@dobe1.bsky.social
Patient advocate after throat cancer in 1995: From Ayr to Blogger, Facilitator, Speaker with an OBE and a Professorship (Hon) for University of Galway
@swallowsgroup #HNCCONF2025
Check out Be Part of Research to find out how to take part and get involved bepartofresearch.nihr.ac.uk
Check out Be Part of Research to find out how to take part and get involved bepartofresearch.nihr.ac.uk
Be part of life-changing research
Find out how you can take part in health and care research through Be Part of Research #BePartofResearch
bepartofresearch.nihr.ac.uk
November 5, 2025 at 3:56 PM
@swallowsgroup #HNCCONF2025
Check out Be Part of Research to find out how to take part and get involved bepartofresearch.nihr.ac.uk
Check out Be Part of Research to find out how to take part and get involved bepartofresearch.nihr.ac.uk
Watch the moment diplomats walk out as Israeli PM speaks at UN - Sky News
September 26, 2025 at 3:02 PM
Watch the moment diplomats walk out as Israeli PM speaks at UN - Sky News
What the science really says about autism – and why Trump is so wrong - The i Paper
September 23, 2025 at 10:57 AM
What the science really says about autism – and why Trump is so wrong - The i Paper
Reposted
Trump has received over 45,000 angry replies from MAGA to his Truth Social post on Epstein. Here are some of the replies that received the most likes. open.substack.com/pub/meidasto...
Disillusioned Trump Fans Respond to Him on Epstein
Truth Social was on fire responding to Trump's Epstein post.
open.substack.com
July 14, 2025 at 12:58 PM
Trump has received over 45,000 angry replies from MAGA to his Truth Social post on Epstein. Here are some of the replies that received the most likes. open.substack.com/pub/meidasto...
Reposted
Empowering-Patients- through-Clinical-Trials- 3.13.25_clean.pdf aspe.hhs.gov/sites/defaul...
aspe.hhs.gov
July 14, 2025 at 5:35 PM
Empowering-Patients- through-Clinical-Trials- 3.13.25_clean.pdf aspe.hhs.gov/sites/defaul...
Some thoughts about my recent visit to @universityofgalway.bsky.social involveddotblog.wordpress.com/2025/07/14/h...
Hope from FutureTrials25
Last month, in July, I had the absolute pleasure of attending the FutureTrials25 event hosted by the Centre for Clinical Trials at the University of Galway. It was a day filled with medical discove…
involveddotblog.wordpress.com
July 14, 2025 at 6:04 PM
Some thoughts about my recent visit to @universityofgalway.bsky.social involveddotblog.wordpress.com/2025/07/14/h...
Reposted
Registration is now open for Where's the Patient Voice 2025!
Patient’s Voice 2025: 3rd International Conference | UBC Health health.ubc.ca/events/patie...
Patient’s Voice 2025: 3rd International Conference | UBC Health health.ubc.ca/events/patie...
Patient’s Voice 2025: 3rd International Conference
About the Conference
health.ubc.ca
July 8, 2025 at 4:04 PM
Registration is now open for Where's the Patient Voice 2025!
Patient’s Voice 2025: 3rd International Conference | UBC Health health.ubc.ca/events/patie...
Patient’s Voice 2025: 3rd International Conference | UBC Health health.ubc.ca/events/patie...
Reposted
I’m still curious how he knows so much about what’s in the files.
July 8, 2025 at 5:30 PM
I’m still curious how he knows so much about what’s in the files.
Reposted
The tragedy is particularly chilling in light of a May open letter issued by five former NWS directors, who wrote that agency staff “will have an impossible task to continue its current level of services” in light of the Trump cuts.
Tragedy strikes Texas and some experts blame Trump cuts for the devastation
Local offices of the National Weather Service reportedly had critical staff vacancies.
www.motherjones.com
July 7, 2025 at 10:06 PM
The tragedy is particularly chilling in light of a May open letter issued by five former NWS directors, who wrote that agency staff “will have an impossible task to continue its current level of services” in light of the Trump cuts.
Reposted
Reposted
If everyone who follows us on Bluesky got another person to follow us on Bluesky then we'd have even more followers on Bluesky.
Who do you know on Bluesky that doesn't follow us on Bluesky?
Who do you know on Bluesky that doesn't follow us on Bluesky?
June 24, 2025 at 11:47 AM
If everyone who follows us on Bluesky got another person to follow us on Bluesky then we'd have even more followers on Bluesky.
Who do you know on Bluesky that doesn't follow us on Bluesky?
Who do you know on Bluesky that doesn't follow us on Bluesky?
Reposted
We now have more than 18000 followers on Bluesky. Thanks to everyone who has followed us here. It's a great place to be. ❤️
That's also more followers than we have on Facebook or Instagram. 👏
That's also more followers than we have on Facebook or Instagram. 👏
June 24, 2025 at 10:40 AM
We now have more than 18000 followers on Bluesky. Thanks to everyone who has followed us here. It's a great place to be. ❤️
That's also more followers than we have on Facebook or Instagram. 👏
That's also more followers than we have on Facebook or Instagram. 👏
Reposted
Trump canceled the briefing to Congress on the Iran bombings at the last minute and provided no explanation, but the leaked report saying the operation was not as successful as he claimed is definitely fake news because the two things can’t possibly be connected.
June 25, 2025 at 2:18 AM
Trump canceled the briefing to Congress on the Iran bombings at the last minute and provided no explanation, but the leaked report saying the operation was not as successful as he claimed is definitely fake news because the two things can’t possibly be connected.
Reporting trial results to those who take part in health research! What core elements should be included in these reports? oxfordbrc.nihr.ac.uk/pair/a-delph...
A Delphi survey to identify a core set of items for sharing the results of randomised trials with patients and the public | NIHR Oxford Biomedical Research Centre
oxfordbrc.nihr.ac.uk
May 27, 2025 at 8:04 PM
Reporting trial results to those who take part in health research! What core elements should be included in these reports? oxfordbrc.nihr.ac.uk/pair/a-delph...
Reposted
The National Science Foundation, a major government funder of basic science research, is being shaken up with over 1,000 grants already terminated and the White House looking to halve its budget.
Scientists reel as turmoil roils National Science Foundation
The National Science Foundation, a major government funder of basic science research, is being shaken up with over 1,000 grants already terminated and the White House looking to halve its budget
www.npr.org
May 2, 2025 at 6:54 PM
The National Science Foundation, a major government funder of basic science research, is being shaken up with over 1,000 grants already terminated and the White House looking to halve its budget.
Reposted
PLRC joined other research organizations to provide statements for yesterday’s Senate Appropriations hearing, Biomedical Research: Keeping America’s Edge in Innovation.
Our statement is under US Congress section here: patientresearchcovid19.com/advocacy/ 1/
Our statement is under US Congress section here: patientresearchcovid19.com/advocacy/ 1/
Advocacy – Patient Led Research Collaborative
patientresearchcovid19.com
May 1, 2025 at 10:17 PM
PLRC joined other research organizations to provide statements for yesterday’s Senate Appropriations hearing, Biomedical Research: Keeping America’s Edge in Innovation.
Our statement is under US Congress section here: patientresearchcovid19.com/advocacy/ 1/
Our statement is under US Congress section here: patientresearchcovid19.com/advocacy/ 1/
Reposted
Watch ‘Falsely Accused: Justice by Genomics’ held at the Crick this week, with experts in science, medicine and the law discussing the case of Kathleen Folbigg and the role of genomic investigation in unexplained child deaths.
Catch up on all the expert talks:
www.crick.ac.uk/news/2025-04...
Catch up on all the expert talks:
www.crick.ac.uk/news/2025-04...
“Science uncovered the truth of why my children died, and set me free”
After twenty years in jail, convicted of killing her four children, Kathleen Folbigg is sharing her experience of being falsely accused alongside the team of scientists and lawyers who used advances i...
www.crick.ac.uk
May 2, 2025 at 3:41 PM
Watch ‘Falsely Accused: Justice by Genomics’ held at the Crick this week, with experts in science, medicine and the law discussing the case of Kathleen Folbigg and the role of genomic investigation in unexplained child deaths.
Catch up on all the expert talks:
www.crick.ac.uk/news/2025-04...
Catch up on all the expert talks:
www.crick.ac.uk/news/2025-04...
Reposted
The VA has abruptly ended the only low-interest, affordable loan modification option for thousands of vets who are behind on their mortgages.
If you're a vet at risk of foreclosure, we want to hear your story.
If you're a vet at risk of foreclosure, we want to hear your story.
If you're a military veteran at risk of foreclosure, NPR wants to hear from you
The VA has abruptly ended the only low-interest, affordable loan modification option for thousands of vets who are behind on their mortgages. We want to hear your story.
www.npr.org
May 2, 2025 at 6:30 PM
The VA has abruptly ended the only low-interest, affordable loan modification option for thousands of vets who are behind on their mortgages.
If you're a vet at risk of foreclosure, we want to hear your story.
If you're a vet at risk of foreclosure, we want to hear your story.
What does Patient, Public Involvement look like in Research Governance? What is it like to involve the public in such strategic roles? How might we better involve research with communities?
Help us find some answers wearevocal.org/wlrs/listen-... @letsgetvocal @NIHRinvolvement
Help us find some answers wearevocal.org/wlrs/listen-... @letsgetvocal @NIHRinvolvement
How do we best work together in Governance of health research?
Vocal Director Bella and public partner Derek share a new initiative and reflections on public involvement in governance of health research
wearevocal.org
April 6, 2025 at 9:28 AM
What does Patient, Public Involvement look like in Research Governance? What is it like to involve the public in such strategic roles? How might we better involve research with communities?
Help us find some answers wearevocal.org/wlrs/listen-... @letsgetvocal @NIHRinvolvement
Help us find some answers wearevocal.org/wlrs/listen-... @letsgetvocal @NIHRinvolvement
Reposted
When our partners grow and prosper, Europe grows too.
This is how a partnership should be.
This is our vision.
And this the Global Gateway method.
My remarks at the press conference → europa.eu/!796TQK
This is how a partnership should be.
This is our vision.
And this the Global Gateway method.
My remarks at the press conference → europa.eu/!796TQK
April 4, 2025 at 1:28 PM
When our partners grow and prosper, Europe grows too.
This is how a partnership should be.
This is our vision.
And this the Global Gateway method.
My remarks at the press conference → europa.eu/!796TQK
This is how a partnership should be.
This is our vision.
And this the Global Gateway method.
My remarks at the press conference → europa.eu/!796TQK
As more patients/members of the public get involved with health research boards and governance - what does it mean? wearevocal.org/wlrs/listen-... [wearevocal.org]
April 4, 2025 at 9:10 AM
As more patients/members of the public get involved with health research boards and governance - what does it mean? wearevocal.org/wlrs/listen-... [wearevocal.org]
Reposted
I posted the video over 2 years ago. People thought he was bluffing I guess.
April 3, 2025 at 11:39 AM
I posted the video over 2 years ago. People thought he was bluffing I guess.