Christina SanInocencio
@csaninocencio.bsky.social
Qualitative health communication researcher with a focus on rare epilepsy. Assistant Professor of Communication. LGS sibling. Founder, LGS Foundation; Board, Coalition to Cure CHD2; Advisor, FamilieSCN2A; Chair, Rare Epilepsy Network. LI, NYC & CT
Reposted by Christina SanInocencio
A Chicago Pope implies the existence of an MLA Pope and APA Pope
May 8, 2025 at 5:36 PM
A Chicago Pope implies the existence of an MLA Pope and APA Pope
Reposted by Christina SanInocencio
The Public Broadcasting Act of 1967 created the Corporation for Public Broadcasting. I reread it today; nothing in the law allows a president to defund PBS and NPR. In fact, Congress specifically sought to insulate public media from political pressure.
May 3, 2025 at 1:42 AM
The Public Broadcasting Act of 1967 created the Corporation for Public Broadcasting. I reread it today; nothing in the law allows a president to defund PBS and NPR. In fact, Congress specifically sought to insulate public media from political pressure.
Reposted by Christina SanInocencio
On a day like this, it’s important to say THANK YOU to all the science and public health communicators for all you do. Your work will be even more critical in the coming years. Keep going! You are very much needed and appreciated. ❤️
February 13, 2025 at 11:20 PM
On a day like this, it’s important to say THANK YOU to all the science and public health communicators for all you do. Your work will be even more critical in the coming years. Keep going! You are very much needed and appreciated. ❤️
Very exciting when the director of #NINDS comes to your meeting. Thanks Dr. Koroshetz, you made our day! @rareepilepsy.bsky.social
December 8, 2024 at 4:58 PM
Very exciting when the director of #NINDS comes to your meeting. Thanks Dr. Koroshetz, you made our day! @rareepilepsy.bsky.social
December 7, 2024 at 7:43 PM
Reposted by Christina SanInocencio
It's Epilepsy Awareness Month, and there is no better time to remind you that this journey can severely impact siblings of children with epilepsy. Watch here: ow.ly/PHp850U2yo6
#epilepsy #epilepsyawareness #NEAM2024 #EpilepsyAwarenessMonth #PESAlliance #NeuroSky
#PatientAdvocacy
#epilepsy #epilepsyawareness #NEAM2024 #EpilepsyAwarenessMonth #PESAlliance #NeuroSky
#PatientAdvocacy
November 23, 2024 at 6:45 PM
It's Epilepsy Awareness Month, and there is no better time to remind you that this journey can severely impact siblings of children with epilepsy. Watch here: ow.ly/PHp850U2yo6
#epilepsy #epilepsyawareness #NEAM2024 #EpilepsyAwarenessMonth #PESAlliance #NeuroSky
#PatientAdvocacy
#epilepsy #epilepsyawareness #NEAM2024 #EpilepsyAwarenessMonth #PESAlliance #NeuroSky
#PatientAdvocacy
It's been a busy and hugely productive week. Here are some highlights. Really proud and excited.
1) Co-led a #FDA listening session on the DEEs (Developmental and Epileptic Encephalopathies) where the patient voice was front and center. This was the first time the FDA accepted a DEE panel.
1) Co-led a #FDA listening session on the DEEs (Developmental and Epileptic Encephalopathies) where the patient voice was front and center. This was the first time the FDA accepted a DEE panel.
November 23, 2024 at 7:40 PM
It's been a busy and hugely productive week. Here are some highlights. Really proud and excited.
1) Co-led a #FDA listening session on the DEEs (Developmental and Epileptic Encephalopathies) where the patient voice was front and center. This was the first time the FDA accepted a DEE panel.
1) Co-led a #FDA listening session on the DEEs (Developmental and Epileptic Encephalopathies) where the patient voice was front and center. This was the first time the FDA accepted a DEE panel.
Reposted by Christina SanInocencio
✨ Big News! ✨
Seize the Moment. Move Mountains for SCN2A!
We’re thrilled to announce that our 7th Family & Professional Conference is coming to Denver, Colorado on July 31-Aug 2, 2025! More details coming soon! 💙💚💜
#SCN2A #cureSCN2A #genetics #geneticeilepsy #autism #epilepsy
Seize the Moment. Move Mountains for SCN2A!
We’re thrilled to announce that our 7th Family & Professional Conference is coming to Denver, Colorado on July 31-Aug 2, 2025! More details coming soon! 💙💚💜
#SCN2A #cureSCN2A #genetics #geneticeilepsy #autism #epilepsy
November 22, 2024 at 2:09 PM
✨ Big News! ✨
Seize the Moment. Move Mountains for SCN2A!
We’re thrilled to announce that our 7th Family & Professional Conference is coming to Denver, Colorado on July 31-Aug 2, 2025! More details coming soon! 💙💚💜
#SCN2A #cureSCN2A #genetics #geneticeilepsy #autism #epilepsy
Seize the Moment. Move Mountains for SCN2A!
We’re thrilled to announce that our 7th Family & Professional Conference is coming to Denver, Colorado on July 31-Aug 2, 2025! More details coming soon! 💙💚💜
#SCN2A #cureSCN2A #genetics #geneticeilepsy #autism #epilepsy
#healthcommunication announcements from the #NCA health communication division (3/3). Health communication research opportunities through #NIH
November 22, 2024 at 4:42 PM
#healthcommunication announcements from the #NCA health communication division (3/3). Health communication research opportunities through #NIH
#healthcommunication announcements from the #NCA health communication division (2/3). A new health story hub for shared resources of #healthcommunication stories, syllabi, and teaching materials from #universityofiowa
November 22, 2024 at 4:40 PM
#healthcommunication announcements from the #NCA health communication division (2/3). A new health story hub for shared resources of #healthcommunication stories, syllabi, and teaching materials from #universityofiowa
#healthcommunication announcements from the #NCA health communication division (1/3). CPM dissertation fellowship opportunity that I wish I knew about when I was writing my diss on #LGS and privacy sharing!
November 22, 2024 at 4:36 PM
#healthcommunication announcements from the #NCA health communication division (1/3). CPM dissertation fellowship opportunity that I wish I knew about when I was writing my diss on #LGS and privacy sharing!
Big news for the epilepsy community. A bill has been introduced in the Senate (S.5353) and House (# TBD) to create A National Plan for Epilepsy. Learn more - www.epilepsy-national-plan.org
@rareepilepsy.bsky.social
@rareepilepsy.bsky.social
November 22, 2024 at 3:40 PM
Big news for the epilepsy community. A bill has been introduced in the Senate (S.5353) and House (# TBD) to create A National Plan for Epilepsy. Learn more - www.epilepsy-national-plan.org
@rareepilepsy.bsky.social
@rareepilepsy.bsky.social
Very cool opportunity from the #Epilepsy Foundation. They are launching a Research Ambassador Program to strengthen connections between the epilepsy community and research, providing insight into the processes of clinical research and new therapy development. www.epilepsy.com/research-fun...
November 18, 2024 at 2:41 PM
Very cool opportunity from the #Epilepsy Foundation. They are launching a Research Ambassador Program to strengthen connections between the epilepsy community and research, providing insight into the processes of clinical research and new therapy development. www.epilepsy.com/research-fun...
There are nearly 1,000 genes known to cause epilepsy. 800+ of them are associated with developmental and epileptic encephalopathy. #rareepilepsy #epilepsy #genetics
November 18, 2024 at 1:11 AM
There are nearly 1,000 genes known to cause epilepsy. 800+ of them are associated with developmental and epileptic encephalopathy. #rareepilepsy #epilepsy #genetics
Excited to see so many new followers by colleagues and friends in epilepsy, health communication, rare disease, academia, medicine, and more.
November 16, 2024 at 7:33 PM
Excited to see so many new followers by colleagues and friends in epilepsy, health communication, rare disease, academia, medicine, and more.
A great way to follow a bunch of epilepsy researchers all at once.
Hey #epilepsy research people doing the great migration from the other side! I've just created this starter pack with a few names that I'll update as I get feedback, so please spread the word so we can build a community!
go.bsky.app/B8pPi1n
go.bsky.app/B8pPi1n
November 15, 2024 at 4:10 PM
A great way to follow a bunch of epilepsy researchers all at once.
Reposted by Christina SanInocencio
Q: What happens when you overpay for a social media platform, drive away most of your advertisers, alienate half its users, making it worth less than a third of what you paid for it within a year?
A: You get put in charge of government efficiency.
A: You get put in charge of government efficiency.
November 13, 2024 at 11:26 AM
Q: What happens when you overpay for a social media platform, drive away most of your advertisers, alienate half its users, making it worth less than a third of what you paid for it within a year?
A: You get put in charge of government efficiency.
A: You get put in charge of government efficiency.
Reposted by Christina SanInocencio
Librarians moving dystopian novels to the nonfiction shelves.
a woman standing in a library with a book titled room on the shelf
ALT: a woman standing in a library with a book titled room on the shelf
media.tenor.com
November 13, 2024 at 2:06 AM
Librarians moving dystopian novels to the nonfiction shelves.
And last month, "A roadmap to Cure CHD2-related disorders" journals.sagepub.com/doi/full/10.... was published in Therapeutic Advances in Rare Disease #rareepilepsy #autism #patientadvocacy @curechd2.bsky.social
A roadmap to cure CHD2-related disorders - Stephanie Prince, Emily Bonkowski, Christopher McGraw, Christina SanInocencio, Heather C Mefford, Gemma Carvill, Brian Broadbent, 2024
Coalition to Cure CHD2 (CCC) is a patient advocacy group dedicated to improving the lives of those affected by CHD2-related disorders (CHD2-RD) by increasing ed...
journals.sagepub.com
November 12, 2024 at 6:36 PM
And last month, "A roadmap to Cure CHD2-related disorders" journals.sagepub.com/doi/full/10.... was published in Therapeutic Advances in Rare Disease #rareepilepsy #autism #patientadvocacy @curechd2.bsky.social
Hot off the press. New article, "Charting the Course to a Cure for #SCN2A related disorders" was just published today in Therapeutic Advances in Rare Disease. journals.sagepub.com/doi/10.1177/.... #rareepilepsy #autism #patientadvocacy
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journals.sagepub.com
November 12, 2024 at 6:35 PM
Hot off the press. New article, "Charting the Course to a Cure for #SCN2A related disorders" was just published today in Therapeutic Advances in Rare Disease. journals.sagepub.com/doi/10.1177/.... #rareepilepsy #autism #patientadvocacy
@curechd2.bsky.social is now on bluesky! CHD2 is a rare neurodevelopmental disorder associated with epilepsy, autism, and intellectual disability.
November 12, 2024 at 12:51 AM
@curechd2.bsky.social is now on bluesky! CHD2 is a rare neurodevelopmental disorder associated with epilepsy, autism, and intellectual disability.
New to Bluesky. Happy to be here and hoping to connect with rare epilepsy researchers, caregivers, and patients, health communication researchers and practitioners, media studies folks, social scientists, and qualitative researchers.
November 11, 2024 at 3:35 PM
New to Bluesky. Happy to be here and hoping to connect with rare epilepsy researchers, caregivers, and patients, health communication researchers and practitioners, media studies folks, social scientists, and qualitative researchers.