Dravet Syndrome Foundation
banner
curedravet.bsky.social
Dravet Syndrome Foundation
@curedravet.bsky.social
The mission of DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families. https://dravetfoundation.org
💜 It’s Dravet Syndrome Awareness Day and DSF staff is proud to show up for our community. Share your photo, raise your voice, and help turn awareness into action.

🟣 Check out our Awareness Month resources: bit.ly/3q4arIH

#CureDravet
June 23, 2025 at 4:13 PM
Your support and involvement with DSF are helping to shape a brighter future for individuals and families affected by Dravet syndrome. We invite you to explore our 2024 Annual Report, which highlights the incredible progress we've made together over the past year.

Learn more: bit.ly/3YR1roM
May 20, 2025 at 7:00 PM
For families navigating Dravet syndrome, finding new treatment options offers hope. The Phase 3 ARGUS Trial is currently enrolling patients with Dravet syndrome to test if Clemizole (EPX-100) can reduce seizure frequency.

Read our blog to learn more: bit.ly/4d0h1Eq

#CureDravet
May 6, 2025 at 9:41 PM
Phase 3 trials for zorevunersen (STK-001) — a treatment targeting the genetic cause of Dravet syndrome — are expected to begin this summer.

We’ve created an in-depth FAQ to help you understand where things stand and what’s next.

🦋 Read the full FAQ blog: bit.ly/41EZtZe

#CureDravet #DravetSyndrome
April 29, 2025 at 6:46 PM
New DSF-funded study finds impaired cellular energy metabolism in kids with #DravetSyndrome — adding key insights to how we understand this disease. 🧬 Thank you to our donors who make research like this possible! 💜 #EpilepsyResearch #DSFImpact

📖 Read: bit.ly/42h9ZWH
April 18, 2025 at 1:41 PM
Explore "Expert Perspectives on Dravet Syndrome Management" with Dr. Scott Perry (@thenotoriouseeg.bsky.social), covering diagnosis, emerging therapies, and care strategies. Gain valuable insights here: bit.ly/4fHiMab #DSF #DravetSyndrome
November 25, 2024 at 4:19 PM