Miranda
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crookedneighbor.bsky.social
Miranda
@crookedneighbor.bsky.social
170 followers 350 following 650 posts
Long Covid patient and caregiver writing about homelessness, poverty, and administrative burden in ME/CFS. (she/her)

LongCovidSafety.net
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crookedneighbor.bsky.social
FYI for anyone in New York State who is affected by the SNAP situation, we got this notice just a couple hours ago.
November 7, 2025 Dear Community Partner, As OTDA announced late this afternoon, New York State is completing the necessary steps to issue full November SNAP benefits to all eligible households. This is in response to a U.S. District Court ruling on November 6, 2025 directing the federal government to issue full November SNAP benefit payments to eligible households. OTDA expects to begin issuing November SNAP benefits this weekend and some New Yorkers could have access to their benefits as soon as Sunday, November 9. As we shared earlier this afternoon, on Monday, November 10th at 3:30 PM, DSS Commissioner Molly Wasow Park, HRA Administrator Scott French, and other agency leadership will hold a briefing call to discuss this and share other important information. Please register here if you have not already done so.
November 8, 2025 at 1:28 AM
crookedneighbor.bsky.social
Boosting: An immunocompromised Black queer disabled woman with Long Covid needs support raising $860 for a new apartment after living in a motel since being evicted.

I don't know this woman personally but this is such a common situation and it would be great if folks could help her get to safety.
Urgent Financial Ask Kimalah finally has a shot at getting stable housing! Please help make this possible for my friend 🥺 $830 for Safe Housing Due Fri. Sept. 19th An immunocompromised Black queer disabled woman with long COVID needs support raising $860 for a new apartment after living in a motel since being evicted by her former landlords who physically and digitally stalked and harassed her for over 6 months. PayPal: @KimalahL Cashapp: @LaguerreK for “Move”
September 18, 2025 at 3:14 AM
crookedneighbor.bsky.social
A dear friend, who has repeatedly gone above and beyond to support me and other chronically ill people, is facing homelessness for the second (at least?) time. They have until 8/27 to pull together the funds to get their stuff into storage. Can you help?

[PLS DO NOT POST ON META FOR SAFETY REASONS]
Purple flyer with a headline that reads: "Help Our Trans Indigenous Friend Survive Medical Homelessness." Mostly covered by the text, there is a photo of a person wearing an oxygen cannula being aggressively cuddled by a very round cat. The body of the flyer reads: "Our friend 'K' is a trauma survivor with numerous very serious medical conditions, who is being evicted from their home. Because of their immune deficiency, they have no choice but to live in the hospital until permanent housing can be secured. We are fundraising to help cover movers, storage, cat care, and other survival needs. K is beloved in the chronic illness community and constantly helping others despite being incredibly sick. Please help us make sure they are safe and cared for during this time! ko-fi/venmo: whangspangle"
August 22, 2025 at 8:01 PM
crookedneighbor.bsky.social
This is not a legal strategy! Yes it's very hard to get approved without a hearing, but it *can* be done if you present your case properly. I learned this from SOAR and it's not rocket science.
soarworks.samhsa.gov
Infographic breaking down "The SSA Sequential Evaluation for Adults": "Step 1: Is the person working at SGA?" If yes, denial. If no, proceed to "Step 2: Does the person have severe impairment?" If yes, denial. If no, proceed to "Step 3: Does impairment meet or equal the listing?" If yes, approval. If no, proceed to "Step 4: Does impairment allow for past relevant work?" If yes, denial. If no, proceed to "Step 5: Does impairment allow for any other work?" If yes, denial. If no, approval.
July 24, 2025 at 7:24 PM
crookedneighbor.bsky.social
The "get in loser, we're going shopping" meme from Mean Girls except it says "Get in loser, we're bullying Ben Ryan." (If you're not familiar with the original image, it's the three girls looking toward the camera from an expensive convertible. Regina and Gretchen are in the front seats and both smirking. Karen is sitting in the back and has a classic Karen "confused but intrigued" expression.)
July 19, 2025 at 12:13 AM
crookedneighbor.bsky.social
With alt text ↘️

Pretty sure this checks all the definitional boxes for genocide
Quote: "I lost everything I had spent my life working for. We are stripped of our memories, our identities. No birth certificates. No marriage contracts. No graduation certificates. Nothing. Literally nothing to prove we were once humans, no less than anyone else. But now, we are mere numbers. Nameless and faceless." --Ibrahim Fares, 68-year-old retired teacher who was displaced from his home in the Al-Bureij refugee camp in Central Gaza on Oct. 7. There is a small logo for Prism in the bottom left corner.
July 18, 2025 at 7:01 PM
crookedneighbor.bsky.social
Oops, I now have hats on the way from both @thesicktimes.bsky.social and @hellgatenyc.com. ISO: wife to help me wear all my hats
Promotional slide from The Sick Times: A mock-up of The Sick Times khaki dad hat. The comment reads: “I want to support good journalism and also my wife wants the hat.”
July 14, 2025 at 4:32 PM
crookedneighbor.bsky.social
This program, SOAR, also offers (until August) free training modules that are accessible to the general public without requiring any kind of credentialed login. Tons of insider info about how SSA makes its decisions and how to navigate the process so you get approved at step 3 instead of step 5
Infographic breaking down "The SSA Sequential Evaluation for Adults": "Step 1: Is the person working at SGA?" If yes, denial. If no, proceed to "Step 2: Does the person have severe impairment?" If yes, denial. If no, proceed to "Step 3: Does impairment meet or equal the listing?" If yes, approval. If no, proceed to "Step 4: Does impairment allow for past relevant work?" If yes, denial. If no, proceed to "Step 5: Does impairment allow for any other work?" If yes, denial. If no, approval.
July 10, 2025 at 3:45 PM
crookedneighbor.bsky.social
Federal government is shutting down the program that helps homeless people with SSI/SSDI applications @mariannedhe.bsky.social @marisakabas.bsky.social @economichardship.bsky.social
To our SOAR Community, We are deeply saddened to share that due to a change in policy priorities, SAMHSA has discontinued funding for the SAMHSA SOAR TA Center. After August 18, the SOARWorks website, SOAR Online Courses, and the SOAR Online Application Tracking (OAT) system will no longer be available. Technical assistance and training previously provided by staff at Policy Research Associates, Inc. (PRA) (operators of the SAMHSA SOAR TA Center) will no longer be available. We have highlighted some next steps below and encourage you to visit SOAR Close Out FAQs for additional information and guidance. Keep SOARing, Your SOAR TA Center Team at PRA
July 10, 2025 at 3:40 PM
crookedneighbor.bsky.social
I'm screaming. The funniest part of this isn't even that they used ChatGPT, it's that that they very clearly don't know what UTM codes are
Text: "A paragraph on page 29 also cites a fact to a 2024 Gothamist article, and includes the site where the source was generated: ChatGPT." Below that text is a screenshot of a citation that reads, "[23] https://gothamist.com/news/heres-what-nycs-mayoral-candidates-say-about-freezing-the-rent?utm_source=chatgpt.com" (i.e. the UTM code in the link is showing that it was sourced from ChatGPT).
April 15, 2025 at 2:18 AM
crookedneighbor.bsky.social
If anyone has some basic disaster response/evacuation knowledge and the capacity to talk things through with a person with severe ME and their caregiver, please see the tweets below from the other place. Thanks
Three tweets from @JuliaGrace1353, which together read: "Immediate help needed re: evacuating for a fire with severe ME. Already had a meltdown. Caretaker is preparing bags. Not currently in a evacuation zone, but preparing for the worst because the winds and there have been two reported residential fires less than a few miles away just in the past half hour. Heart rate is high. Can barely move. Need to know what to do. Caretaker is not prepared and I can only contribute by pointing to where in my room things are. I've been in a crash since a freaky anaphylaxis episode a week ago and I"m scared because I don't know what to do and don't know how to process what's going on."
January 8, 2025 at 3:38 AM
crookedneighbor.bsky.social
For those who've fled the other place: The NYC comptroller went to an event tonight with a positive covid test, which he tweeted a picture of claiming it was negative

twitter.com/bradlander/s...
A screenshot of a tweet from @BradLander on October 5 that reads, "Great to be feeling better, testing negative, and back doing the people's business in person. Thanks @ICCRonline for a great roundtable on what investors can do to insure #ASeatAtTheTable for workers— so we can building [sic] a more thriving & inclusive economy." The tweet includes 2 photos of the event and 1 of a covid test with a faint positive line.
October 6, 2023 at 2:55 AM
crookedneighbor.bsky.social
THIS is why I don’t fuck with groups like this. 22k AUD (~14k USD) buys an entire N95 manufacturing setup + first month’s rent on a warehouse to operate it from. But these people were never about “community”; they only care about protecting their own nuclear families
Tweet from Isolating Community (@isolatingcmnty) on 10/4/23 that reads, “Selling 6 tickets on a covid safe private jet flight from Brisbane to LAX on October 21st. AUD$22k per seat. Please DM for details.”
October 4, 2023 at 5:49 PM