💜 It’s Dravet Syndrome Awareness Day and DSF staff is proud to show up for our community. Share your photo, raise your voice, and help turn awareness into action.

🟣 Check out our Awareness Month resources: bit.ly/3q4arIH

#CureDravet

Your support and involvement with DSF are helping to shape a brighter future for individuals and families affected by Dravet syndrome. We invite you to explore our 2024 Annual Report, which highlights the incredible progress we've made together over the past year.

Learn more: bit.ly/3YR1roM

For families navigating Dravet syndrome, finding new treatment options offers hope. The Phase 3 ARGUS Trial is currently enrolling patients with Dravet syndrome to test if Clemizole (EPX-100) can reduce seizure frequency.

Read our blog to learn more: bit.ly/4d0h1Eq

#CureDravet

Phase 3 trials for zorevunersen (STK-001) — a treatment targeting the genetic cause of Dravet syndrome — are expected to begin this summer.

We’ve created an in-depth FAQ to help you understand where things stand and what’s next.

🦋 Read the full FAQ blog: bit.ly/41EZtZe

#CureDravet #DravetSyndrome

New DSF-funded study finds impaired cellular energy metabolism in kids with #DravetSyndrome — adding key insights to how we understand this disease. 🧬 Thank you to our donors who make research like this possible! 💜 #EpilepsyResearch #DSFImpact

📖 Read: bit.ly/42h9ZWH

Legislative changes can have a direct impact on the disabled and rare disease communities, including those affected by #Dravet syndrome. Stay informed and take action.This week’s Decoding Dravet blog dives into ways to get involved and advocate for change.

Dravet syndrome affects more than seizures—it impacts cognition, behavior, and overall health. Collaboration among professionals is key to improving outcomes. Let’s share knowledge, innovate, and work toward better treatments. Explore our Roadmap to a Cure: bit.ly/3Z3PICD
#CureDravet #DSF

If you’re thinking of donating for #GivingTuesday, we hope you think of us! Your generosity is fueling life-changing research and supporting Dravet families. 💜

Every donation you make before 12/31 will be matched up to $30K. Make 2x the impact today: bit.ly/3FMA5pX

Explore "Expert Perspectives on Dravet Syndrome Management" with Dr. Scott Perry (@thenotoriouseeg.bsky.social), covering diagnosis, emerging therapies, and care strategies. Gain valuable insights here: bit.ly/4fHiMab #DSF #DravetSyndrome

Living with Dravet syndrome means facing unpredictable seizures, developmental delays, and medical challenges. But no family faces this alone. DSF is here to provide resources, community, and hope for a brighter future. 💜 Follow along and join us in making a difference! #DravetCommunity #DSF