Devin's League of Superheroes
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djaddington.bsky.social
Devin's League of Superheroes
@djaddington.bsky.social
Devin has a rare disease called Barth syndrome, which caused dilated cardiomyopathy at birth and a life-saving heart transplant at 9 weeks old. Now 20 years old, Devin’s transplanted heart is failing, and he is currently inpatient awaiting another heart.
One-month post-transplant follow-up: Dr. Yuliya Tipograf is still thrilled with Devin’s progress! Restrictions lifted, home PT starts Monday! We also swung by Mott to see our fave hematologist, Dr. Walkovich. Grateful for the love — keep that good mojo coming!

#DevinsLeague #DonateLife
March 22, 2025 at 10:48 PM
Devin’s new heart is one month strong! Read the latest on his recovery and check out his story featured by ABC12 News and University of Michigan's Frankel Cardiovascular Center:

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March 15, 2025 at 3:29 AM
After 89 days in the hospital, Devin is finally heading home! Admitted Dec 6 with heart failure, 20 years after his first transplant, he received a new heart on Feb 14. Just 18 days later, he’s rolling out of Michigan Medicine. Thank you for all the love and support! #DevinsLeague #Superheroes
March 5, 2025 at 9:59 PM
Big smiles today! Devin’s latest heart cath showed ZERO rejection, and we’re one step closer to heading home tomorrow—fingers crossed! 🤞🏼
#DevinsLeague #Superheroes #DonateLife #HeartTransplant #MaskUp #Vaccinate
March 4, 2025 at 6:35 PM
Freshly shaved and in real clothes for the first time since transplant! After a tough setback with the flu, we’re back on track, and if all goes well, Devin could be home by week’s end.

Grateful for your love, support, and our donor families—please keep the positive vibes coming!

#DevinsLeague
March 3, 2025 at 2:34 AM
We hoped for a full-circle moment—Devin’s new heart on #NationalDonorDay, discharge on #RareDiseaseDay —but the flu had other plans. He's improving and his heart looks great. Hoping to go home next week! #BarthSyndrome caused Devin’s first transplant—today, we honor all rare warriors. #DevinsLeague
February 28, 2025 at 5:20 PM
Long day in the cath lab Yesterday, but good results so far! Devin’s extra tired—hard to rest when they keep waking you up to ask if you’re resting.

Discharge Friday? Monday? I’m betting Tuesday.

Running on gratitude & caffeine. Sharing some smiles! ❤️ #DevinsLeague #DonateLife
February 25, 2025 at 6:48 PM
Check out our latest #DevinsLeague email, which includes updates, links to news stories, and ways you can help:
bit.ly/416r7Ov
February 20, 2025 at 1:28 PM
Guess who just found out he got a #hearttransplant on Friday… and that today's Monday? Devin woke up after noon today. He’s had some apple juice, eaten a little food, and—staying true to himself—made it clear he needs to be out of the hospital by March 3rd for the NHL trade deadline.
February 17, 2025 at 11:57 PM
Dr. Tipograf is happy with Devin’s progress and kept saying what a great donor heart he received! We’re taking things slow—planning for extubation tomorrow so he can rest and heal. Both moms finally got some sleep. We're so grateful for Devin’s transplant team. Thanks for the continued love!
February 16, 2025 at 5:22 PM
Surgery was a success!

We’ve all been back to see him, and though he’s still sedated and hooked up to many drips and tubes, he looks good. Most importantly, his new heart is beating strong! The team is pleased with his progress, and for the first time in a while, we can finally breathe easier.
February 15, 2025 at 10:45 AM
Just talked with the surgeon. Everything went great. He's closed up and the new heart is beating well. She said it was best case scenario, and we should be able to see him within the hour. Thanks for all the prayers and positive energy; please keep them coming.
February 15, 2025 at 8:36 AM
February 15, 2025 at 1:53 AM
After 70 days of amazing care, the 7B staff gave Devin a heartfelt send-off to the ICU—strangers who became family. Devin is in pre-op, and the team is optimistic. Surgery should take ~12 hours. We’ll update as we can. Thank you for the love and prayers—please send them to the donor family too. 💙💚
February 14, 2025 at 9:39 PM
❤️ Happy Heart Day ❤️

Devin has been offered a heart, and we’ve accepted! Surgery is today. Forever grateful to the donor, their family, and the gift that carried him for 20 years.

Please keep Devin and both donor families in your thoughts. Updates to come.

#DevinsLeague #Superheroes #DonateLife
February 14, 2025 at 11:51 AM
First time in the adult cath lab. Headed back shortly; send him lots of love and positive vibes.
#DevinsLeague #Superheroes #DonateLife #HeartTransplant #TransplantList #Day52
February 5, 2025 at 4:50 PM
Yesterday marked 60 days in the hospital as Devin waits for a new heart. This journey has been long and challenging, but the love and support from this community means everything.

📩 Read the full update and find ways to help here:
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Join Devin’s League to Support His Journey
mailchi.mp
February 4, 2025 at 2:21 PM
#Day49 on the #HeartTransplant list and #Day59 in the hospital brought VIP guests all the way from Pennsylvania - Devin’s #Barth brother, Wyatt, and his awesome parents, Amanda & Tim. Grateful for friends who get it; moments like these remind us we’re not in this alone. ♻️💙🌀
February 3, 2025 at 3:37 PM
Another way to get updates on Devin's journey to a new heart 💙♻️
February 2, 2025 at 5:44 PM