Lily K
@elilykelsey.bsky.social
Doxie Mom, Proudly Autistic, Disney lover, pin collector
I had a solid 2-3 hours where I was nearly 1 foot out the door to the ER this afternoon. I felt so unwell but it was just odd & off. Weakness. Shaking. I think I was experiencing dizziness in my head but I’m not 100% because I struggle to put words to what I’m feeling so I couldn’t describe it but
November 15, 2025 at 4:09 AM
I had a solid 2-3 hours where I was nearly 1 foot out the door to the ER this afternoon. I felt so unwell but it was just odd & off. Weakness. Shaking. I think I was experiencing dizziness in my head but I’m not 100% because I struggle to put words to what I’m feeling so I couldn’t describe it but
Woke up again feeling my 5th day of just blah but really 4th day of incapacitating flares. My OT actually had the same thing & is getting the same sinus pressure headaches that won’t go away. I crashed for like 3 hours & did manage GF Mac & cheese & broccoli for dinner & dried mango for later snack
November 14, 2025 at 3:59 AM
Woke up again feeling my 5th day of just blah but really 4th day of incapacitating flares. My OT actually had the same thing & is getting the same sinus pressure headaches that won’t go away. I crashed for like 3 hours & did manage GF Mac & cheese & broccoli for dinner & dried mango for later snack
This week looks like this. Rollercoaster weather pattern is not my friend. Sinus migraine has been back with a vengeance too
November 13, 2025 at 5:18 AM
This week looks like this. Rollercoaster weather pattern is not my friend. Sinus migraine has been back with a vengeance too
I know I have fibro, EDS, and PCOS…and every one of those cause exhaustion. And maybe it’s just another really really bad year again after a couple winters that were ok. I could not move last night or well today at all & Weenie dog and I just slept pretty much all day today. My back is so angry
November 10, 2025 at 3:20 AM
I know I have fibro, EDS, and PCOS…and every one of those cause exhaustion. And maybe it’s just another really really bad year again after a couple winters that were ok. I could not move last night or well today at all & Weenie dog and I just slept pretty much all day today. My back is so angry
Time change has been brutal. I can’t stay awake this week. My pain is also increased a lot & all the work I feel like I put in physically rehabbing feels undone like my body just can’t function anymore. It just quit. I had a pretty significant POTS-like episode yesterday. Today it feels like my ribs
November 8, 2025 at 3:30 AM
Time change has been brutal. I can’t stay awake this week. My pain is also increased a lot & all the work I feel like I put in physically rehabbing feels undone like my body just can’t function anymore. It just quit. I had a pretty significant POTS-like episode yesterday. Today it feels like my ribs
Last dental appt today for cavities. My tongue got cut. It’s still painful, which I hope has fixed itself by tomorrow more. I just have the deep cleaning now and then some sensitivity on my left side that may be some more fillings needed but I kind of have to see how those go.
October 30, 2025 at 3:45 AM
Last dental appt today for cavities. My tongue got cut. It’s still painful, which I hope has fixed itself by tomorrow more. I just have the deep cleaning now and then some sensitivity on my left side that may be some more fillings needed but I kind of have to see how those go.
Oh crap…there’s a time change after Halloween. Cue double transition nightmare. I already determined Halloween lasts until Thanksgiving this year (dachshund hunts for Christmas dachshunds will continue) but Halloween nail sticker gel application will continue, movies will continue, etc. this is
October 27, 2025 at 4:41 PM
Oh crap…there’s a time change after Halloween. Cue double transition nightmare. I already determined Halloween lasts until Thanksgiving this year (dachshund hunts for Christmas dachshunds will continue) but Halloween nail sticker gel application will continue, movies will continue, etc. this is
She did it, she slept through the night! Now she’s snuggling with me this morning. Meds on board. Ahead of any pain she has had for over 12 hrs now, I believe! And I’m randomly scrolling through pumpkin spice flavored things w/ pure curiosity of what comes. Bonnie maman has a spread! I never knew!
October 26, 2025 at 11:58 AM
She did it, she slept through the night! Now she’s snuggling with me this morning. Meds on board. Ahead of any pain she has had for over 12 hrs now, I believe! And I’m randomly scrolling through pumpkin spice flavored things w/ pure curiosity of what comes. Bonnie maman has a spread! I never knew!
I have no idea how many weeks it has been since this started but last night doggo was up on and off a bunch. However today, she has eaten the most I’ve had her eat & has been the most settled I’ve seen during the day in a long while. 🤞🤞🤞. Activity restrictions. I’m excessively careful about
October 26, 2025 at 4:24 AM
I have no idea how many weeks it has been since this started but last night doggo was up on and off a bunch. However today, she has eaten the most I’ve had her eat & has been the most settled I’ve seen during the day in a long while. 🤞🤞🤞. Activity restrictions. I’m excessively careful about
Doggo had me up at 3am shaking and finally I just had it and swapped back to 8 hour intervals of pain meds plus added her muscle relaxer back in which I can do at 8 hour intervals. I’m treating it as back pain now and decide alright, I’m not chasing pain anymore. We are getting ahead of pain
October 24, 2025 at 1:26 AM
Doggo had me up at 3am shaking and finally I just had it and swapped back to 8 hour intervals of pain meds plus added her muscle relaxer back in which I can do at 8 hour intervals. I’m treating it as back pain now and decide alright, I’m not chasing pain anymore. We are getting ahead of pain
Agree! And how do you process this, like I just kind of spit it out simultaneously not necessarily using the words interchangeably because they aren’t but like it goes together so tightly that talking about an autistic experience, I should probably spit out the trauma words but haven’t thought of it
October 23, 2025 at 4:49 PM
Agree! And how do you process this, like I just kind of spit it out simultaneously not necessarily using the words interchangeably because they aren’t but like it goes together so tightly that talking about an autistic experience, I should probably spit out the trauma words but haven’t thought of it
Letter to the editor by a non-speaking autistic man. Spelling & typing & support with dyspraxia/apraxia & whatever other supports are needed to support spelling & typing funding are 10000% critical!
October 22, 2025 at 1:30 AM
Letter to the editor by a non-speaking autistic man. Spelling & typing & support with dyspraxia/apraxia & whatever other supports are needed to support spelling & typing funding are 10000% critical!
Joy another person crossing my timeline pissing on LSN autistics. It’s funny because this person is screaming that LSN don’t want to be associated HSN & have internalized ableism. Then says LSN are jealous of HSN diagnosis and their child has “full spectrum autism and more autism, not less”
October 21, 2025 at 11:34 PM
Joy another person crossing my timeline pissing on LSN autistics. It’s funny because this person is screaming that LSN don’t want to be associated HSN & have internalized ableism. Then says LSN are jealous of HSN diagnosis and their child has “full spectrum autism and more autism, not less”
I think I’ve accepted that I’m fully in burn out. It means many things. Working on accommodating myself & doing the things that bring regulation & comfort & since I don’t know that I ever emerged from burnout last time, there’s not even a question of trying to speed the process. If I want to regain
October 20, 2025 at 9:16 PM
I think I’ve accepted that I’m fully in burn out. It means many things. Working on accommodating myself & doing the things that bring regulation & comfort & since I don’t know that I ever emerged from burnout last time, there’s not even a question of trying to speed the process. If I want to regain
Being socialized female with autism & maybe PDA profile & definitely burnt out is a nightmare. Heavy on the social structures…like had I not taken the trajectory I did in my 20s, how much sooner would I have burnt out? Would I have ever had an explanation? At least this go round there was
October 19, 2025 at 3:46 AM
Being socialized female with autism & maybe PDA profile & definitely burnt out is a nightmare. Heavy on the social structures…like had I not taken the trajectory I did in my 20s, how much sooner would I have burnt out? Would I have ever had an explanation? At least this go round there was
Redid my nail gel stickers. Doggo is doing better but is also not like way way way better yet. Finally getting my waiver massage therapy going. After not being able to book in town, I just gave up & went back to who I went to when I lived in the place I lived before. Honestly, they are worth the
October 18, 2025 at 4:03 AM
Redid my nail gel stickers. Doggo is doing better but is also not like way way way better yet. Finally getting my waiver massage therapy going. After not being able to book in town, I just gave up & went back to who I went to when I lived in the place I lived before. Honestly, they are worth the
Doggo had another difficult-ish night. It wasn’t as bad as prior ones, but she still struggled some. I hope whatever this is makes its way through her system cuz poor thing I just hate her feeling so miserable.
October 15, 2025 at 4:11 PM
Doggo had another difficult-ish night. It wasn’t as bad as prior ones, but she still struggled some. I hope whatever this is makes its way through her system cuz poor thing I just hate her feeling so miserable.
Literally so deliriously tired today. I wore tags attached to my shirt, brought groceries home & sat then on the floor & then went to appointment & didn’t even remember they were there…my social abilities today were poor. Like, the bluntness was out in full force. I didn’t even know the person
October 14, 2025 at 11:12 PM
Literally so deliriously tired today. I wore tags attached to my shirt, brought groceries home & sat then on the floor & then went to appointment & didn’t even remember they were there…my social abilities today were poor. Like, the bluntness was out in full force. I didn’t even know the person
It has been an extremely challenging 24 hrs with doggo. She had a set back in feeling better & it was awful there was nothing that could make her feel better. She was crawling all over me, scratching at me for hours on end. Finally late afternoon she started feeling better. Now, I think she’s
October 13, 2025 at 3:32 AM
It has been an extremely challenging 24 hrs with doggo. She had a set back in feeling better & it was awful there was nothing that could make her feel better. She was crawling all over me, scratching at me for hours on end. Finally late afternoon she started feeling better. Now, I think she’s
Doggo is improving but still struggling. She actually masks her unwellness when she is not home with me & then when we get home she’s full on pacing and scratching at me b/c she’s still not feeling well. She slept better last night, which is good, but I’m at my overstimulated ropes. Everything was
October 10, 2025 at 2:43 AM
Doggo is improving but still struggling. She actually masks her unwellness when she is not home with me & then when we get home she’s full on pacing and scratching at me b/c she’s still not feeling well. She slept better last night, which is good, but I’m at my overstimulated ropes. Everything was
Well…this explains just about everything
October 9, 2025 at 8:05 AM
Well…this explains just about everything
Poor doggo. She had her appt and basically bad IBD flare we are attacking with everything. I think the most valuable is the stomach meds. We’re doing a stomach coating one to take down any potential ulceration she might have. Her usual flagyll she has during flare ups plus an anti-nausea. Her IBD
October 9, 2025 at 3:50 AM
Poor doggo. She had her appt and basically bad IBD flare we are attacking with everything. I think the most valuable is the stomach meds. We’re doing a stomach coating one to take down any potential ulceration she might have. Her usual flagyll she has during flare ups plus an anti-nausea. Her IBD
Doggo finally goes in tomorrow to be seen. Hopefully she feels better & we get her on meds. One funny thing from today, I stopped to get some stuff to finish stocking up on pumpkin smelling stuff & the two people working were talking about the new TS album & I was about dying laughing b/c it was
October 8, 2025 at 4:39 AM
Doggo finally goes in tomorrow to be seen. Hopefully she feels better & we get her on meds. One funny thing from today, I stopped to get some stuff to finish stocking up on pumpkin smelling stuff & the two people working were talking about the new TS album & I was about dying laughing b/c it was
Miss Weenie dog is doing better today. She slept a lot so I think she’s finally comfortable. I cut her meals in 1/2 & heated them w/ water which seemed to help a lot. Am dropping her back to 2x a day on her pain meds. Finished my puzzle. Napped a bunch which I guess makes sense since I was up at 4
October 7, 2025 at 1:34 AM
Miss Weenie dog is doing better today. She slept a lot so I think she’s finally comfortable. I cut her meals in 1/2 & heated them w/ water which seemed to help a lot. Am dropping her back to 2x a day on her pain meds. Finished my puzzle. Napped a bunch which I guess makes sense since I was up at 4
Doggo was a little better today but had moments where her stomach was bothering her. It seemed not back pain related and more stomach ache related. Probably have to move her vet appt to tomorrow and reschedule her wellness check up. Made more puzzle progress. I am wondering if I’m in full on
October 6, 2025 at 5:00 AM
Doggo was a little better today but had moments where her stomach was bothering her. It seemed not back pain related and more stomach ache related. Probably have to move her vet appt to tomorrow and reschedule her wellness check up. Made more puzzle progress. I am wondering if I’m in full on