenie dog and I just slept pretty much all day today. My back is so angry
Time change has been brutal. I can’t stay awake this week. My pain is also increased a lot & all the work I feel like I put in physically rehabbing feels undone like my body just can’t function anymore. It just quit. I had a pretty significant POTS-like episode yesterday. Today it feels like my ribs
November 8, 2025 at 3:30 AM
Time change has been brutal. I can’t stay awake this week. My pain is also increased a lot & all the work I feel like I put in physically rehabbing feels undone like my body just can’t function anymore. It just quit. I had a pretty significant POTS-like episode yesterday. Today it feels like my ribs
Last dental appt today for cavities. My tongue got cut. It’s still painful, which I hope has fixed itself by tomorrow more. I just have the deep cleaning now and then some sensitivity on my left side that may be some more fillings needed but I kind of have to see how those go.
October 30, 2025 at 3:45 AM
Last dental appt today for cavities. My tongue got cut. It’s still painful, which I hope has fixed itself by tomorrow more. I just have the deep cleaning now and then some sensitivity on my left side that may be some more fillings needed but I kind of have to see how those go.
Oh crap…there’s a time change after Halloween. Cue double transition nightmare. I already determined Halloween lasts until Thanksgiving this year (dachshund hunts for Christmas dachshunds will continue) but Halloween nail sticker gel application will continue, movies will continue, etc. this is
October 27, 2025 at 4:41 PM
Oh crap…there’s a time change after Halloween. Cue double transition nightmare. I already determined Halloween lasts until Thanksgiving this year (dachshund hunts for Christmas dachshunds will continue) but Halloween nail sticker gel application will continue, movies will continue, etc. this is
She did it, she slept through the night! Now she’s snuggling with me this morning. Meds on board. Ahead of any pain she has had for over 12 hrs now, I believe! And I’m randomly scrolling through pumpkin spice flavored things w/ pure curiosity of what comes. Bonnie maman has a spread! I never knew!
October 26, 2025 at 11:58 AM
She did it, she slept through the night! Now she’s snuggling with me this morning. Meds on board. Ahead of any pain she has had for over 12 hrs now, I believe! And I’m randomly scrolling through pumpkin spice flavored things w/ pure curiosity of what comes. Bonnie maman has a spread! I never knew!
I have no idea how many weeks it has been since this started but last night doggo was up on and off a bunch. However today, she has eaten the most I’ve had her eat & has been the most settled I’ve seen during the day in a long while. 🤞🤞🤞. Activity restrictions. I’m excessively careful about
October 26, 2025 at 4:24 AM
I have no idea how many weeks it has been since this started but last night doggo was up on and off a bunch. However today, she has eaten the most I’ve had her eat & has been the most settled I’ve seen during the day in a long while. 🤞🤞🤞. Activity restrictions. I’m excessively careful about
Doggo had me up at 3am shaking and finally I just had it and swapped back to 8 hour intervals of pain meds plus added her muscle relaxer back in which I can do at 8 hour intervals. I’m treating it as back pain now and decide alright, I’m not chasing pain anymore. We are getting ahead of pain
October 24, 2025 at 1:26 AM
Doggo had me up at 3am shaking and finally I just had it and swapped back to 8 hour intervals of pain meds plus added her muscle relaxer back in which I can do at 8 hour intervals. I’m treating it as back pain now and decide alright, I’m not chasing pain anymore. We are getting ahead of pain
Agree! And how do you process this, like I just kind of spit it out simultaneously not necessarily using the words interchangeably because they aren’t but like it goes together so tightly that talking about an autistic experience, I should probably spit out the trauma words but haven’t thought of it
October 23, 2025 at 4:49 PM
Agree! And how do you process this, like I just kind of spit it out simultaneously not necessarily using the words interchangeably because they aren’t but like it goes together so tightly that talking about an autistic experience, I should probably spit out the trauma words but haven’t thought of it
Letter to the editor by a non-speaking autistic man. Spelling & typing & support with dyspraxia/apraxia & whatever other supports are needed to support spelling & typing funding are 10000% critical!
October 22, 2025 at 1:30 AM
Letter to the editor by a non-speaking autistic man. Spelling & typing & support with dyspraxia/apraxia & whatever other supports are needed to support spelling & typing funding are 10000% critical!