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curescn2a.bsky.social
Michelle Lewis
@curescn2a.bsky.social
57 followers 70 following 4 posts
Eliana’s Mom. Advocate and Trustee for FamilieSCN2A Foundation. Special Education Teacher. Sports Lover.
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curescn2a.bsky.social
Thank you @kearneylab.bsky.social for your dedication to #SCN2A!
scn2a.bsky.social FamilieSCN2A Foundation @scn2a.bsky.social · Jan 9
📣 Please join us in congratulating Jennifer Kearney, PhD as this year’s MDBR awardee! Dr. Kearney created the first ever #SCN2a mouse model & also serves on the Foundation’s SAB.

Thank you riders, volunteers and donors!

Read more here: www.orphandiseasecenter.med.upenn.edu/awarded-gran...
January 10, 2025 at 1:34 PM
Reposted by Michelle Lewis
scn2a.bsky.social
The much-anticipated recap of our experience at the #AES2024 is here! Check out how we kept #SCN2A front and center throughout this 4-day event!

👉 Read the full summary here: www.scn2a.org/AES-2024-Rec...

👉 Donate here: secure.qgiv.com/event/givesc...

💜💙💚

#CureSCN2A #GiftOfHope
December 17, 2024 at 8:33 PM
curescn2a.bsky.social
So proud to be apart of this team dedicated to #CureSCN2A!

#AES2024 #SCN2A
scn2a.bsky.social FamilieSCN2A Foundation @scn2a.bsky.social · Dec 12
Our team proudly represented the #SCN2A community at #AES2024! Over 4 days, we worked tirelessly to spread awareness, educate, and collaborate on advancing care and treatments for SCN2A-related disorders.
Each meeting and conversation reinforced the power of collaboration in driving progress!
December 12, 2024 at 11:19 PM
curescn2a.bsky.social
On this #GivingTuesday consider the FamilieSCN2A Foundation @scn2a.bsky.social as a recipient of your generosity. (www.scn2a.org)

#SCN2A is one of the leading single-gene causes of neurodevelopmental disorders like epilepsy and autism.

Help us #CureSCN2A💜💙💚
December 4, 2024 at 1:16 AM
Reposted by Michelle Lewis
scn2a.bsky.social
✨ Big News! ✨
Seize the Moment. Move Mountains for SCN2A!
We’re thrilled to announce that our 7th Family & Professional Conference is coming to Denver, Colorado on July 31-Aug 2, 2025! More details coming soon! 💙💚💜
#SCN2A #cureSCN2A #genetics #geneticeilepsy #autism #epilepsy
November 22, 2024 at 2:09 PM
curescn2a.bsky.social
SCN2A-Related Disorders from Cambridge Elements

Open Access

www.cambridge.org/core/element...
SCN2A-Related Disorders
Cambridge Core - Neurology and Clinical Neuroscience - SCN2A-Related Disorders
www.cambridge.org
November 26, 2024 at 9:36 PM
Reposted by Michelle Lewis
csaninocencio.bsky.social
Hot off the press. New article, "Charting the Course to a Cure for #SCN2A related disorders" was just published today in Therapeutic Advances in Rare Disease. journals.sagepub.com/doi/10.1177/.... #rareepilepsy #autism #patientadvocacy
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
journals.sagepub.com
November 12, 2024 at 6:35 PM