Deborah
@dembcry.bsky.social
Fearful of no change for my loved one and others - ME (chronic illness). Still looking though…
Reposted by Deborah
Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights
#MEKills #HumanRights
July 31, 2025 at 6:45 AM
Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights
#MEKills #HumanRights
Reposted by Deborah
@meactionuk.bsky.social @meactnet.bsky.social please boost on other platforms. We are scrambling for lawyers to get the sister out as the top priority. I am speaking with national print media this morning.
Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights
#MEKills #HumanRights
July 31, 2025 at 7:11 AM
@meactionuk.bsky.social @meactnet.bsky.social please boost on other platforms. We are scrambling for lawyers to get the sister out as the top priority. I am speaking with national print media this morning.
Reposted by Deborah
Hey everyone, ME advocate @janetdafoe.bsky.social is here! Her son is #pwME @whitneydafoe.bsky.social & her husband is world-renowned ME researcher Dr. Ron Davis: med.stanford.edu/sgtc/general...
He’s also Scientific Advisory Board Director at @openmedf.bsky.social
www.omf.ngo/ron-davis-ph...
He’s also Scientific Advisory Board Director at @openmedf.bsky.social
www.omf.ngo/ron-davis-ph...
November 24, 2024 at 1:30 AM
Hey everyone, ME advocate @janetdafoe.bsky.social is here! Her son is #pwME @whitneydafoe.bsky.social & her husband is world-renowned ME researcher Dr. Ron Davis: med.stanford.edu/sgtc/general...
He’s also Scientific Advisory Board Director at @openmedf.bsky.social
www.omf.ngo/ron-davis-ph...
He’s also Scientific Advisory Board Director at @openmedf.bsky.social
www.omf.ngo/ron-davis-ph...
Reposted by Deborah
Hey guys,
If anyone wants to follow me or my work @thecanaryuk.bsky.social or to follow me on other socials here's how...👇✊️
X = @NicolaCJeffery
Insta = @nicolacjeffery
Threads = @nicolacjeffery
TikTok = @njCanary
If anyone wants to follow me or my work @thecanaryuk.bsky.social or to follow me on other socials here's how...👇✊️
X = @NicolaCJeffery
Insta = @nicolacjeffery
Threads = @nicolacjeffery
TikTok = @njCanary
November 17, 2024 at 3:12 PM
Hey guys,
If anyone wants to follow me or my work @thecanaryuk.bsky.social or to follow me on other socials here's how...👇✊️
X = @NicolaCJeffery
Insta = @nicolacjeffery
Threads = @nicolacjeffery
TikTok = @njCanary
If anyone wants to follow me or my work @thecanaryuk.bsky.social or to follow me on other socials here's how...👇✊️
X = @NicolaCJeffery
Insta = @nicolacjeffery
Threads = @nicolacjeffery
TikTok = @njCanary
Reposted by Deborah
McKinsey nears $600m settlement with US government over role in opioid crisis
McKinsey nears $600m settlement with US government over role in opioid crisis
Consultancy firm accused of helping opioid makers boost sales, which allegedly contributed to deadly epidemic
McKinsey is in the final stages of negotiating a deferred prosecution agreement to resolve a US criminal investigation into the consulting…
dlvr.it
November 21, 2024 at 10:59 PM
McKinsey nears $600m settlement with US government over role in opioid crisis
Reposted by Deborah
Leeds has a fully funded scholarship program for undergraduate and Masters study for Gaza students.
**Tell Everyone**
www.leeds.ac.uk/masters-scho...
**Tell Everyone**
www.leeds.ac.uk/masters-scho...
Gazan Humanitarian Scholarship
We offer scholarships for citizens of Gaza who have been displaced as a result of the ongoing conflict in the region and are living in a different country (outside of the UK).
www.leeds.ac.uk
November 21, 2024 at 10:42 PM
Leeds has a fully funded scholarship program for undergraduate and Masters study for Gaza students.
**Tell Everyone**
www.leeds.ac.uk/masters-scho...
**Tell Everyone**
www.leeds.ac.uk/masters-scho...
Reposted by Deborah
We have a great opportunity for a trainee community reporter to join the famous @liverpoolecho.co.uk
You don't need any qualifications & can work in our newsroom as you learn on the job. A great chance to get a foot in the industry.
Details here 👇
www.liverpoolecho.co.uk/news/liverpo...
You don't need any qualifications & can work in our newsroom as you learn on the job. A great chance to get a foot in the industry.
Details here 👇
www.liverpoolecho.co.uk/news/liverpo...
Make a difference in your community by training to be a reporter
There is an opportunity for a trainee community reporter to come and join our team as part of the NCTJ’s Community News Project
www.liverpoolecho.co.uk
November 20, 2024 at 4:33 PM
We have a great opportunity for a trainee community reporter to join the famous @liverpoolecho.co.uk
You don't need any qualifications & can work in our newsroom as you learn on the job. A great chance to get a foot in the industry.
Details here 👇
www.liverpoolecho.co.uk/news/liverpo...
You don't need any qualifications & can work in our newsroom as you learn on the job. A great chance to get a foot in the industry.
Details here 👇
www.liverpoolecho.co.uk/news/liverpo...
Could those in the #ME community recommend a doctor please? ( If possible contact details) I assume it will have to be remote and private. General help and advice very much needed for our son’s decline. Thank you!
November 19, 2024 at 11:15 AM
Could those in the #ME community recommend a doctor please? ( If possible contact details) I assume it will have to be remote and private. General help and advice very much needed for our son’s decline. Thank you!
Reposted by Deborah
Hi @medsky.social could you possibly also make a category for #LongCovid and #MECFS specialists? With 400 million Long Covid sufferers as of 08/2024, many of which have developed ME/CFS, and such a lack of knowledgeable clinical care, this would be really helpful 🙏
www.nature.com/articles/s41...
www.nature.com/articles/s41...
Long COVID science, research and policy - Nature Medicine
This Review outlines the current state of scientific evidence on long COVID, discusses its impacts on patients, health systems, economies and global health metrics, and proposes a forward-looking rese...
www.nature.com
November 18, 2024 at 7:20 AM
Hi @medsky.social could you possibly also make a category for #LongCovid and #MECFS specialists? With 400 million Long Covid sufferers as of 08/2024, many of which have developed ME/CFS, and such a lack of knowledgeable clinical care, this would be really helpful 🙏
www.nature.com/articles/s41...
www.nature.com/articles/s41...
Reposted by Deborah
The full text of the column from the chairman of the MEA is here: docs.google.com/document/d/e...
It's condescending, scientifically wrong & undermines the key message of rest helps movement.
An open letter in response you can sign if you wish to is here: docs.google.com/forms/d/e/1F...
It's condescending, scientifically wrong & undermines the key message of rest helps movement.
An open letter in response you can sign if you wish to is here: docs.google.com/forms/d/e/1F...
November 18, 2024 at 11:17 AM
The full text of the column from the chairman of the MEA is here: docs.google.com/document/d/e...
It's condescending, scientifically wrong & undermines the key message of rest helps movement.
An open letter in response you can sign if you wish to is here: docs.google.com/forms/d/e/1F...
It's condescending, scientifically wrong & undermines the key message of rest helps movement.
An open letter in response you can sign if you wish to is here: docs.google.com/forms/d/e/1F...
Reposted by Deborah
happy for you to DM me or you can use this form which doesn't need a sign in or to access the doc: docs.google.com/forms/d/e/1F...
Letter to ME Association regarding comments made by their chairman
If you would like to sign please add your name below.
Dear ME Association
We are writing to you as patients with ME, carers and health professionals. We were shocked and offended to read the editor...
docs.google.com
November 18, 2024 at 5:17 PM
happy for you to DM me or you can use this form which doesn't need a sign in or to access the doc: docs.google.com/forms/d/e/1F...