Gross.

It sucks beyond all suckage.

I tried it too and we didn’t get along.

But I’ve heard from lots of patients who were helped by it.

{{{Hugs}}}.

It’s a reality that’s hard to fathom, even when living in it.

{{{Hugs}}}.

This is especially powerful: “I felt sort of pre-dead: I’d given up all my goals for life, every purpose I’d organized myself around, every expectation that used to ground me. And yet I was still alive. So what was left, with all of that gone? What is it to live, pre-dead?”

What indeed?

There’s so many good ones. 😁

The only thing that helped my brain fog was the amino acid Phosphatidyl Serine. (Some ppl do better with the -choline version.)

If I forget, I can tell my brain is off.

It’s the only supplement I recommend whole heartedly!

It usually takes me about an hour to be able to get out of bed when I wake up. And that's on a good day.

Thank you Chelsea for letting me share.

Be sure to visit the @meactnet.bsky.social Severe ME Artists Project 2025 to see more art created by those of us suffering from MEcfs. 5/5

because we all say a lot how it’s like our batteries just don’t ever fully charge, and sometimes [they’re at] at 0%. And then it’s like, ‘ah what if we just sometimes feel we don’t have them batteries at all?’.”

Which is definitely my experience with MEcfs. Sometimes I just can’t move. 4/

Regarding her drawing, she told me “I think I just felt particularly awful that day, and just utterly drained and like the life had been sucked out of me, so the thought of batteries being taken out of me was floating round in my head, 3/

Chelsea lives in the U.K. and is in one of my MEcfs support groups. She doesn’t consider herself severe, more on the worse end of moderate, and said “It is a hard thing to be able to come to terms with; I was severe for a couple of months a while back and I was in denial about it at the time.” 2/

(BTW, although the gallery can be viewed on mobile, it's best on web to get the full impact.)

*Apparently I admitted it last year, but it's only showing up in my memories for my FB page, not my FB profile, and I of course completely forgot. 8/8